Something to read

I’ve never been a big reader but as I’m still off work the consistent re runs that great British tv now consists of is very tedious.

Any good book regarding stroke I could read? Thinking along the lines of recovery if possible

5 Likes

Hi Gareth,

if you tell me what are your top difficulties, I’ll suggest the best book for you. I’ve read half a dozen on stroke recovery.

Good luck, ciao, Roland

5 Likes

@garethc970

I would like to suggest that you try, to not get deeper into the stroke thing, rather to aim to direct your attention elsewhere. Give yourself something else to think about, to use your energy on or to relax over.

If you want to read , find a subject that takes you away from all this. Believe me, escape from this is no bad thing.

A stroke is a huge, traumatic, event, not something one can easily ignore or forget, but I believe we need to be aware that obsessing about it, to the exclusion of all else is probably not going to produce positive effects or improvements.

While it is something that has produced an enormous effect on your life, one needs to try to see there is more to existence, there are more possibilities, perhaps even a different direction.

There are so many things I can no longer do, no longer be, I expect you are finding the same. I think we need to cast about and look for something we can do. There are going to be limitations but maybe treat that as a challenge to be met, accepted and overcome.

You will find a way, you are worth making the effort for.

I’m not offering you an easy way out, but trying to get you to look away from the stroke towards something brighter and better. To be honest, anything has to be brighter and better.

You aren’t the only one confronting this dilemma, so you are not alone. I hope you can find answers that will improve and enhance your life.

This is trivial and probably of no use to you, but I enjoy getting in the kitchen and playing chef for an hour or two. It provides my wife and I with a meal and I feel that I have ‘done something’. This is after sitting for two years on me bum after stroke.

You got this far? Well, you did ask for something to read.

I found that writing on my laptop was something I could do. So here I am in the middle of the night tapping away on the keyboard, but no works of Shakespeare yet. S’pose I should get back to bed really. I’ll be wrecked again tomorrow.

stay in touch, we share our world.

keep on keepin’ on
:writing_hand: :smile: :+1:

10 Likes

I agree with Bobbie . If you want to read focus on a book that takes you away from the subject of stroke . Escape to another world . I was a big reader and writer before my stroke 2 half years ago . I could only read a paragraph at a time to start but now can read a chapter at a time . I would suggest finding something to read or do that’s nothing to do with stroke . I think we can read about stroke because we’re all looking for a fix but it doesn’t change our own particular journey .Doing other things lifts my spirits more . Keep on going best wishes Christine

2 Likes

@pando
I know you are trying to help. I hope you realise I’m not trying to put you down. All help is useful. I, also, have searched the internet for stroke related material, watched videos, thumbed through books and looked at the careers of figures like Andrew Marr. I think it is one avenue many people try. Sharing our journey on this forum is a useful activity for both reader and writer. We each make our own choices and pick our own path and it is good to be informed. The stroke association do us a great favour by providing us with a place to share our thoughts. but here I go writing at length again. I’ll give it a rest now.
:+1:

@christine2
Thank you.
:smile:

I hope we will each have a good day today and make some progress as we move, hopefully, towards something better.
:heart:

2 Likes

I have dysarthria as my only real issue and I have pains that I never had before but really I should be grateful the stroke hasn’t taken more from me (apart from the confidence I once had and my personality)

2 Likes

Thanks @Bobbi it just feels like I’m alone and I’m looking for a strategy to get myself back to “normal” though I know no going back now

3 Likes

It’s early days still

Hope yr otherwise ok - happy to get online w/you if wanted - also you are welcome on Thursdays :slight_smile:

On reading there’s more info on Google scholar and more relevance & understanding here than in the typical book. The channel on YT “I care for your brain” is a good survey in 30ish min chunks of topics

Caio

1 Like

@garethc970

I think we all feel like that, no matter what our symptoms.

As far as I see it, confidence, self esteem and some sort of idea of where we are going, all take a big hit. Fear, anxiety and indecision take their place. So, now what?

Finding ways to deal with that is a challenge worth tackling. Largely I think you need to find the answers to all that inside yourself, much better than leaning on the words of someone else.

Keeping myself as busy as I can without over doing it is my first basic strategy, but as I said and it is what I believe, the answers must come from within, perhaps only when one is ready.

It is a big deal for us all. No Mr.Man plaster is going to put this right.

Having said that, talking things over here on this forum can help put things into perspective.

A listening ear, a little sympathy, can make a big difference. We have an opportunity to be pro-active.

2 Likes

Gareth, hi

Try “Stroke Rebel” by Linda Radestad… she went through a lot of difficulty with speaking. You won’t find direct answers, but it might just inspire you enough to make a difference,

good luck, Roland
ps. Bobbi makes a good point, but I tackle things head on… when I get defeated I stop trying and give up for 3 days, but then I give it another go, maybe from a different angle. I refuse to sit back and twiddle thumbs

5 Likes

@garethc970

Have a read of this thread, it will take your mind off important stuff for a while.

https://onlinecommunity.stroke.org.uk/t/our-new-funnies-thread/

3 Likes

The only strategy I ever used for my speech was reading out loud. Reading itself was also a major issue for me, so reading out loud was good for both issues. And non-fiction was a lot harder (and still is) than fiction to read, so I just stuck with reading sections from my favourite authors of fiction. And apparently fiction is better for your mental health. I’ve always loved reading and that was the one issue I fought hardest to get back above all else. I need that escapism, and never more so than after my stroke. I even cleared a lot of books off my kindle and would have shut down my amazon account if I could have figured out how, thinking I would never be able to read again let alone speak. Fortunately I’d kept all my favourite books :grin:

Talking to myself out loud whenever I was home alone.
Reading out loud the shopping list, letters, etc was also good practice for speech. Also reading out jokes, @HHilary has just given you a whole thread of them to keep yourself and your family entertained with :smile:

Back in your post in February, you said you had a young kid. Use them too, you will be helping each other by reading out loud to each other. It’s a great to their confidence to have daddy ask them to help him with his speech by taking turns reading out loud with him and a great benefit to your child’s education :wink:

I’m 3yrs post stroke and the speech and slurring itself is not really an issue for me now…just getting the words from brain to mouth is still a stumbling block. The speech was more or resolved by the end of the first year, mouth straightened out, swallowing issues, could drink normally. All those sort issues just resolved themselves over the months as brain healed.

3 Likes

I found Norman Doidge’s The Brain that Changes Itself to be quite interesting and inspiring, I find books about neuroscience and the brain in general to be interesting if they are written calmly and not in the popular science vein, which rubs me up the wrong way. Although, I appreciate people’s personal accounts of stroke recovery, I find that they tend to alienate me as a reader and stroke rewirer, I have to admit that I didn’t really enjoy Stroke of Insight. I am looking forward to reading The Second Brain which is actually about the gut. I thought, I should learn a little more about the whole neurological nervous system as a complete network.

5 Likes

I read A Stroke of Insight, Jill Bolte taylor which i found interesting but I don’t think it helped answer any of my stroke questions as her stroke was so different from mine. It did however provide hope.

I agree with others about finding something else to read that takes your attention away from stroke. A distraction from what ails us is always a good thing.

I was an avid reader pre stroke…i barely read a book now and enjoy magazines more. I do have a book on the go though it’s just taking forever to get through. I think that is down to fatigue after being at work.

4 Likes

I am reading that now, Rups,
Just finished “The Biology of Belief” by Bruce Lipton
I have to do a lot of reading to stumble across something that helps directly.
In the meantime I’m learning a lot of Biology, one of my weak subjects at school.

ciao, Roland

4 Likes

I certainly agree with you there, they alienate me too. As a stroke recoverer with aphasia, the last thing I need is a book with so much scientific/medical language language and terminology. Having to look up every other word meaning in order to make any sense of it. It does make the top of my head burn and that tells me its just far too taxing on the brain :confounded:

4 Likes

Sorry for not reading the whole thread (& potentially repeating what others say) but I agree with @Bobbi and don’t personally spend ages reading about stroke.

I have always enjoyed reading but finding books difficult with my stroke hand so bought a new kindle a couple of years ago (after my stroke) and absolutely love it! There is a great website called BookBub that you can add your favourite genres and it sends you daily emails advising of special short term price drops (all at 99p) which I have taken advantage of many times.

It doesn’t hurt to read a bit on stroke, but I mostly do that on here. I like to read to relax before bed and find the kindle (which has a backlight) fantastic!

3 Likes

Hello gareth970,

Wordsearches are good. It does help focus your eyes and you’ll notice you’re improvement too. Oh, get books you can hold or fold over and peg whilst reading / writing. Soft back books aren’t easy with only one good hand.

3 Likes

I was just curious to know if you have insomnia.

My mother barely slept after she had her stroke. We couldn’t get her to sleep for nothing. In the first year, she slept slightly better, but in the second - barely an hour or two a night. She paced all night long. It was terrible. I felt so helpless.

I hope you are doing well, Bobbi. I haven’t spoken to you in a while.

Take good care.

4 Likes

Hi Matthew, I’m doing okay and I hope things are good for you too.
Thanks for showing an interest.
At this moment in time I am up, reasonably alert and awake at my laptop, having got out of bed about 30 minutes ago.
Insomnia isn’t a subject I address. I am retired so when I sleep and when I am awake is largely immaterial. I would say that over a twenty four hour period I get at least eight hours sleep though some of that is during the day time occasionally.
To a degree I am ruled by my bladder and often wake to have a decent sized wee about every couple of hours. Usually I then get straight back to sleep.
Sometimes though, when I have an idea in my head or something I want to do I will rise for an hour or two. Next day I will cat nap and recover the lost sleep.
So it isn’t that I can’t sleep, just that when I choose to sleep is a variable.
I am pretty laid back and simply do what I need when the necessity arises.
It is a slightly complicated story.
I do a little software checking, a simple process where I download something, usually an operating system and then see if it will install as it should. I then report the results online. Fresh versions are sometimes available in the middle of the night. So here I am having just run a check. While I was here online I had a quick look at the forum and ended up writing a reply to your post. As I mentioned I’m relaxed about the whole thing and will catch up sometime tomorrow, maybe with a post lunchtime snooze.
I am making the choices that I want and am not driven into this behaviour. I’m also one of those few who do not experience the fatigue they all talk about, perhaps because I do rest when I feel the need rather than trying to drive on regardless.
Sometimes I get a bee in my bonnet and will write a long post online in the forum. Easy to do as all is quiet with no disturbances.

Well there is an account of my strange nocturnal behaviour. I’ve never really fit in with what is considered normal, but I’ve not let it worry me unless someone tries to push me into what they think is correct. I am comfortable in my own skin and have no big need to attempt a change into something different.
Having said all that your comments and concern are very welcome. We don’t have to go about things in the same way as our neighbour and communication is a great way to help understand a bit more about how the world and its inhabitants work.

Well I think I’ve done plenty for now so I’ll get back to bed now, having been up for about 90 minutes

It is good to have spoken. It is also important that you take care to look after you. So be kind to yourself and others too if it suits you.

Goodnight @Matthew1798
:heart:

3 Likes