I had a cerebella stroke. Rups said it was rare. I didn’t know that. Any one else in that club?
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Yes me…had an acute right cerebellar infarction with no haemorrhagic component on5th Feb last year. Have been in this group since but don’t really post….shy!! Ha ha…..I couldn’t walk properly for about 3 months but improved over time altho fell over on Sat and had to go to A&E..am ok tho… I am on a shed load of meds cos was also diagnosed with Atrial Fibrillation and heart failure at same time….a triple whammy…not done much for my mental health as I live alone….but hey gotta keep on keeping on…I was feeling pretty fit until Sat….hospital reduced my beta blocker in case it affecting me…so it goes xxx
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Cerebellar stroke accounts for less than ten percent of all strokes. It has been said that it has a good rehabilitation reputation but a higher mortality rate than strokes in the cerebrum. So, we are quite fortunate to have survived despite all the mess of it.
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I like living alone as no one else has to balance my mental books and I can go at my own pace. It helps having a cat though. 
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Yep I agree living alone is good and I usually manage to fill my time and head….however I have two dogs and worry about how I can alert anyone if carted off to hospital…like on Sat I managed to get my friend to come and feed em and luckily they didn’t keep me in so I was home again by early evening. When I had the stroke the owner of the kennels they stay in sometimes came to my house, went thro next door neighbours house and in unlocked back door and took them for me…what a hero….kindness of strangers shines through (I have a key safe on the front now and one of those alert services if fall in house etc) to be honest I had forgotten I was ill I was doing so well….went over when bending over 3 times in quick succession to pick up the poo Watson placed on the pavement with his swivelling bum…jeeezo!!!
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Glad to meet you @Susie1 @Rups wrote in a previous post that the bodies vestibular system is affected in cerebella strokes. I have gait ataxia from my stroke which was some years ago. I’m OK in doors but use walker outdoors. I also have occasional epileptic seizures. I don’t know if that’s connected.
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Very much so gait ataxia, I had that after overcoming shuffling at first. I occasionally have gait ataxia when fatigued, usually outdoors. I believe seizures can be brought on by stroke, not just cerebellar stroke.
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Hiya! I eventually perfected what I call my “Frankenstein walk” which involved a sway in my gait which helped me to balance , I gradually eliminated this…i also had a stick to begin with which I miss cos it meant other people gave me space (now they just rush past and upset my equilibrium). I am very bad at resting and will be reading, knitting, walking dogs, all day doing summat…last week I totally overdid it …strained my neck and eye muscles too much knitting on a complicated fairisle…that’s the physical/cognitive deficits kicking in after stroke…when I went out last Sat the light felt a bit weird and then I lost balance picking up the poo, fell and cracked ma heid!!! Taught me a lesson, to remember I am not as I used to be…. Very upset about this the last few days, but working through it now, no harm done ultimately….but so true, the stroke journey remains up and down…literally LOL xx
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I used to call mine the gunslinger swagger.
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For some reason I thought of “Bonanza” (showing my age eh) all chaps and side guns…one gun either side would assist balance?? I feel a bit of a fraud at times (v lucky) as I don’t have any effects other than the balance and extreme fatigue which can influence it…I have to do everything for myself and often don’t see/speak to anyone for days/weeks, so have to keep going. I have grown used to this (isolation perhaps the lesser known side of stroke) but have to contend with all the meds for Heart Failure/AFib , which again, I am asymptomatic…for now!! I is not complaining!! it’s more the weirdness of seeming ok but actually, this thing happened and is ongoing…ach weeel….its blowing a hooley here in Scotland so I am gonna have a duvet day…not going anywhere…Fab! I am a great binge watcher, love it…I sometimes wonder if I could be one of those Japanese lock-ins you used to hear about..I went to Japan in 2024, loved it…anyways….enuf of my mental meanderings , Hope it’s a good day for cerebellum members !!! Cheers y’all xxx
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@Susie1 If you ever feel you want to chat being on your own please feel I am a listening ear. All the best!
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That’s very kind of you, I will do, I see the site sends links through to my email so I know when there is activity etc…tech is great sometimes tho I am a bit suspicious of all these AI robots, would imagine they just get turned off rather than have strokes, LOL
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By the way, I see Rups is in Wales, are you in England? That wou ld mean we have the country covered!
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I am in Norfolk. I think you are in Scotland so we have the country covered!
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I am an expert on duvet days.
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I think the cerebella sends a message every now and again…just take care of yersel somehow….ongoing fatigue the noo and that hoo ha at the weekend really upset me….so I know you will understand…I sometimes think cerebella stroke effect on mental functioning not really explored too much anywhere…just have to go one day at a time, I guess
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So how’s it going in the Club? nearly a week of duvet diving and fingers crossed my mojo is coming back…it’s 4am, can’t sleep as usual but so used to this now doesn’t bother me…I have read so much on this site about fatigue and its grasp on one…..panic attacks and anxiety seem to be subsiding….i am wondering if the reduction in meds is working seems to be, altho i am reluctant to speak too soon….i never know whether feeling rough is due to stroke, HF or AF or just the meds….weeelll better get that heid back on the pillow try and get some shuteye xx Hope youse both good xx
Hopefully all good in club. I find I sleep watching the news and don’t sleep for hours a night. I can’t blame the stroke as several years since I had it. Yesterday we went a view the inside of the sheltered bungalows. I felt quite positive yesterday but today less so.
Awww ….one day at a time…coddle yourself today. I considered sheltered housing and wld go for it is possible, I wouldn’t get any financial help as I am physically able….my OT assessment after the stroke was nearly 100% at the time, apparently v unusual….but it’s a mental health thing for me, social isolation is very scary altho I live in a wee cottage fronting a busy road and all I have to do is crawl out onto the pavement if summat happens…its still scary…I used to have one of those emergency Robot calls every morning that check you answer and are still alive but it was so irritating I stopped it! LOL …gonna have to take my chances…the local sheltered housing doesn’t allow pets either so wld have to wait for Mary and Watson to pass on (sob). By the way, how do you upload a photo to these threads do u know? Find this site quite complicated to navigate…tried clicking the paperclip …nuffink happens…ach weel…i think my neck strain much better today…i hope you have a stress/worry free day xx
@Susie1 i don’t know how to download photos. I don’t use a mobile phone. Ask Anna is supposed to get you help but i don’t know how to find her. I am the last person to ask about teckie things. May be someone will reply! lol
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