Going back to my earliest memories of being in hospital and coming home I suffered no pain or discomfort. It was within the first 6 months that the swollen left foot appeared and pain from left foot to eye socket was experienced.
I improved in that regard after year one but by 2023
I had tried just about every pain pill the nhs have to block out the pain to no avail.
Currently backing off gabapentine as its side effects are worse than the pain it doesn’t cure.
I have attended pain clinic which looked useful but still came to north as I sit here in pain and no support let alone a review.
It is my opinion that I’m likely to be like this until my end with pain a continuous aspect of my life and ultimately an inhibiting sensation to walking safely and my independence.
My onl hope is it gets less painful in the coming years but not hopeful
Thanks but pretty consistent of late so in thinking it’s my lot in life doctors are useless just pill poppers with bad side effects
I’ve been like this lately since early in 2024 so fear any shift in sensory repair has decided to fail in the pain zone. May it reset in normal or pain free zone although the numbness has not entirely disappeared and that is key to me feeling my leg and arm and its associated muscles
I suffer two attacks each day usually early evening and early morning resulting in a numb painful face cold pain and left side cold pain around 2am in the morning.
I tend to wake up worse than I went to bed which is annoying
Hello Mark - this is just a thought and I know it is not everyone’s cup of tea, but since you are finding the drugs don’t work, have you/would you consider complimentary medicine? For example, you might try herbal medicines, TCM (Traditional Chinese Medicines), Yoga or Pilates.
Hi amanjiB, considered but my left side paralysis inhibiting yoga or Pilates, everything else is on the table in the meantime I’m just sucking it up and enjoying the pain for the foreseeable future
Sorry to hear of your pain Den11821,
We all have it either physically or mentally
I like you put up with it in the vain hope it will diminish over time. The NHS pain clinic has thus far been lack lustre and not engaging despite a positive first meeting, no substance to the bright promise of their early narratives
it’s a question of mitochondrial rehabilitation
These mitochondria are our ponies ; running all day for us
but after stroke they are dysfunctional
we are deficient in minerals
as is the earth
our ponies are 10x more delicate than us
and we need to give them their nutrients
magnesium, for example, enables mitochondrial biogenesis
that means new ponies
our neurons each contain 1000s of ponies
even a muscle contains 500 ponies
and our nerves too
and if we give them pony minerals they will pull themselves together
start with magnesium and you will repair
there are other minerals too, like copper
to get rid of Ferritin and iron which is turning you into rust
minerals are natural and satisfy the ponies
careful what you swallow, good luck, Mark
Hi Mark ; iron is all about removing excess / people even donate blood to get rid of it ; in men over 60 it builds up and creates rust but Women are free of it until they turn 50 (after menopause iron builds up - think about blood / heme)
Copper is the key to removing iron (some beef or chicken liver or oysters); as well as green or black tea which are chelators - even a drop of red wine removes iron !! Read “Cure” by Moseley Robbins, if you want to know more. Also “Dumping Iron” by chap called Sircus. Don’t take a copper supplement ; get it from sea food.
“Creme Puff” was the longest living cat at 38 years of age ; a low iron diet was the answer
Matcha green tea is your way in to all this ; I saw it work on my father - amazing change - also, balance your electrolytes with coconut water - yes it’s expensive but good - good luck, R