Bad taste

Really interesting reading this thread, I’m almost 1 yr post stroke and this last week have been experiencing the same things, metallic taste, lump in back of throat, and running nose on one side, thanks for sharing this, it’s good to know others have experienced the same and its a zide effect.

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Because it came on a year after your stroke, I think it you should treat it as new symptom and not necessarily stroke related.

Your symptoms could be, Hay fever, sinus related, dental, new medication perhaps.

Maybe try taking a hay fever tablet if you can to see if that clears it up any. And in fact, for anyone else who suffers things like runny nose, hay fever tablets were another one that helped me. I just remembered that was a new issue post stroke I’d never suffered from before.

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I had the same after stroke
had to see imperial hearing every 3 months, except this time I have lasted 6 months… pre-stroke it was once a year

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I have had runny nose (good side as I write) almost every day since stroke 1 yr 7 months ago. All I do is take supplements and Vit C

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will let you know when my ears have been looked at
Hope it is wax

Wattsy

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Hi Simon,

my Chinese Dr. points our that I only have a sniffing / running nose early morning or late evening. Once the body activates for the day, and the body temperature rises naturally, I then rarely sniff. He says it’s normal; everybody has such a pattern. But I don’t think I ever had anything as persistent and acute pre-stroke. I rate it low priority in the big picture, but would love to know what’s going on

ciao, Roland

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It appears that there are, in fact, quite a number of us snifflers and snufflers with runny noses.

If we were to form a group, or a band, we would likely wield great political power.

All we need is our own gruppen fuhrer and the world will become ours, friends.

‘All done in the best possible taste,’ of course, as the late great Kenny Everret would have said.

. . . or it might be that my wife feels she has put up with me for long enough and it is the cyanide/strychnine mix in my bedtime drink that I can taste.

Was that a scream, I heard coming up, from the cellar?

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Hello Jan, are you on statins? I’m probably guilty of blaming them for everything but I do think they can cause the sensation of mucous in the throat.

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Yes I was put on statins, 40mg, not happy with being on them. I stopped taking them two weeks back, mainly because of weakness in my legs, but have noticed no change in the mucous department.

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Sometimes it takes longer than a couple of weeks to notice a difference. I was put on 20g to start with because I couldn’t take other brands before. Seemed OK so they doubled my dose. Tried to persevere but I felt worse each day. I went back to 20g after 2 weeks but I feel this is now effecting me. I can’t stand taking them they make me feel old. :face_with_diagonal_mouth:

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Hi Simon and anybody else looking in, I know the subject of sour bitter taste in the mouth and excess saliva has pretty much been done to death, but in the hope that there is now new information surfaced i raise it again, I had both it all returned to normal, then I had to have a colonscopy and the prep for that is the worst thing ever it rips your insides apart and no doubt cleans out all good bacteria from your stomach, anyway afterwards the acid taste and excess saliva cane back twice as bad, been to the doctor who has put me on a short course of medication to treat acid reflux not far enough in to tell if they are going to help. just about everything i eat or drink tastes disgusting.
If anyone has any tips or information on things which can help or has any fellow sufferer found it got better on its own i would like to know meanwhile eating and drinking because i need to but it all tastes vile nothing tastes like it supposed to i know for certain i am not alone my doctor really did not have a clue so we are starting by doing the most obvious things first finger crossed.

all old ground i know but got to give it a go

Thanks all
Wattsy

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Hi
I have come across a device called iqoro which is a non surgical device to treat hiatus hernia the cause of acid reflux it was approved by nice in 2022 and is available on prescription through the nhs it will it seems greatly assist with the sour mouth and excess saliva in the mouth. have no idea if any doctor will prescribe it at £116 plus vat but intend to find out. if not will buy one privately.

I will try abosolutely anything if it helps, even having an op to cure it which would cost the nhs considerably more ,

Regards
wattsy

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I’m afraid I have no other magical solutions either, but you could try rinsing your mouth out with salt water a couple times a day.
Did it clear up after the first time post stroke? It could be its just going to take time again to settle down and you’re just going to have to be a little more patient. I hope it clears up soon for you, it is a horrible side effect of stroke :stuck_out_tongue_closed_eyes:

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Hi there

from what I have been reading acid reflux which is what i think i have is caused by hiatus hernia, but there are so many people on this site who have the issue following a stroke and i cannot believe they all have a hiatus hernia even though is is very common. so I guess first thing is to find out if i actually have one or not, sadly this means going back into the bear pit of hospital appointments and procedures i do not really want to have.

The issue did clear up post stroke and so as you say it may need a bit more time fingers crossed, but not very hopeful. assuming you are hernia free have you ever found out what causes this in stroke victims is it simply a brain stomach malfunction of unknown origin never to be determined?

Thanks as always for getting in touch if i discover anything at all in my never ending research i will post it up here for all to see, but probably i am only treading in the steps of many who have gone before me .

regards
wattsy

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Many people get acid reflux without having a hiatus hernia so, as you say, you need to find that bit out first. If things settled after your first stroke this might suggest that a hernia isn’t the cause but always wise to get checked out properly. Let’s hope it is simply a time thing & it’ll settle all on its own.

Best wishes

Ann

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As far as I’m aware its just disrupted/damaged brain signaling to that part of the brain that controls those senses. If the damage isn’t permanent then it will recover with time. Yours clearly wasn’t permanent as it did recover the first time.

If a stroke damages the parts of the brain that interpret information about taste and smell from your nose and tongue, it causes changes to your senses of taste and smell. Food might taste different or taste bad (dysgeusia). You may be able to taste fewer flavours (hypogeusia) or none at all (ageusia).

Coping with changes to taste and smell | Stroke Association

(Coping with changes to taste and smell | Stroke Association)

How long ago was the colonoscopy? Could the taste and reflux be anything to do with why you had to have it or did that come back clear?

Please don’t go self diagnosing, do you have a hiatus hernia? You could end up doing yourself more harm than good if not. And that is the last thing you want on top of your stroke recovery symptoms. Besides it could be gallstones or any number of other things.

Did you read up your leaflets from the colonoscopy, were you given any?
Colonoscopy - What happens on the day - NHS.

Try having a couple mints after meals or a cup of mint tea as the heat combined with the mint will also relieve any bloating effects. I rarely need it these days, but when I do I use Puka’s 3 Mint tea.

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Hi again
the colonscopy was 4 weeks ago i had it done as result of my all body ct scan which was suggested as they found a little thickening of the colon and wanted to rule out bowel cancer. they did not find any cancer took out a couple of polyps for biopsy which were also clear.
the device i am going to try fits into the mouth and you do exercises with it in the mouth it has had enough success for nice to make it available but i suspect that was done to take some heat away from the nhs. there is no pill swallowing or ingestion involved so worth giving it a go.

i dont know if i have hiatus hernia and you quite properly warn me to find out and not self medicate. there were a whole bundle of notes and side effect warnings in the colonosopy
leaflets but nothing about acid reflux. eating and drinking are an issue the more i eat and drink ia simply pushed my stomach acid further up and into my throat. so the flap that is supposed to close is clearly is not working for whatever reason…

i will certainly try mints and mint tea but do not have bloating just a constant stream of foul tasting acid phlegm.

I realy do appreciate your input and will keep you informed, bottom line seems to be learn to live with it as many others have

wattsy
xx

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I should have looked it up before I opened my own mouth :rofl: :rofl: :rofl:

I seem to recall this being discussed quite some time ago; might be worth doing a search on here, it does look familiar :slightly_smiling_face:

Thanks Ann best wishes to you as well

Wattsy

Hi
cannot imagine my doctor prescribing one of these without a confirmed diagnosis which could take forever so have ordered one if it works great if not i will be a few quid lighter and a bit wiser.
wattsy
xx

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