Post stroke pain

[Tequilla]

My partner had a stroke in July 25 he is now home but has a lot of pain in his arm and burning sensations. Any advice please

[Jbob]

Hi Tequilla, welcome to the forum I’m not an expert on this but last year when I was still recovering I had a lot of pain and both burning and numbness in my arm. For me this was good as had been feeling dead for weeks, I am lucky to have gone on to fully regain the use of my arm to the extent nobody could tell there was any problems before.

My physio advised this was the nerves regaining function and arm mobility through this. Good luck and wishing you both well for a fuller recovery.

[Lizzie22]

Hey @Jbob

Thanks for posting this, you have given me hope. I am currently experiencing the burning sensation all down my left side. I was left with very little feeling down that side after my stroke in May 25 but I seem to have more feeling coming back along with the burning sensation. I am choosing to see this as a pisitive sign that my brain and nerves are reconnecting.

[Lizzie22]

Hi Tequila,

Sorry to hear about the pain your husband is experiencing.

I am experiencing the same at the moment. I am doing the following to help with it.

Using a Tens machine on the affected limbs.

Taking magnesium supplements daily.

Using a grounding mat whenever I am sat down.

There are several threads about all of these on the forum. I would have added excerpts and links but find this difficult to do on my mobile.

Hope this helps.

[Georgie2021]

Tequila is a fine name to use! Think we.re best to avoid the real thing now.

[Susan_Jane]

Hi @Tequilla sorry to hear of your partner’s stroke but welcome to our community. We are a merry band of stroke survivors and their carers and families and between us we have a wealth of experience and I hope you will find this a useful place to be. I can see that you have already received some information and advice.

Look forward to hearing from you as your partners road to recovery continues.

Regards Sue

[Mrs5K]

Hi @Tequilla & welcome to the community. Sorry to year your partnervis suffering with post stroke pain.

I have added a few links below to previous discussions around this topic, which may help.

Central post stroke pain

Hi all. Just wondering when and how central post stroke pain disappears I suffered my ischemic stroke back in June last year and then in about November I developed the stroke pain. I started off taking amytryptoline which didn’t work so I was put on gabapentin (2, 300mg tablets a day)A bout 4 weeks later still no change, so a couple of weeks ago my dosage was upped to 4 a day Am I expecting too much to soon? Or should I go back to my doctor? He was confident gabapentin would work. I know it…

Central post stroke pain, again sorry

Hi all Another post from me about CPSP again sorry. Just wondering, of those who’ve suffered from it and managed to get it under control, how it felt and happened? So since Tuesday I’ve been taking 2700mg of gabapentin a day, upped from 1800mg. The last 3 mornings I’ve noticed that when I wake up there’s no pain, nothing at all for first 10 mins or so,then gradually through the day the pain/ severe pins and needles starts to kick in Could those first 10 mins be sign that the upped dosage is…

Post stroke pain

Hi all I am in my 6th month recovery after my stroke. I spent 8 weeks in an NHS hospital then a further 4 weeks in a rehabilitation centre. My stroke was L cerebellar infarct Nov 22 2021, then recurred a few days later,  L vertebral artery (L VA) occlusion, likely arterial dissection from neck injury. The pins and needles, burning, freezing sensation down my rigt side, arm, hand,leg and foot has recently got really bad, so bad i have to take medication at night to sleep.  I have tried Pregab…

Post stroke pain

Going back to my earliest memories of being in hospital and coming home I suffered no pain or discomfort. It was within the first 6 months that the swollen left foot appeared and pain from left foot to eye socket was experienced. I improved in that regard after year one but by 2023 I had tried just about every pain pill the nhs have to block out the pain to no avail. Currently backing off gabapentine as its side effects are worse than the pain it doesn’t cure. I have attended pain clinic whi…

Central post stroke pain

My partner is currently in a rehab centre. 3 months ago had a stroke but this pain has now kicked in and she’s in so much pain. She’s obv taking a lot of medication which doesn’t seem to help. She’s not taken any anti depressants but could these help? Is there anything I can do to help? I feel so helpless and she’s obviously mentally not in a good place. Will this pain ever cease? She is in agony 24/7 it’s awful to watch. Hoping for any help that maybe out there. Thanks

Best wishes

Ann

[Tequilla]

That was one of my horses name

[ManjiB]

Hello @Tequilla and welcome to the community.

I am sorry your partner has had a stroke and is now experiencing a lot of pain in his arm and has burning sensations.

You are seeking advice and I am sure myself and other members of this forum would dearly love to help you, but I feel you haven’t given us much to work with

A stroke comes in many shapes and sizes as does the stroke survivor and in that respect each case is unique. That said, there is things that are in common but in order to identify these there would need to be more information about your partner’s situation. For example:

• what type of stroke is it?
• have you spoken to any healthcare professional about this? If so, what have they advised?
• how badly did it affect your partner?
• how old is your partner?
• what did the stroke consultant advise?
• what care is being given?
• what medication is your partner on?
• is the arm affected by the stroke?
• how long has your partner been experiencing this pain?
• is the pain continuous or are there triggers that cause it to come on?

I guess there might be more questions, but in order to help you, the more information you can provide, the better the chance of being able to help.

On tap of the responses you have had from others who have experienced this first hand, I hope this might help you.

Personally, my first port of call has to be the stroke consultant, GP or physiotherapist who will have a better understanding of your partner’s current condition and historical events that led to it.

Wising you all the best.

Namaste|

[Tequilla]

Hi sorry his stroke affected left side his mobility and arm and sight he is on lots of medication also on baclofen. He is 56 he came out of hospital on the 10th October, stroke was 20th July I can’t remember the exact type of stroke but think it was something to do with the artery in the right side of neck. He had Botox given in the ankle and also was injected for frozen shoulder with steroids.

[ManjiB]

Hi @Tequilla - It’s OK. I can understand this is a difficult time for and your partner and you must be under a lot of stress but it’s great that you have had the clarity of mind to reach out to this forum for help.

Given what you are saying, I am still of the opinion that at this relatively early stage in the recovery from the stroke, and having only just been discharged from the hospital you will still have full access to the healthcare professionals who will likely be best placed to answer your questions.

Upon discharge from hospital, hopefully you were given some discharge notes or summary that explains what happened i.e.

• type of stroke
• what treatment was given
• medications
• assessments for ongoing care needs
• ongoing care plan
• who is responsible contact whilst in care e.g. GP or other.

I am not a medical professional and am here in capacity as carer for my Mum who might be in a similar condition to your partner as at the time of her stroke. My feedback is based on my / our experience and how we came through and how we manage her care today.

With all the medication and things that have happened, I think it would be worth your while to speak with the stroke consultant and / or GP to understand what has happened, what might happen, how and what the medications do especially with respect to any side effects they may result in.

I would also check all the medications to understand what they are for and what side effects they may present - all medications come with how to information leaflets or you can look this up on NHS websites or Drugs.com. Personally, I am very keen on knowing all I can about the medications because in my opinion, they are foreign bodies that are “invading” our body and our body’s natural instinct is to defend itself from attack so there may be initial reactions etc.

I feel I have shared quite a bit and do not wish to overload you with information. No doubt, others will have more to say after reading your additional information and hopefully this will help you better understand what is going on and how you can help your partner.

Please do contact your healthcare professionals and also check the hospital discharge notes.

Wishing you and your partner all the very best.

Namaste|

[Anna_Moderator]

Hi @Tequilla

Welcome to the community, I’m sorry to hear about your husbands stroke and the pain ad burning sensations in his arm. I can see you’ve had lots of helpful responses which I hope will be of help to your partner.

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna