After stroke I have made efforts to achieve recovery. The journey is not the one I expected but I have moved forward to a life worth living, worth talking about and worth sharing.
I have been writing about it and here are a few short episodes from Medium, where I publish my Blog.
I believe that by sharing our experience we can inspire, encourage and assure one another that we are not alone. Each of us can in our own small way make this world a brighter and better place. keep on keepin’ on there are more episodes which soon will also be linked here.
I remember who 2 patients (1 at a time) died in the bed in front of me. One couldn’t accept that he was unable to get up ; a day or 2 later he died of shock, and all his family starting turning up dressed in black… that’s how I knew. Same with the next, until a jolly young fellow took his place ; he was out in 48 hours but told me he’d be back to get me out. “Don’t bother,” I said, “I cannot get out of bed,” which he hadn’t realized at all !!
@Bobbi i can only imagine how frustrating & difficult everythjng was for you for those first couple of years. I know how frustrated I got & I wasn’t paralysed on my affected side.
Stroke is a strange beast. I remember that I walked into the stroke ward but I wasn’t able to walk out of it. I guess my stroke was still working it’s “magic” after I was admitted.
I was able to get out of bed but needed help to get anywhere. I kept getting told off for trying to get to bathroom myself as I always had to be rescued partway. Well, you have to try don’t you.
A lot of water under the bridge since then and mobility is still rubbish but life, as you say, is a lot brighter than it was.
@pando
thanks Roland, it was quite an experience wasn’t i?
@Mrs5K
I too walked into hospital. I was admitted to a general ward while I waited for a bed in the stroke ward which was full when I arrived. After a day or two I lost it, not knowing where I was, I got out of bed and demanded to be allowed to go home. A nurse pinned me against the bed while she got help and they put me back to bed. I remained bed bound after this for the two months I was there.
It was a terrifying, overwhelming, confusing experience.
I think this ‘golden period’ when treatment would have been maximal was being missed. My wife got me off to hospital speedily but they just weren’t geared up to providing timely treatment.
My experience of hospitals has not been the best during my lifetime.
Anyhow its a bit late to begin crying over spilt milk now.