Hi all, this is my second post after my RT Thalamic stroke almost 7 months ago. Things have been good I suppose, the Neuropathic pain is still there with Pregabalin being the only drug offered for the time being and I keep getting Cardiac Investigation appointments at the hospital but still haven’t seen a consultant, spoke to one but that’s it!!
My question to you is how is it that I feel worse now than I did before ? My shoulder is really tight, my arm, leg chest, shoulder completely numb but the new one 6 months later is that I loose my balance at the drop of a hat!! I don’t get dizzy I just loose my balance I recover almost instantly and it’s like it never happened… The GP says it normal and to be expected but doesn’t really help.
I’m just need your Thalamic stories please, I know I’ve been lucky in the Stroke lotto as things could be so much worse
A thalamic stroke isn’t a common one to find info about. I’ve searched too many sites and have read most of the posts on here with reference to it… As I’ve said before it just keeps giving with no outwardly obvious symptoms but plenty that are hidden .
Hi Jay, I think it’s the same as I had. I had left anterior thalamus. I too have been trying to find out about it. The stroke nurse who told me I’d had one told me it was a naughty one and moved her hand up and down as if on a rollercoaster, she said I would have more. But that’s all I know, and like you I want to know more. I’ve got an appointment 5th February so I’m hoping I’ll know more then. Sam x
I hope you’re appointment on the 5th goes well and you get some answers. My only Consultant appointment was a 5 min phone call then it was back to the GPs who I’m sure don’t know what to do with me as I look completely normal, it’s whats inside is broken… I try to explain things to my wife but again I don’t think she really understands the feelings that I get.
Jay I am exactly the same! I look fine, but like you I’m not the same inside!! It’s not until I started doing things I realised there were things I struggled with , reading long passages, processing it all, logical thinking used to be a strength now I struggle. Anxiety, and like you shoulder and upper arm pain. I’ll let you know if I learn anything else at my appointment. Take care x
That’s something I’d not thought of… I was a HGV attic driver until my stroke but obviously lost my license the moment it happened. I only had 4 weeks off work as that’s all they would pay me but they did give me a job in the office on nights, nice eh!! I struggle with processing the new info, even after 6 months of doing it I have to time out to think about what I’m doing (Even looking at another window on the pc). For me though, I have started to run again, I did run marathons and do trail runs but am now back to C25K. Running with a numb leg and foot is interesting
One of my strokes was thalamic, but I doubt is I can be helpful much. I had very many strokes at the same time from Endocarditis. It caused an embolic shower, which is clots of bacteria and blood shooting all over throughout the arteries and veins. Only one of my strokes was hemhorragic. I don’t know which areas caused which effects.
I had a TIA in the Thalamus two years ago - and have been searching for details about it ever since. It was very strange hearing someone describe exactly the symptoms I had - but also just redoubled my perception of how lucky I was. I have no after effects ( other than the cardiologist won’t let me run).
Am now retired and enjoying studying astronomy and planetary sciences !!
The one thing I’ve spent a lot of time trying to work out is ‘why me’ ? And have finally made peace with the fact that I just got unlucky and that in life ‘$4it’ sometimes happens , you can’t always control that - what you can control is how you react ! I now try to look on having a stroke as a big ‘wake-up’ call and do my best to enjoy every day and make sure I do the things that bring me joy (yes - like studying !!) and also live’ in the moment’ with my gorgeous wife and great kids.
As some others have said - I think Stress was a significant contributor to my stroke ( I also have atrial fibrillation which is another risk factor I know) so living as stress free as possible is now top of my list !
Hi, just remembered my consultant this week said he would ask my GP to refer me to a sleep clinic as it appears ( according to my partner) I have sleep apnea. Hopefully this will give some answers too!
Yes, I watched a dozen or more of her YouTube videos a while ago. Once I got past my initial irritation at being addressed as if I was still in primary school, I found her very interesting and thoughtful.
Not knowing anything about this so just a blind suggestion. Could you wear a knitted glove over your hand to help keep it on, cut the fingers off those that don’t need it…just a suggestion
I recover almost instantly and it’s like it never happened… The GP says it normal and to be expected but doesn’t really help.
x
