@Susie1 Hi Susie…To add a photo hit the little photo icon (bottom right hand side of text screen) and choose option. xx
@Susie1 I thought someone would reply but it made no sense to me. I hope you understood!
Just wanted to add the miscreants…Mary is brown staff/patterdale cross and Watson the frenchie/pug cross (a fug?) He us the one responsible for my recent fall altho can’t blame them for the stroke…both rescue dogs xx
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Hi @jenny-wren
When you open the text box to type a message, does the below icon that I’ve put a red square round it show up across the top of the box?
You can click on this icon to upload photos.
Anna
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Hello @jenny-wren , along with the others i too am in the cerebellar club. May ‘21 for me. Lot of water has passed under a lot of bridges since then but i am thankful and fortunate my recovery has been very good. Very very minor physical symptoms remain, rarely interfere with daily life. Mental fatigue creeps up every few weeks but I, with support from my very understanding wife, have learnt not to try and fight it but accept it’s how things are now. A quiet day or two is what’s needed until it passes.
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Hi @EssexPhil welcome to the club. We have several members now. All the best.
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Yes. Thank you for instructions!
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Hey Jenny Wren …gonna start a trend…, here’s me taken this morning , I am v bad at doing selfies…I think it’s nice to see who you ‘re talking to eh…hope you keeping well xx
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My selfie with Seborrheic dermatitis all over my face. I’m currently smothering it in aloe vera to fight the infection. A few days ago I was blotchier than a Rorschach Inkblot Test. I rarely take selfies, so hope I captured my good side 
.
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Defo caught your good side! Great to see you…it’s nice to see the faces behind the threads, I can tell you are not a robot. I have emerged from my duvet for the new week, hoping panic/anxiety subsided now, ready to start again, altho fatigue still hovering…see how it goes..y’all have a good day!!!
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Hi EssexPhil, I would be interested to hear how mental fatigue affects you….i think that’s what I have had the last week, cheers x
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@jenny-wren i had a bilateral cerebella infarction on my 63rd birthday (2023). It was my second stroke (first 2016). Not only am I still severely dizzy, I still find it very difficult to stand, never mind walk. Also I lost my ability to swallow! Subsequently I am PEG fed and my medication is directly injected into my stomach. ( I can’t even swallow water).
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Hello Philip - Wrt to PEG feeding and losing ability to swallow, may I ask if you are being given any help guidance on this?
We were advised to try putting flavours on your lips e.g. pineapple juice (which I think they said is some sort of stimulant). For a long time, my Mum refused to have anything and this was actually due to an over enthusiastic hospital nurse who tried to clean Mum’s mouth and upset Mum in the process. Prior to this incident Mum would at least allow her mouth to be cleaned but after the incident she point blank refused and clammed up.
Last year managed to tempt her to try some water. I started with a small amount in a spoon which she was able to swallow safely. We did this for a few days, gradually increasing the amount and also adding her favourite fruit cordial (very dilute). We had her taking a half a glass of water or between 100ml to 200 ml).
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i am so sorry you are having these problems. @ManjiB ‘s suggestions might help. Worth considering. I am sorry you have had a second stroke. I had a TIA soon after my stroke but recovered.
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Hello Jenny - this looks like a photograph that might have a story to tell 
Are you able to share with us?
Who are these ladies, when, where etc?
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@ManjiB i received speech and language therapy for the first 3 months following my second stroke. They had me doing tongue exercises to open my food pipe. I saw specialists at Castle Hill hospital in Hull who informed me that my epiglottis was closed and that making an incision in my neck to open my epiglottis was pointless as a food pipe uses muscles to feed food to your stomach. These muscles probably won’t work either. So I continue to be PEG fed. Since coming out of hospital I receive my feed from Nutrison. I get sent all the feed pipes and syringes monthly together with high calorie to up feed.
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