I have yetvtbcomprehensively find anyone state they are in a place where most disabilities are gone fatigue is in the past but I do see adaptations working well with a lotof survivors.
It is my observation that we never truly recover as you would from a broken limb or the flu, but in fact we just assimilate into a new operating normal that gives us quality of life and hold there doing normal things.
So no big bang or stepped changes just life as we know it in a new physical way.
I was once told by a stroke consultant that you never fully return to how you were pre stroke but some people do get pretty close I think. A lot will depend on severity of stroke in the first place.
For many, yes it will be a case of adapting & living the best life you can with those adaptations.
But there is always hope for improvements & no reason why you canāt keep improving if you keep trying although those improvements are sometimes imperceptible.
Thatās just my view of coursr. It is different for everyone.
Yes severity is everything. Some light strokes are more straightforward to recover from , the severe ones are lifelong adaptations while the brain plays catch up, but even four years down the road nothing significant is really noticeable but adaptations are bountiful for the most important aspect of life. Getting some recognisable results of your pre stroke conditions is a boost psychologically.
I understand that, but somehow the process of trying to teach the new brain we have old tricks, is a sort of progress in itself. I know I have got off very lightly, but two things help.
Explanations to others who give me quizzical looks and
trying to be more accepting myself, while still ākicking against the pricksā
Us changes are imperceptible and accepting that the change is so small can be the toughest part in my view.
I would roll a level of impatience does not make smooth recovery easier.
Add that a race between recv and older the obvious cross over is a tough one to get your head round .
āThe idiom ākick against the pricksā means to argue against authority or facts that are indisputable, or to protest in a way that is futile. It can also mean to hurt oneself by trying to change something that cannot be changedā.
Well thatās what AI says
I always took it to mean objecting to problems put in our way with bad grace and I certainly donāt think trying to improve oneās brainās response is futile, far from it!!
Absolutely, accepting the changes can be very difficult. I suspect a lot of us have our moments where we wish everything was as it was before. I know I do but I try not to dwell on it as it can stop you living life & enjoying what you can still do. I always retain the hope for improvement though.
Fully agree I retain hope but struggling with acceptance some days better than others
Al through the past four years I have strived to do what bi have wanted to do be it pre stroke or new post stroke, happy to try most things pain levels permitting.
I know the pain is a big disability than the physical weaknesses so withstand being sporadic my achievements are a bit hit and miss.
A fair comment. And I donāt wish to argue about that. We know itās not a black & white scenario ; there are degrees of recovery.
That said, fundamentally, I donāt agree. While I am work in progress, I do believe I will recover fully. I have overcome many deficiencies; my fatigue in the past as you say. The problem is that there is no āSchool of Stroke Recoveryā. Most people are on their own, and no idea what they are up against. It does depend on age, general health, severity of stroke. Also one must aim for & āhave faith in a complete recoveryā ; not settle for less. I personally feel my research and hard work has got me through many a hurdle. Taking control of my recovery empowers me and makes me far more optimistic than most. Yes, my senior stroke physio did say āall therapists could learn from meā and I just want to leave the boasting now and remind everyone (in the words of my good Radiologist friend) that itās mind over matter
Yes Toland it is mind over matter
And even from y poor outlook of being winched in and out of bed all the way to walking to the end of my road. Does give me hope of a full recovery, the only thing I need to do is be happy along the way however long that will be
Like I suggested, we are all āwork in progressā and I have struggled as much as anyone. Anyway, who doesnāt have a problem of one sort or another, so letās enjoy life just as it is !!!
I think that one way or another I will always need a bit of help or support at times.
I have recovered to a degree since leaving hospital and I believe I still have potential for more.
The encouragement we exchange here definitely takes us in the right direction.
There are black moments sometimes but equally there can be triumphant successes and happy times.
This is a very changed landscape. There is much exploring to do with worthwhile discoveries to be made I am sure.
Be lucky, be happy and share a grin every now and again.
Totally agree Bobbi we have many years of life and living in store. I do smile as I inch towards the goal of independence bonhave setbmyself. It may be a way off but only this morning contrasted my changed reality from four years ago when I was in a bed being winched on and out envying people who coul corridor walk with a stick , now Iām them and I envy those whose fluidly stably walk, just a matter of time and perseverance and will succeed.
Belief is everything. Keep on going my brave fellow survivors life is always a challenge but never boring.
I have a silver āSolomonā ring with the words this too shall pass inscribed on it Simply put nothing remains the same good and bad so never give up hope
During the bad storm we had recently a load of tiles were loosened and cascaded down the roof and onto the roof and bonnet of my car.
The carās gone away now to have repairs done.
Itāll be a while until I get it back.
sigh keep on keepinā on
Sorry to hear that Bobbi it will be back all fixed up and ready for buse. . It can be a bit blow when your independent living is restricted by unforeseen circumstances.
Iām hoping I ca. return to the broad but still in the hands of DVLA.
Wish I shared this positive attitude. I am not ashamed to admit Iām struggling massively with the mental struggle of what happened and ruminating over what could be.
Would like to borrow some of your positivity