Central post stroke pain, again sorry

Nigeloglos and @Trace57 I suffer with Allodynia, it was especially bad immediately after my stroke but has certainly become less of an issue over time - getting dressed is still a bit uncomfortable and i don’t feel the same sensations on my affected side anymore, for e.g stroking the cat - i know its soft but cant feel the fur if that makes sense.
My pain sounds different to yours. Mine’s nerve pain and affects all of the area affected by my stroke, so the whole of my left side from the top of my head, face, neck, shoulder, arm, torso, hip, leg, foot. Its freezing cold, burning, aching, throbbing, stabbing, spikey, shooting, or a combination and varies from one part of my left to another. I always have earache, headache and painful sharp freezing cold hand, the rest varies.
I’m on pregabalin 600mg at the moment and use codiene with that as i need it, it makes the pain more manageable. I’ve tried amitriptyline, duloxetine, gabaprntin, tramadol - that was good, but GP took me off when i asked for more :(.
*DON’T just stop taking your meds - speak to your GP and do it gradually, see how it goes, you can always ask GP to prescribe something else if the meds youre on dont suit you.
Consultants and specialist don’t tend to keep seeing you, that’s the role of a GP - who can then refer you back to the others if needed. If you think you need it, then ask. To be fair to GPs we tend to expect them to know everything about everything, but sometimes they need us to be clearer about what we need or think we need. :slight_smile:

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