Hi @GAV2025 and welcome to the forum and welcome to your new normal too ![]()
The first 6 months of stroke recovery are all about healing and repair work going on in your brain. Neurons functions are disrupted, particular those surrounding the dead ones.
Because of this, they are having to make new connections or piggy-backing off existing one, if it is possible. And non of this work could possibly be completed in the “back to work in less than 2 weeks after being discharged” that you have given it. It’s called brain fatigue for a reason, it’s having to work double and triple time in order cover ALL current functionality whilst it does this. So when the brain is at its limit, it has to do some temporary shut downs, to find rest where it can. That’s what decompensation is all about. And this is where you find out you are not in control, your brain is in charge and you can Ignore it at your peril.
This is marathon not a race, slow and steady is what wins it. The brain needs time off, it needs frequent rest during the first 6 months.
For me, it was my hearing that kept fading to nothing by the end of each day, getting earlier and earlier. And all I could do was go to bed and eventually sleep my way through it. That started about 4mths after my stroke so my gp referred me to ENT. And about a year after that, when all investigations were done, I got a set of hearing aids and never had an issue after that. I do still know when the hearing goes, because those are times I have to turn the hearing aids up. It was never every day anyway but it was becoming more frequent. I think it just depended on how fatigued I was, done too much.
And that’s the trouble with brain fatigue, it’s nothing like physical fatigue, you don’t have that feeling of being tired or like when muscles tire. It basically just starts reducing functionality. Like my stroke leg, I walk just fine on the whole but when the brain’s fatigued it starts to drag a little and the fingers of my stroke hand start to tense up.
The key is managing how much you can do in a day/week, how much is too much?
That needs to worked out, through trial and error. Take note of when your sight is at its best, time of day; when it’s at its worst and what you did in the hours/days preceding that.
I’m 63, so retired, and 4½ years post stroke now, which was also diagnosed as a TIA, I beg to differ. And in that time I’ve recovered enough that I’ve been back driving for about 3yrs now. I lost my speech so still have a touch of aphasia but masked enough that strangers can’t really tell. I do a lot of working out at the gym, travel about and socialise, and currently up to my neck in redecorating. And you will get there too, just give yourself time to heal first. Don’t put yourself under needless pressure, don’t give yourself needless set-backs, it doesn’t do you any favours in the long run.
And give your brain some mini breaks throughout the day, just 5 minutes here and there to just sit still with your eyes shut, in peace and quiet if you can. Every little helps, gives the brain a chance to take a breath. Just 5 minutes of not having to take in and process so much. I do that frequently, even as I’m sitting here typing out this reply
And on the occasions when you really feel like you can’t or don’t want to do something, it feels like it would be a great effort but you don’t know why? That’s more than likely your brain’s way of getting you to shut down because it needs a rest. You’d be a wise man to listen to it ![]()
I am only an expert in my own recovery but I’m no professional expert in stroke recovery.
Lorraine
