Hi new here

Hi all new to this group. Take some comfort from reading your posts as I know I am not alone.
I had my stroke June 2021, motor lacunar infarct, at age 58. Previously considered myself fit and healthy and could take anything life could throw at me. So different now some 20 odd months later. To my family and friends they think I have fully recovered. How wrong they are but I dont tell them, dont want to burden my wife and kids.
Physically I look all well and good, spent 4 days in hospital, took 6 weeks to get rid of the brain fog. Recovered physically within a couple of days.
But the light bulb moment went off in my head on the 3rd day in hospital, looking at some less fortunate ones on the ward than me. Realised that could have been me.
I find even now I get so tired at the end of the day. Just feel like I could sleep all day. I used to enjoy work with the hustle and bustle and daily challenges, and interactions with people. Not now. I have realised there might not be long left so I now put myself first, rightly or wrongly. I do what I want to do, not what others want or think I should do. Dont care what they say or think, they havent been here.
My main after effects of the stroke are the fatigue, still. You can all understand that but the non stroke people cant. I find my very short memory, things like a few minutes ago, is not so good anymore. I find I like solitude now whereas I used to be a quite social person. There are other minor issues as well.
Thanks for reading my introduction.

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Hi Chris.
you really have summed it up well.
I wish you well and great post :clap:t2:

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Hi Chris

My stroke was a bleed basel ganglia. Like you im the same tired all the time ive been back at work for around 5 weeks now phased return but ive not got much interest. I have issues with my leg feeling like its trapped in concrete is the only way to describe it. I can walk mind and have issues with sensortly stuff. Its really hard to just crack on with life. I had my stroke on my 50th birthday my life has changed so much in the blink of an eye. Unfortunately i have to work financially cannot survive wothout salary but its a bit of a chore now when i used to love it. It suddenly feels so unimportant if that makes sense. Anyway back to my laptop. Take care mate.

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@ChrisBriggs welcome to the forum. Good to hear your recovery journey is going well. I too, 16 months on, still suffer fatigue which can & often does last days. It’s so frustrating.

Look forward to hearing more from you…

Best wishes.

Ann

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Thanks for the replys, good to know I can now relate with other people. Be warnes though, in my dark moments I may be posting more often.

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@Loshy

Sory to bust in here but if I don’t do it now I’ll forget.

I hope you have a very Happy day tomorrow, Loraine. You are always in here on the Forum with kind, supportive and helpful words. You are very much appreciated and deserve a big hug and a round of applause.from us all.

This might be a day early, but I want to wish you a

Very HAPPY BIRTHDAY and many happy returns.

:heart: :heart_eyes:

I’m sure I’m not the only one with good wishes for you so here’s a.

:bouquet:

from all of us.

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Hi Chris and welcome to the group. I had a mca stroke on the left side of the brain 13th January this year the day before my 59th birthday. This group has helped me realise what im going through is normal

Happy happy birthday for tomorrow Lorraine!

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Happy birthday Lorraine. Referring back to my post about doing what I want to do now, I have taken up golf. Doctors advised exercise, didnt know what I could do at my age. Used to think golf was a boring, pointless game, but absolutely love it now. I get to spend some good quality time with family and friends on the golf course, people I want to be around, having laughs and time with people I care about that we never did before.
As I said before, do what you want to do and put the important things/people in your life first and last. Funny that it took a stroke at 58 to make me realise this.

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Happy Birthday for tomorrow Lorraine :birthday: :partying_face: :tada:. Hope you have a lovely day

Best wishes Sue💐

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Shwmae Chris, croeso. I always enjoyed my own company but after stroke, I feel I have really got acquainted with myself, almost like being shut in a room with my own brain for a year. I hope you enjoy engaging with the forum and I look forward to reading more of your thoughts.

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It was the “at my age” that got me :flushed:
Your only 58, use it your advantage and not your handicap :grimacing: :laughing:
If you’re fit enough for a round of golf then your most certainly fit enough to get yourself off down to a gym and give your muscles a good all over stretch and a work out. After all our arteries and veins have muscular walls to be maintained too you know :wink:

I see men and women a lot older than that down there every other day. And it’s not all about the treadmills and spandex clad fitness instructors having you jumping around doing fast paced aerobics :laughing: For me it’s about relative strength exercise and balance to go the distance. A year ago I didn’t even have the strength to push a hoover around, now I’m lifting virtually my own body weight and managing six mile hikes…and I’m soon to be a 61 year old woman in a couple of weeks :older_woman: :muscle:!

And yes, I do still suffer the fatigue we all do, and I do have a drop foot and weakness down my right side and the pain down my right thigh. But, a certain amount of what we can and can’t do is also mind over matter…pushing your mind over the matter of your body’s limitations Having enough want and will to do it!

And actually, if you’re not already doing so, you should have a few warmups and stretching exercises before and after your golf match anyway. Golf can cause (uneven) tension to build up in the arms and shoulders as well as the legs and that’s where you get the pulled muscles and tendons among other related problems :wink:

Use it or lose it as the saying :grin:

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Hi Chris my husband had same type of stroke as yourself july22 he’s just got home after 9 months in hospital. He too says its really tiring,mobility limited but he’s determined to walk sensory issues are a problem too Like yourself he was always busy liked going for a run and walking not sure about the running but hopefully the walking will return

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Hi I hope Chris is on the road to recovery. Lynne. 9 months is a long time to be in hospital so i hope he was well cared for and os glad to be home. One step at a time as the old saying goes. I wosh yoy both the very best of luck x

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I had my stroke 4 months ago just turned 40 a week ago and you’re right it’s all about me now! Forget what others think just worry about you!!

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Welcome and sorry you find yourself here. There are some lovely people on here snd alot of helpful advice. I understand where you are coming from, like you I was very lucky and recovered physically very quickly. However I am struggling with the fatigue, some days worse than others but it is a real burden. Like you I was fit, healthy and active so having a stroke was a real shock. I am almost four months on now and walk every day and on good days going back to the gym.
They assure me the fatigue will improve with time.
Wishing uou all the very best
Karen

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Hi , Chris , I am also a newcomer and can compare many of my experiences to yours . I had my “small” stroke last July just before my 80th . From being a lively youthful( so I thought) elderly woman I now find myself a tottering old crock . I look well and have little to show of the stroke . No visible disability . The disability is in my head which permanently feels heavy , fuzzy and spacey .Hard to describe . I find socialising extremely tiring and so avoid it . I’m not lonely and quite happy with my own company . I know my friends and family find this hard to understand and it is indeed almost impossible to explain - to myself and to them . At risk of being a bore it is best just to keep to myself .I do ask myself though , when am I going to turn a corner and start to feel normal . I have had a few challenges in the last couple of months : the death of my 98 year old husband and the challenge of the funeral and big social event afterwards . Those events brought on a recurrence of severe fatigue

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Hi Chris, reading your post is a mirror image as to where I am. Had my stroke four and a half years ago aged 53, fit as a fiddle and full of life then boom…everything changes.
Like you, friends and family think I am fine, just a bit forgetful, get a bit tired etc when really things are not easy.
I can no longer tolerate people or things that are unimportant and often speak my mind. I do not mean to upset people but it is what it is.
People cannot understand why I am always tired and do not socialise, it is what it is my friend and I think sometimes you do have to think of yourself.
I just take a minute to think that yes I was lucky, there is always someone else worse off.
Take care.

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Hi Chris, my local council does an active health service for people with limited mobility and/or chronic health conditions. GP referred then you are assessed by the instructors before you start and you get regular checks with the team. I’ve been doing since my stroke (4 years next month) Covid excluded and made huge difference physically and mentally. I do aqua twice a week and a very gentle weights class all tailored to what I can do not what I can’t….a nice change. It is also a concession so cheaper than regular sessions. Maybe your council does similar.

Same as Binty, same as.

Hi Chris looking at your story and it’s almost like a reflection albeit it took a little longer for my eyes and physical strength to come back at 37. I’m nearly 6 months since my stroke and looking to return to work soon. I get exactly what your saying with the forgetfulness and fatigue, I’m left with the same two as you. Look fine on the outside but you know your not the same and there are limits to be aware of, went out for a pint with a friend a month or so ago and I just wasn’t with it, felt alien, not as quick with comebacks, get tired etc but I noticed it where others don’t. Crap luck for both of us, but definitely gives a new outlook on life and care less about the what it’s. So we both on a very similar track mate and honestly I feel like there’s less time to waste and just enjoy what’s in front of us.