Hi new here, I am a 50 year old with various health problems. Recently I have been certified and registered as sight impaired, however had the biggest shock this week when the hospital informed my wife & I that my vision problems are due have having had an ischemic stroke a few years ago and that this was noticed on a MRI scan back from 2019 that showed a bit of my brain had died off.
It’s been one hell of a shock as nobody at the time said anything and I certainly had no inclination of ever having a stroke. However because the eye consultant had requested electrodiagnostic tests as weel, these results have been read by a Neurologist was had also looked into my hospital records and found this MRI from 2019 and feels the level of brain death for my then age is abnormal and so pit it down as a stroke!
Hi @KivetonGuy welcome to the forum. That must have been a little disconcerting for you, hearing that news. It might explain any other little niggles you’ve noticed in yourself since that you were maybe putting down to age. Could your sight condition have been an optical stroke ‘anterior ischemic optic neuropathy’?
Hi @KivetonGuy ,
Welcome indeed and that sounds bloomin scary finding out years later!!
If you don’t mind me asking what sight condition have you been diagnosed with?
@KivetonGuy welcome to the forum. That’s the sort of surprise you can do without. Are they going to do any follow ups on your stroke? I was thinking more because most of us get put on meds but maybe they’re not needed so far down the line.
Hope they can help you with your sight issues.
Best wishes
Ann
Hi thanks , something called Hemianopia (no idea exactly what it means)
Thanks. I was on and still am on meds for blood pressure, and Warfarin besides the diabetes meds!
I have been this week been referred to a couple of people from the Rotherham branch of the Stroke Association! An organisation called Rotherham Sight & Sound are due to do a home environment assessment soon and they have already said they will issue a white cane and teach me how to use it properly! The eye clinic liaison officer has also passed my details to something I think she said was a low vision service at the hospital.
Eye clinic liaison officer said it’s called Hemianopia , whatever that means exactly!
HI @KivetonGuy,
YOU ARE NOT ALONE.
I also have hemianopia and I set up a thread on this forum about it!!
I have full right hemianopia so I cannot see 50% of my visual field on the right.
Try and ask your GP for a neuro-optalmologist referral and make sure you get verything you can like a CVI etc. Happy to discuss this further with you anytime.
This might help a bit!
You can do this!!
Kieran
Ah, ok, there are a number of members on here with just that actually and I sure they’ll be along later who can explain it better than I can
I try and take advantage - for example partially sighted row 4 seats behind the goal for West ham v Man City today. With a free personal assistant!
Just a shame we lost 
“Acute left parieto-occipital infaction” or “CT head showed left partial circulation stroke with expressive difficulties.” I’ve given up trying to convert those medical terms into layman’s language. I was admitted to hospital the day after my stroke on 21 February 2023 and discharged after two days. Readmitted six hours later with pain free “stress-induced migraine aura and fast AF”. The aura was incredible - paisley and other fabric-like visuals and murmurations of little copper balls. I’m due an EEG in two weeks as I had an epileptic fit 60 years ago and have severe sleep disturbance now from Hypnic Jerks although they predate my stroke by about ten years. Six months later I am in a lot worse condition; muddled, tired, wobbly, forgetful and weak. I find it very hard to manage without being allowed to drive yet. I have been lurking a bit around the threads to learn the culture of this forum. It’s good to read of others’ experiences.
Sounds really challenging! Good luck with EEG and yes Medical Terms are a language in their own right!
A few new or new to me people here. Please excuse my slow brain today…I try to keep up but some days it is just too much. The care is still very much there, though. I also have vision issues, although it is not hemanopia (?) but rather Osillopsia with downbeat Nystygmus. Either way, inability to drive or see things you need to, or trouble reading and balance issues due to visionor vestibular issues, we still have many things in common to address. Treatment is not the same, however many of our barriers are. Wishing you all the best, and hope I will ‘see’ more posts from you.
Had some additional details from the hospital in today’s post.
Has anyone encountered the term Cerebrovascular Disease?
Sorry for asking but I have no idea what it means.
So basically it is referring to your stroke. Here’s some further reading on it Cerebrovascular disease: what is it, symptoms and treatment | Top Doctors
How are you doing? Any more info?
What appointments have you got coming up?!
Have you got any more appointments? Keep us posted! Any questions someone probs @EmeraldEyes or @SimonInEdinburgh or @Bobbi will know something!!
Now if you want to lose yourself in a world of eloquent prose that both is wonderfully worded, true and makes you think then just ask @Rups 
I know very little in the grand scheme of things but talk to me about hemianopia or polar bears and I’m your man
Stay cool 
This probably won’t help and sorry for the language!!
I think I tagged?!? or something you into that post but just thought I would reiterate that you are not alone. I actually love people with hemianopia!! We are special!! effed up but special none the less… I’m not quite au fait with the terminology yet!
K
My head is feeling pretty much like a shed load of worries, struggling to sleep…bombarded my GP with loads of questions in a letter and just waiting her response
Oh Thanks for asking!
I hope you are ok ?
It’s going to be perfectly ‘normal’ for a while i’m afraid to have this whirlwind in your head.
I can promise that at least for me it does get better with time…
Good that you’ve been able to get your thoughts down and ask your GP - may i ask is that online or a physical letter? Is your wife helping?
Also is your wife ok? She must be so worried too and there is support available for carers too - lots on this forum so she may or may not want to reach out.
Keep letting us know how you’re doing and ask questions!
Thank you for asking about me - I’m as good as it gets at the moment!
Stay cool