Hello,
I am new here and just not familiar with forum yet.
I suffered pons hemorrhage stroke with other multiple complications in end of 2019. Spent two and half months in hospital and further 12 weeks of rehab. Still to date no major progress has been made. My limbs and weakness are as same as the day I returned from rehab. Just curious if anyone has suffered this long and hasn’t improved??
I did all my best and still doing all I can do. Went through variety of rehab and treatment. Yet no progress.
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I came home after 2 months on a stroke ward in much the same state as you. There wasn’t much encouraging to be found.
My main occupation, after I found this forum , was recording my experiences including an account of happenings during my hospital stay. Folk responded to my words and I found friends and support here.
Recovery has been slow but over time there has been real improvement, though I am still disabled, I can now engage more fully with life.
I value the friendship I have gained here, the lessons I have learned and the hope I share.
It is three years (almost) since my stroke I still have far to go, but with support and determination I will have a bright tomorrow.
all the best and
keep on keepin’ on
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@Bobbi ,
Thanks Bobbi for the kind encouraging word. This is the reason I came to this forum. I was loosing my mind after so long of time with out much progress.
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Keep coming back. You’ll find the folks here helpful, encouraging and friendly, with a listening ear.
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@dewan Hi & welcome to the community. It’s good to have you here although I’m sure it isn’t somewhere any of us would have chosen to join.
Sorry to hear your progress hasn’t been what you’d expect. Can i ask if you are still having any physio / occupational therapy involvement? It may be worth asking for a referral if not. Not sure what support you have around you but you could also look at YouTube videos to see if there are any exercises you could try.
After the early stages progress does seem to slow but it can still happen. At times it feels like you aren’t progressing but then all.of a sudden you might notice an improvement.
I am 3 years on and my walking is less than ideal. I work at it every day but nothing much has changed. I still hope that it will one day right itself.
Wishing you all the best.
Ann
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Hi @dewan
Welcome to the community, I’m sorry to hear about your stroke and that you feel you’ve not gained any progress.
We do have an online programme that we run for exercise which you may find helpful. The programme is open to all levels and abilities. We send you 6 weeks of videos for you to do in your own time and then once a week the group comes together to discuss their progress and how they found the exercises.
If you think this might be something you’d like to try you can sign up to all of our Online Activities here.
If you need anything whilst you’re using the Online Community please don’t hesitate to tag me using the @ symbol and my username.
Anna
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@dewan Hi and a big welcome to this community. We are a merry band of stroke survivors who have all suffered different types of stroke and we are all on very different roads to recovery. I’m 7 years post stroke and not completely happy with my progress although I have come a long way and have adapted how we do things and we have a busy active life. I have never given up trying to improve myself, although sometimes it’s hard to stay motivated.
There’s always someone here to offer advice and information, so jump on and ask away as and when you need to reach out. Look forward to hearing from you.
Regards Sue
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@Anna_Moderator
Hi ,
thanks for the suggestion. I have gone through all kinds of exercises, but there’s no harm trying this one too. Least will keep me busy.
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@Susan_Jane
Hi,
Glad to hear from so many for the first day of joining. I will put your advice in mind.thabks
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@Mrs5K
Hi,
I am currently doing exercise on my own. Had set up multiple items to do it with from earlier times (when I was more enthusiastic). After years of doing it with professionals and videos alike I happens to know the exercises. Lets hope and see it will improve. Thanks
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The best advice I can give is to keep trying. I know it’s difficult to stay motivated when you feel like you’re not progressing. Set small goals and aim for them. Monitor progress overs weeks / months and not daily as you often can’t see progress in short time frames. I keep a diary so I can look back.
Best wishes
Ann
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Hello Dewan,
You certainly spent some time in hospital and rehab. Sorry to hear about progress being so difficult. Perhaps you could list your top 5 difficulties, and what you think is going on?.. and I will try and input some meaningful suggestions.
Hang in there, ciao, Roland
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@pando ,
Hi,
Just read out about remapping on you page. Its been 5 years. believe me I tried everything including this brain remapping with chinese specialist. Even carried out acupuncture session to reactivate nerves. After session and sessions of treatment all I was told that due to very late treatment it was not as effective as it should be. Indeed it was very tiresome and difficult , more than in rehabilitation centre but couldnot make any progress. My right ankle and knee has nil movement. I just drag to walk with my strength.
My arms and hand also has limited movement. Been told in some of occasions if it semi- permanent. but thank you and any suggestion is welcome.
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Hi dewan,
What was / is the name of your Chinese Doctor, please? and your approximate location?
Okay, I will suggest some things. Do you have inflammation in your body ? Either way, you need to start with grounding. This is a huge detox process, and if you use a grounding mat you must test the plug and mat to see if you are connected electrically. As soon as you do this your whole body will change as electrons flood your body. I suggest looking this up on YouTube and listening to a few hours of people like Clint Ober, his story, and his colleagues like Sinatra (cardiologist). If you have little understanding of how we are electrical beings, there’s little chance of success. Anyway, if you’re on board and try Earthing out with an open mind, that will initiate you on a journey of healing. Without a shadow of doubt.
Let me know how it’s going, good luck, I’ll follow you, Roland
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I suspect, as our brains are all uniquely wired, that progress is quite subjective. Some of us may not make much progress at all despite the effort we put in while others, with minimal effort, make good progress. As a cerebellar stroke survivor, I have probably made slower progress than many of my cerebellar stroke survivor peers, however, as I am aging, entropy will also affect the brain and body’s ability to improve. Sorry I couldn’t be more uplifting 
However, there is something to be said for keeping one’s spirits up even in adversity.
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@Rups ,
yes, it is true. People do intent to react differently not only as per build but as per origins ethnicity. probably due to genes. Have met people who has recovered to the fullest and worst still tied to bed after so many years.
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