@EmeraldEyes Thank you very much, and I feel I should do as you suggest, about speaking to someone over the phone.
I was in rehab in the beginning and then a care home and this is the second care home I am in.
It is an Extra Care facility, where there are 36 flats, all with sole occupants. My best friend visits me regularly, and brings me essential supplies and home cooked meals. I am of Asian descent and my meals are traditional flavours.
I hope to get away from here and live independently in the community, sooner than later.
I am finding this forum very conducive to how I feel about life and I will continue with writing and sharing on here.
Thanks to you all for the kindness and good guidance and wishes.
One last thing for now. At 65 (almost) years of age, I am the youngest one in this care facility and amongst others much older than myself. They are all above 70 in my understanding.
Their care needs are much more along the lines of help with all daily chores and tasks.
I have been left capable of much more than my fellow residents.
Shortly I will get help with morning coffee and toast, then a shower. Daily needs which I need help with.
Regards all.
Right side for me too. But, is there anything you can move at all on your right side? Your leg? Can you move it a little? If so, work on moving a little more. The more you can move, the more you will stimulate further progress. What about nerves? Do you have some feeling anywhere on your right?
Itās a rough ride, but I see people who struggle and have given up any hope of improving their condition. Thereās always something that can be done. If you would like some direction you will find people here ready and capable of helping you. There is a free course at brain.rehab which is very good, and teaches you about your condition, and how to work on almost any aspect of your hemiplegia (or hemiparesis / less acute).
Iām glad you are active on this thread, it indicates you are ready to fight the good fightā¦
@pando
I walk with a stick in my left hand and am active in many ways. I feed and sress myself.
I am online most of the time. I trade online and make a little pocket money here and there
Hope to make enough to go on a once in a lifetime pilgramage in 2025
Wish me luck friends
You are in better shape than perhaps I imagined. Still, there is probably plenty of good work you can do to improve ; same with all of us. Which means, I had better crack on with my exercises
@pando
Thank you,
I have been stuck
one idea in my head since I was at university (finished 1984).
I have always thought I was born to write. I am fluent in 4 languages and feel I could express myself equall in them all.
Hence I am writing daily here on this thread.
Life is difficult, when you are a loner stuck amongst people who have nothing to say to you, or anything to share with you.
I go down to the common /dining room daily.
They all want to indulge in bingo, daily for prizes like shampoo bottles, bars of soap and bleach. I have tried it few times and find it mind numbing.
Not for me at all.
I would rather watch the 24 hour news channels all the time
I understand. Youāre not in the Bingo club yet (nor I) but you want to get busy with something, right? I canāt say Iām a fan of the news & politics, but I understand it may help you to feel a part of this world. I, too, feel isolated and lacking friendsā¦ I seemed to have lost a few when I had my stroke. They obviously didnāt want to be reminded of what lies around the corner, perhaps.
Your writing will allow yourself to express and create. Do continue. As for myself, I am obsessed with my recovery (some would say)ā¦ no, thatās not the right wordā¦ I am IN LOVE with my recovery. Itās fascinating, engaging, and for a good cause. I have one physio who says Iām am the hardest worker she knows (sheās a weight lifting champion) and the other physio is astounded at my monthly progress (though he recently said my walking had suffered a set back, which, like everything else, I would no doubt overcome.)
I am lucky to have a team of 5 people looking after me. Best of all I have a fantastic wife, who motivates me every day ; she is head of my team!! I know you are aloneā¦ but not entirelyā¦ you have a good friend, and youāll make more friends (possibly here?). Best thing of all work on your progress, that way you can bust yourself out of prisonā¦ for, even with my beautiful house & team (no kids) I too can feel very much in prison within my ābroken bodyā (mending brain / reconnecting nerves etcā¦)
Yes Matthew
I hope to go to Mecca. As you may know, every Muslim hopes to see and touch The Kabba before he/she dies. As is the case with me.
I do not work anymore and live on a small pension and the generosity of the state and some close friends.
I want to go teach somewhere necessary at the end times and grow my own food and live the easy life off the land which my family used to farm for centuries.
Its on the banks of a river and scenic like an old painting.
I am from Punjab, Pakistan.
60 miles north of Lahore
Came to UK 1969, aged just under 10, with my siblings and mother to join my father who came early 1960s when UK was asking for migrants from West Indes and my part of the World.
All have passed away over the years. I am the last one living out of 5 siblings
You are right. It is a beautiful green part of the world. I get my pension next year (State pension at 66) and I think about moving back there. I could live like a prince for the rest of my life. But I would miss old Blighty and MCFC too much. I would be watching Youtube about London and Manchester all day. I am staying, cos I am a Brit at heart, and would run back.
Woke up and have had breakfast thanks to the Care staff. It is Sunday
Feeling down depressed distressed and wanting to get out and walk away to never return to this horrible enclosed off box(es) I call home.
Feeling cold, stressed anxious and tension laden
Lots of pain down my right side. Neck to Toes.
Read a book The Hundred-Year-Old Man Who Climbed Out of the Window and Disappeared by Jonas Jonasson Sitting quietly in his room in an old peopleās home, Allan Karlsson is waiting for a party he doesnāt want to begin. His one-hundredth birthday party to be precise. The Mayor will be there. The press will be there. But, as it turns out, Allan will not . . .
Escaping (in his slippers) through his bedroom window, into the flowerbed, Allan makes his getaway. And so begins his picaresque and unlikely journey involving criminals, several murders, a suitcase full of cash, and incompetent police. As his escapades unfold, Allanās earlier life is revealed. A life in which - remarkably - he played a key role behind the scenes in some of the momentous events of the twentieth century.
Go for a walk before the rain comes back. You need to find something to fire up those feel good endorphins and get the adrenaline pumping.
You need some motivators. Set yourself some small, realistic measurable targets and goals, based on your current physical ability. Start the day with a little light exercise to get the blood circulating through your veins to get you mobile.
Go on a 15/30 minute walk, so many times a day, so many days a week, inside or outside your care home. Have you explored your local area on google maps? Itās a good place to plan target locations you might like to visit or just walk in. Do you even get outside much?
Is there a communal garden you could get involved with the care of if youāre interested.
@EmeraldEyes
I am in West London, within walking distance of the North side of the Thames. A historical landmark. My abode is in an enclosed 6 acre site. I have explored the immediate outside and dare not venture any further. I wear a trackable fob in case I have a fall and hurt myself. The tracking is only possible if I stay within the bounds of my immediate enclosed space. These days I am inside 24 hours a day. I venture outside dring the day. After dark it is not going to work, because all lighting is off. I would need a torch to navigate away from here and back here.
Where would I go. I have a little cash and a debit card.
What would be my goal in walking away.
My loner self will not allow me to go try survive in the woods and live off the land. Unless I start shoplifting and hoarding. A shoppers trolley full of edibles (and water) and into the trees. I cannot walk and push a trolley. No electric, or phone, or what would be achieved, sleeping rough. I need to befriend someone who could offer me an alternative to this miserable existence. Maybe someone equally fed up with 2024 West London.
Anyone out there wanna join me. We walk to North Wales and inhabit a woodland afresh.
I would like a hillside where there is an abondoned mansion, with lifes essentials still intact.
Good evening Azhar-Ali , just read your posts and replies. Itās good you can still dream and have a sense of humour and adventure , you never know. Please View on Utube
The Hermit of Trieg in Scotland who is an inspiration. You may not get to live in a wood in Wales but youāre young enough for something to crop up. I wish you well. Could you join your local Sroke support group.Im sure there must be an organisation , and maybe volunteers who could take you there now and again. Mine is one two hour session a week for a chat and coffee. But I must warn you once a month they play the dreaded Bingo. I grin and bear it.
Just had a thought canāt you use you language skills to your advantage . It could lead to you getting out and about . Good luck. Paul
Well there is certainly nothing wrong with your imagination
Why donāt you read through @Bobbi 's post on writing and maybe make a start on something of your own.
There are one or two writers already on the forum and one recently had her book published.
I do not know what I can and cannot do in life. I struggle to come to terms with it all.
I will keep sharing on here and hoping things change for me sooner than later.
I am suffering with toothache tonight, nothing I can do about it right now.
Tempted to call 111 or 999 and see what they advise
Fearful of the pain being ongoing and unbearable.
Old age is not much fun.
