Muscle limitations

I had a stroke 6 months ago.
I’m frustrated with my lack of progress
I work on my stroke-side muscles, but they do not improve
I realise stroke-side muscles follow a different set of laws,
but mine reach their limit and need resting, then they carry on their trend of gradual atrophy. The next day my tendons have shortened and need painful stretching.
My arm picks up minor injuries that take 48 hours to clear.

Am I winning or losing this battle?
Anyone identify with my experience?
Thx, Roland


@pando it’s frustrating isn’t it but keep going it should improve.

Stroke recovery requires a bucket load of patience.


Your answer worries me, somewhat…
I don’t want to be indiscrete and ask too much
Hope you improve, Roland

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I hope so, thx Loshy


Hi Roland, you sound as though you are in a bit of a funk, feeling the lack of progress, we all get that from time to but it’ll pass…until the next one, and the next. Progress tends to come in fits and starts. Just stay the course and never give up.
I started looking at those signs of despondency as my que to go do something different for the day totally non stroke related. We all need a pick me up at times so give yourself a day or two off periodically.

Never mind the arm injuries, that’s par for the course with blood thinners, we tend to bruise easily, with me it tends to be on the legs.

Muscle atrophy also comes with the territory of a stroke, it’s inevitable from the lack of use. Have you never seen an arm or leg after break, when it first comes out of the cast, that’s when it looks its worst, all skin a bone and sooo skinny looking :sweat_smile:

That’s the way it was after my broken ankle and that’s the way it was with my body. Think I lost nearly 2 stone in the first year. By the end of that first year I looked like a saggy deflated balloon, it was not a look I can tell you :face_with_raised_eyebrow:

And then I got my driving licence back and the covid lockdowns were lifted that it, I was off down to the gym every other day to build it all back up again. And now I’ve got a nice pair of walnuts sitting on biceps thank you very much :rofl:

Here’s my time line for arm/leg functionality and muscle build up for you.
Had my TIA 2yrs 3mths ago, left brain, right side paralysis, no speech, aphasia.

It took me a year to walk again in a reasonably straight line unaided without the weaving or drifting off to the right. That was gradually built up to 4 miles a day over that time. Can easily walk 6 miles in 2 hours with a couple minutes rest along the way.

Within that same time frame my arm was also back to full functionality once again and hanging naturally at my side. Ok, it’s not quite 100%, there’s still some minor things to ironed out with the finer dexterity and control of the fingers and such. But nothing that really holds me back.

My arm tended to lie across my chest even when upright so I’d give it things to carry around or just hold onto such as grip strengtheners, stress balls, therapy putty. cups of tea :stuck_out_tongue_winking_eye: It always had something to do anyway, it wasn’t completely neglected and not aloud to be lazy:wink:

Gradually I built that up to carrying heavier weights and forcing it to do more things like the hoovering, washing up and so on thus giving my left hand some much needed time off :laughing:

Sometimes it’s not about what you do but how you do it to trick your mind back into normal bodily function again. Certainly, while you are still in early recovery, never see them, never think of them as major handicaps, don’t fall into that mind set (handicap and disability are for official use only :wink:)

Thx Mrs5k,

so nobody is challenging my statements, that’s what worries me
Thx for the wishes, Roland

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Good and what an inspiration to hear how much progress you made.
I can relate to your experiences very well… surprisingly closely
though I’ve not been at it as long as you - it’s good to hear from somebody further down the line
appreciate your reply, thx so much, Roland

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I think a lot of us have had / still have this. I think @EmeraldEyes has covered it well so wont repeat it all but it’s all about exercising & building back up again & having patience. You will get there i’m sure.

Best of luck.



Thanks, Ann
Yes, I’ll keep at it, of course


Thanks Ronald, your condition does resonate with mine which is why I gave you the really long answer :rofl: And I’m more than happy to answer all your questions I didn’t have the physical/metal ability to ask for myself back then :smile:
And believe me, to lose the ability to communicate is truly the most frustrating of all the frustration we go through :sweat_smile:

One more thing :wink:
If you’re not already doing this, it might help to start taking a daily multivitamin/well man supplement to boost your body’s nutrients. Recovery takes a lot out of your system, regardless of how healthy you may eat, it needs more than than the usual. :smile:

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Pando - Don’t want to bore you by saying what you’ve probably heard a hundred times. It takes a l- o - n - g time to recover from stroke. The weekly improvements, usually 2 steps forward and 1 step back, go on so slowly you only see improvement months later when you look back on where you were. You don’t see it day to day. You’re only 6 months out. I am 4 1/2 years out and still improving. I was totally paralyzed on the left side. Now I can do most of the things I did before. You just have to keep on trying . It’s hard work, and the only way. You have more inner strength than you realise. :slightly_smiling_face: Jeanne


I very much love your reply,
thx for encouragement

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yes, thx Emerald

I take liposomal vitamin C
lipo vit B
lipo magnesium
liquid zinc
lutein for my eye

any others you would recommend looking into?
thx Roland

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Yes thx Emerald,

I gave it a few tries and gave up when I heard the rubbish that was coming out of my mouth… a few words came out okay … one was Equinox…it took a few days to clear

What did you do to stimulate the return of sensation / touch ? anything at all ?
ciao, Roland

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I never really did anything specific for sensation and touch. To me it was all about the muscle memory so to speak. Getting the mind to recall the feelings and actions which is why I kept on going through the the actions to touch and using my left hand as the reminder of it to trigger the right side. I kept on with going through the natural motions for use of my right arm/hand as best as it would allow me to.

The best way I can explain it is I always treated my arm as though nothing was wrong with it. I’m naturally right handed so I’d reach for a cup of tea with it, fail, used my left arm and hand to remind me how to reach and grab hold and how it felt, the weight of it, the texture, the heat. Then try again to reach and grab on. Use the left hand as the reminder, the left leg is the reminder for action and placement of the right leg.

But in all actions try to lead with your right side first, consistently do that throughout the day, day in day out, don’t let up! I think my sense of touch came back onboard before anything else, in a matter of weeks I think. But we are all different. And like babies, we all experience the firsts at different rates and order.

I read elsewhere on here last night that you are a violinist. Now that is one priority you should be going through the motions of performing every single day if you want it back badly enough! Your brain is never going to remember it if you don’t keep on physically reminding it. Remember how you learnt to play it, the constant practice, practice, practice. You need to be picking up that violin and bow and trying to hold like you were about to perform to your audience. Your mind needless the memory of how it feels again, only you can give it that :wink:

The same goes with speech, doesn’t matter how crap it sounds, you make those babbles speak! Your loved ones won’t care and to anyone else it doesn’t matter.
There’s one guy in my aphasia group who can only say baa baa baa but even he can make his point. Another who speaks now speaks with a foreign accent, and another who with a very bad stammer.

Those who truly care about really don’t care how you sound so why should you. You’ll never speak if don’t babble . . . just like the babies :blush: I had to do it, what makes you so specially that you can’t bear being heard to babble :wink: :grin: You should learn to laugh at yourself some more

@pando to get my touch sensation back i used to spend time touching lots of different textured items. For example, a hairbrush, toothbrush, sofa material, wood, paper, etc. I had alrered sensation rather than loss of sensation but it may help you.

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I still sit and stroke the arm of my sofa :laughing: I has a love velvet texture to it. :blush:

@pando Also whilst I was sitting I would work on tying and untying knots in things, bits of string, ribbon, fabric belts and so on. That’s also working on sense of touch as well as finger dexterity. Needles to say it was virtually impossible to beginning with and knots were very loose…when I’d eventually manage to tie them :grin:

My loss of sensation was and is severe / it’s only just started to come back very feintly after 6 months… lifting things is so hard because I cannot feel their weight. If it had been a few weeks I’d be on a totally different level by now. I wonder if it’s an emotional block? I accept different points of view and I have an open mind. When I left rehab 5 months ago I could only feel an ice cube… now a feather, a comb, my torso, my head (which came back in a month), and very little else though I can feel a little bit more on my hand each day, this last week.

Thanks for sharing your experiences, Roland

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