P a c e

I was diagnosed with FND around 9 months after my stroke & today I came across this leaflet that had been shared on a Facebook FND group.

I felt a lot of the things it mentions can relate to stroke recovery too so thought I’d share here in case anyone might benefit from it.




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Thanks for posting this Mrs5k, it’s a really useful leaflet for all of us coping with the after effects of stoke. I can personally see myself in each section to some extent and aim to copy it for future reference. I hope others read it.
Ann

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Glad it is useful @mum2two i practice some of the things mentioned to help manage my fatigue. Not always successfully :rofl:

Best wishes

Ann

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I find fatigue really hard to manage, and harder still for others to understand. I’m finding that if I do too much in the morning I’m done in for the rest of the day. I feel like I’ve really slowed down lately especially since having Covid at the start of the year my energy levels are poor. I do think that as the years have gone by ( it’s now over 5 years since the stroke) my memory has improved which I hope will give some encouragement to others.
Ann

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I’m the same in relation to fatigue in the afternoon. Having covid won’t have helped your fatigue. It’s a symptom of long covid i think. Glad your memory has improved.

Ann x

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@Mrs5K thank you for sharing, ive used the spoon technique before and posted it in here, it is very useful.
thanks
Chris

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I was curious so I had a look, that is a very useful technique :smile:
So I thought it would fit nicely in here with PACE

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And there was me thinking you were going to have some ketchup with your spoons :grin::grin:

Voice recognition software does lead to many chuckles :rofl:

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:rofl: :rofl: :rofl: :rofl: Yes, I always thought voice recognition might be a good way forward but I’m only now actually picturing myself using it to type my posts. Now I wondering if it might be more of a hindrance as I’m frequently stopped mid sentences to conversations with various members of my family, along with my stammering and stuttering and long pauses to pull words of out my head.
I would definitely forget to turn the darn thing off and spend the rest of eternity deleting and editing everything everything that’s written :confounded: No, think I’d better stick to hammering out my replies on the keyboards. :laughing:

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It’s great that you’ve got that capability to rely on and certainly this site benefits from your input. I tried it in it’s infancy at work and it was such a time consuming and tedious task to train it to recognise my voice. Many moons ago now, I’ll have to try it on my phone. In recent weeks my brain seems doesn’t seem so reluctant to venture beyond simple or adverse to exploring…at leisure. It just can’t handle techy stuff in the moment. I went to full my car at the petrol station the other day, only to discover they’ve changed the screens on the pumps and I just stared at it blankly. I had to go get help only to discover I failed to register the big green button beside the screen to pay at kiosk :roll_eyes: :laughing: My brain just does not compute when I’m in one of those on the spot moments. I just politely apologised for one of my senior moments to the young man who help me out. :confounded: :crazy_face:

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I have some voice recognition software to help me at work. When i’m fatigued i just talk at ot & it does the work for me. Took a bit to get used to it but it’s great now. You do have to check for stray words but helps me loads. I also have one that reads to me. Its a bit robotic but i can’t cope with reading much so is ideal for the longer messages, emails and documents.

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Microsoft has had voice recognition built in from 7 onward. It’s fairly clunky to start off with but if you follow the microsoft advise and do the training during startup (training the computer, not you) then it’s not too bad and gets better the more you us it as it learns from your corrections

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