Speech issues any ideas?

I hope someone can understand this. Sorry it’s long.
I had a tia/stroke 2018 when I suddenly developed slurry speech - went to A&e and was told it was a tia and that I had previously had a stroke that no one could date. The speech slowly got better and I was ok fora while. Then over the next few years I had roughly 2 hospital admissions per year with my speech slurry an mri’s then told it’s a migraine - go home. I knew it wasn’t. I wasn’t believed. Eventually in 2024 my speech went to babble - non sensicle- went to A&e and was admitted to a STROKE ward - not the usual medical ward. Saw speech and language and a stroke doctor. Was diagnosed with expressive dysphasia and theydidnt think it was a migraine and believed me! My babble lasted several weeks then started to improve to slurry speech. Referred to a new neurologist. First thing he ordered was a new mri ( so far I have had 18 brain scans!) and a heart bubble. My neuro was certain i had a hole in the heart and the bubble proved it. And the sad news is I’ve been having multiple status stroke/tias. He also said I had dysarthria. After 10-12 mths I have been left with a mix of speech I usually have normal speech at home but this very easily and very quickly turns to slurry speech when I’m tired, emotional, my pain gets worse or I go-out then it’s slurry and difficult and the word finding and thinking gets worse. Is this normal for expressive dysphasia or dysarthria- I’ve not had any interaction with other sufferers or speech and language yet. Any answers will be much appreciated xx

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Hello @Debchips - I don’t believe I’ve come across your posts before, or at least I don’t remember them. Nice to meet you :slight_smile:

I don’t have an experience based answer for you as I am not a stroke survivor myself, but I do believe there are some on here who certainly will at least have better understanding or knowledge of what are seeking answers for.

I can see you’ve had a difficult time getting the right sort of help from the medical profession and in fact, I would suggest this might be one of those situations where you could say “Doctors don’t believe me or understand me” and by a coincidence I posted something recently on this subject.

Doctor not listening or dismissing your concerns?

My view is you are entitled to answers and maybe your GP or your stroke consultant if you are still under their care should be asked directly.

I am not sure entirely why they are not listening/understanding/dismissing but perhaps if you sit down, possibly with a member of family or friend and think about how you could phrase the question(s) and then have back-up/follow-up questions you can ask if they try to avoid answering directly.

I will now defer to others who may have better informed suggestions, but I feel you do need answers and you should pursue until you get them.

Wishing you all the best.

Namaste|
:pray:

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@Debchips The NHS often misdiagnose stroke with migraine or TIA regularly .Going forward, I am stroke survivor, but I have not suffered any of your symptoms. There are people on here who have and would be able to talk to you about it. I have great empathy for you. And stroke survivors have the struggle uphill forever. I wish you well :four_leaf_clover:

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Is this normal for Aphasia in general, the answer is yes! And you’d probably get better help from your local Aphasia groups, if there are any near you. The dysphasia and dysarthria would probably both come under the general umbrella of Aphasia. Mine was more Broca’s aphasia with dysarthria.

So call the Stroke Support Helpline:0303 3033 100 as they will be able to put you in touch with whatever is available in your area. Or just key in these 3 words “Aphasia my area” to do a search on the internet for what’s available locally.

Support in your area | Stroke Association

I attend a monthly Aphasia group run the stroke association, this one is more of a social group to get us talking and interacting. There is also Speakeasy, you may find local to you. The lock down’s prevented me from attending when I needed it most but the aphasia group I go to now was a godsend, it really helped to boost my confidence to talk regardless of how I sounded. And that in turn improved my speech because I wasn’t afraid to speak :grinning_face_with_smiling_eyes: But then again, all my emotions were turned to neutral after my stroke so I didn’t much care either way anyway :laughing: But peoples self-consciousness is what holds many folk back, they’re afraid to speak because of how they sound.

Lorraine

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hi, i want to join this conversation, but cant figure out where i need to put my comment, any idea? Thankyou

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So sorry, i have had two strokes, and have aphasia, its very difficult, but we i think try our best.

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Hi @Jstabrit

Welcome to the community, I’m sorry to hear about your two strokes and the aphasia you have.

You have posted this comment on the right section so don’t worry, it can be hard when you first join to get your head around it all. :slight_smile:

I hope you’ll find this community helpful for your recovery. If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Yes, as @Anna_Moderator has already said you’ve just joined in the conversation. So just ask away or contribute as you’ve just done.

And welcome to the forum😁

We all know just how hard it is to navigate technology with a newly stroked brain. So just celebrate the fact you’ve managed it and don’t worry about errors. Jou will get better in time :slightly_smiling_face: And we can help you out whenever you get stuck..

Lorraine

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Thankyou so very much.

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Thankyou so very much

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Actually hade the Aphasia for seven years, it started on The first stroke, it wasnt so bad, its kind of worse on this , guess cos im older lol

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Hello and welcome to the community @Jstabrit - you figured it out and have joined the conversation.

Wishing you all the best.

Namaste|
:pray:

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Mine was a mini stroke 5 years ago, but its taken that long to get my speech back to something like reasonably normal. And it’s still making improvements. If I keep my sentences short and wording simple I can fool most people. It’s the little thing’s I’m still working on like, when and where to take a breath, heck even remembering to breath whilst talking; keeping control of the stammer; reducing the irritating stall in my speech to find words, etc. Just to speak is far more complex than I ever realised before this stroke.

Lorraine

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Somtimes my brain actually wakes up! :heart:

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@Jstabrit I am sure it is awake all the time - beavering away getting you well.

Lorraine @EmeraldEyes does some excellent write ups on what happens after a stroke in which she explains in great detail and in easy to read language. Her articles are well worth reading as they contain many pearls of wisdom both from personal experience and the knowledge and expertise she has developed as a stroke survivor herself.

Here are a couple of examples

There are plenty more and you can find them using the search function (magnifying glass) or just ask questions on here and she will almost certainly reply :slight_smile:

:pray:

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I hve learned so much since joing ..great group

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Hi ..i only just joined this and its very helpful, so it will help you, great group and great people to help,

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Hello @Debchips

I’ve been round the block for sometime with my speech. Post-stroke (2022) I still have issues, getting better and then declining. The only top answer is posted earlier (Aphasia etc) but not how to fix it.

I was fine with it, after 3 years, using other means to communicate but my wife needs me to “practice” my voice, my limbs, walking normally etc. I don’t blame her but she has not gone through it - well, she has gone through the carer role.

So, no answer from me.

M

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Hii there, i know how to reply, but how do i start a new comment ? Cant figure that out..:smiling_face_with_sunglasses:

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@MattJC Take one challenge at a time or you will become overwhelmed and achieve nothing. Take speech, work on that until you are happy, then take another challenge and so forth. If you try all at one you will become dishearten and give up. I wish you well :revolving_hearts:

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