Hey all, so first time writing here, but need to vent as i feel alone and unheard (not believed)
So my story begins back in 2001!I was 24, with 2 kids under 5 a few months into a new rship after a tumultuous marriage and life was going good. Anyway roll back to 2000, i went to the gp as i needed checked over (domestic violent episode hence leaving marriage) and asked about changing my pill while there, and was put back on one id previously been on when i was 17, i told him about the previous issues with it (dizziness and black out spells) and was told “youre older now, persevere” hmmmm i thought, but he was a dr so i listened to him (didnt have internet access at home back then so…) However approx a year later i started having numbing to face,out of no where, which rapidly went down my right side, so the point i couldnt move that side of my body, i fell over at one point, luckily when i got to the top of the stairs, it had came on that fast. Absolutely zero pain at all. This happened every day over a week before i got to see a gp. He told me id had a series of TIA’s, i didnt have a clue what they were and when he said id have to stop the pill i was concerned about that (i was young) he said if i took one more i risked having a full blown stroke and might not be so lucky! I remember walking back to my parents house, with my then bf, numb and confused and generally not comprehending how…anyway i stopped taking the pill and life went on.
I relocated to Scotland and life was going good. I had 2 more kids and became a single parent again. One night, in Feb 2008, my 2 toddlers were in bed and i was doing my usual routine and boom, it happened. No pain, before during or after, but the numbness etc, this time accompanied by speech and language issues. I tried to write something to my daughter but couldnt, couldnt hold the pen, had to hold my right hand with my left to do so and the word i was thinking of is not what worked its way onto the paper. I was scared. I was alone with 4 kids under 10 and didnt know what to do. I dont remember much of that night or how long the numbness lasted but the next morning i still was confused, my right side numb and weak still, so i called nhs 24, a new thing at the time, who told me to go to my gp straight away. Which i did. That is when i found out the gp from 2001 had lied! He put in my notes that i had a migraine attack! I was shocked, angry, confused and just didnt know what to do. How the heck would i know what a TIA was, why would he have immediately told me to stop taking any combined pill etc etc. I was sent away and told to come back in a week if symptoms hadnt improved!!!I was stunned, not just at being sent away but at the big lie that was then affecting my treatment. As you might have guessed a week later, no improvement. So i went back to the gp, where i was told again it was a migraine but theyd send me for tests etc. It took months for tests to begin,Reflex tests, brain scans, it was june/july before a heart scan was even done! I heard nothing back, even asking the gp and nothing! 2 yrs later i get an appt for the heart clinic only to be told heart tests were normal. I was not amused, 2 yrs to tell me scans i had 4 months after the fact were normal!I asked about brain scan results to be told " the left side of the brain shows slight abnormalities, but that could be normal for you", to which i claimed and it could also be signs of a stroke given it was the right side of my body that was affected! It took over a year for me to get over that incident and there they were still being dismissive. I had another couple of minor episodes over the years, but i didnt bother to go see a gp, what was the point, to be almost scoffed at, eyes rolling back in their heads and patronised when id tell them the dr lied??
So, 13th September 2024, which was a Friday, so ill never forget. I had a lovely day with my 2 youngest girls,who where then 19 and 20, when suddenly again, i got to a seat quickly and waited for it to pass, no pain, no warning nothing. It eventually did and i went home. I had a date that night and had told the guy what had happened that day. Hed had a stroke previously himself so was concerned and instead of going on our date, he took me straight to the hospital. I said wasnt worth it as it had passed. He insisted. Well within minutes of me getting through the door it happened. Right in front of the drs, i was rushed through and within an hour i was treated for a stroke!Xray came back no clots in brain luckily, but i was kept in. Overnight woken every 15 minutes, then 30 minutes until about 6am 
My bp kept dropping so i HAD to drink copious amounts of fluid etc. BUT the next day the dr came around and said there is no mention of tia’s in my file even from 2008!They still put migraine! I was livid. So he said because i made “such a quick recovery” they were downgrading it to a tia, i was given medication for life and told id be sent for an mri on the monday, if it came back clear id be going to Neurology (nothing said about if it didnt) and i discharged. I had the scan and 2 weeks later my gp called me and said i needed another scan asap as new lesions had been found and to call the hospital up and chase them for one. So i did, no one had any record of me needing another scan!I got through to one dept and the woman said she was just typing up a letter for me, to say stop taking the medication. My condition had been downgraded after discussion between the dr id seen at the hospital and neurology, to a migraine! I was and still am absolutely fuming! So what are the “new lesions on the mri then” Oh that could be from the scanner itself, we dont know…ermmmmm so what IF they arent from the scanner, either way should a new one not be ordered? How can they discuss me, without seeing me or following up with me? What about neurology?as dr said if nothing found then…nothing.
I went back to my drs and pleaded with them to sort it out, my speech wasnt back to normal, my memory either and the fatigue was unreal etc etc…my speech got so bad at one point i could barely string a sentence together without a stutter/stammer, i developed tics and my word recollection I cried to the gp about it, again pleading for help, i was scared and my depression was suffering by this point too. She said she would refer me for a scan with dye…I had to self refer myself to speech therapy, but took time away for a severe chest infection, in which time my speech improved but still have memory issues, and speech and language isnt back to normal, especially when i am in stressful situations, the stammer comes back, something i have never ever suffered from. Almost a year on and i am still waiting neurology and the scan with dye!!
Id asked the gp manager to make notes on my record during lockdown, giving her a very long written letter of reasons etc etc and yet nothing was done, ive explained to so many drs about the lie, yet nothing was done.
My treatment was shoddy at best (apart from that initial night in Sept 2024). I do not believe for one second, i have been that unfortunate to have thee most rarest type of migraine ever several times over the years let alone once (note ive had migraines all my life, so i know the diff…even silent migraines dont do this!) I am hurt and angry and self helping myself (hence improvement in my speech, researching etc)
I have had decades to research everything. But I am lost. Not with the info but with the help and recognition of what was said and everything that followed and continues to be to this day (even writing this has taken time, due to my word finding, but i got there and hopefully not too many mistakes). Who can i turn to when none of the professionals will even listen to me or entertain what i am saying to them? 
Anyway sorry for the long “rant” i just needed to get it off my chest. If you made it this far, thankyou. If you dont believe me, please dont be nasty (ive had enough negative comments to last a lifetime)
