So sorry to read about your experiences. It’s a truly awful chain of events! I know it’s no help to you now but I would suggest bypassing GP’s for this sort of problem and going, or getting yourself taken, straight to A & E. You’ll be triaged but if the person who does that is any good at their job you should be whisked through the system then. Certainly that’s what I did and I can’t fault the service I received.
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Hiya, It was a&e i went to in September, they were amazing, it was the dr & “care” there after that wasnt so good/ The Dr on the ward is the one who decided along with Neurology Dr, without seeing me, that id had a migraine, based on history and how quickly id recovered 
(Research shows if given treatment within 4 hours of onset, then can make a full recovery within 24 hrs. Plus theyd need to see me to know if id made a full recovery). My GP are usually pretty good, only so much they can do ie write/call hospital etc. But ty for your words of encouragement.
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Hi all so a a little update. Ive finalllllllly got an appt through for the scan with dye for the 27th Sept, at a hospital absolutely miles away but hey ho. Only took them over 5 months after pleading with my GP again, to actually allocate that (Over a year since the episode). Im praying that the scan actually shows something up, f it doesnt then i will be shocked but also not surprised. Shocked because i still have issues but not surprised because it has taken so long.
Im getting a CT Angio aortic arch and both carotid arteries tested. So not sure how far/deep into the brain that goes, but hopefully all the way. It will be a long day. Between the journey (not great with a slipped disc to boot) and then having to sit about for an hour afterwards before the long drive home. But hopefully itll give me some answers. Will update further if any news, or once had the scan and get results.
Thankyou to all who have written. And apologies to those who i have not replied to. As you can imagine, im in a heck of a lot of pain atm, so not online too much, but ty again. TC all
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That’s great news.
Wishing you all the best.
Can you get someone else to drive you or is public transport an option if it might cause you discomfort to go to this hospital?
Take care and looking forward to the update.
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Unfortunately no one else. And public transport is a huge no as i have COPD and every single time i have had to get a bus (and i literally mean every time) I get sick, with pneumonia, which i really dont need on top of everything - plus my morning cough is bad enough, imagine pneumonia and a slipped disc eeek. So yeah, driving myself is the only way unfortunately.
I dont know why they picked that hospital, as i have one a 15 minute drive from me. I can only surmise its the earliest appointment they have But ill let you know how it goes 
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Yes, it could be the availability or maybe the one you have been referred to specialises and has specialist equipment.
Take care.
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Great news that you have got an appointment even if you have to travel to it. They do that a lot now based on availability i think. Trying to get waiting lists down.
Hope you get some answers.
Ann
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The one closest to me has all that equipment too, know this as had the contrast dye done on heart there in 2008 (Its also thee biggest teaching hospital in Scotland), i might give them a call tomorrow to see whats what. If no availability at that one then i will just have to suck it up, not take my pain killers and drive Thankyou
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Yes its not the first time ive been sent there for an appointment, another one for something else, an emergency appt, i had to wait 3 months for! Thank god it turned out not to be anything serious (typically for me, something very rare, but harmless lol) with that length of a wait
I do wonder though, if this appointment is finally happening due to the GP, the speech therapist or the mp? guess ill find out when i go
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Hiya, managed to get appointment changed to my local Hospital for the 3rd October, so only a couple of days later. Apparently its a 40 week wait for this kind of scan, hence waiting so long since gp referral, which is shocking given why it was requested, but hey, not long now. Just thought id update
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That’s great. Thanks for the update and pleased you won’t have a horrible trip to make
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Evening all
Sorry just replying, been feeling off past few days. My slipped disc still giving me issues and still having issues with speech, but not as bad, mainly when im tired or stressed, though sometimes it just happens for no reason. So i finally got the scan with dye done (5.5 months after gp asked for one, almost 13 months after the attack) and as i suspected apparently nothing showed up, as i asked my gp the other day. She just said looks like they are thinking ive had “some kind of brain spasm” hmmmm no, lets get this looked at etc. So i looked it up myself and there are several ways that you can have a “brain spasm” following a stroke, bleed on the brain (which havent had), brain injury (again not had) or migraine (as mentioned above, none of my symptoms point to that) also fnd can cause that but doesnt explain the rest
I really dont know what to do, im still waiting on neurology but tbh not holding my breathe for them either given all the bs ive had to endure, ill prob get there and theyll not listen (as always) and still say migraine or maybe im imagining it or self inducing it 
I have however spoken to my therapist and support worker and they along with family and friends are going to write letters of support for me, saying what i was like before, during recovery and now, the changes its made that they have physically witnessed. Surely the doctors cant ignore the testimonials of professionals one of whom has known me a lot longer than even my gp’s, let alone my family pov? I hope it helps either way.
Anyway just thought id give a quick update. And hope every one is doing good
(sorry deleting a few as couldnt work out how to edit, to add more and correct spelling lol)
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@scotschik you have been very poorly treated no wonder you are fuming. Many doctors suffer a god delusion! And need to be brought down a peg or two!
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Hi Mich, yes i got that feeling the day after the initial attack, when the dr (young enough to be my son) was speaking to me like i was an idiot and making it all up when i was explaining about how my records where wrong and thats not what was said. Im still at a loss as to how they could have downgraded something so important without seeing me, how they didnt do further mri’s to rule out scanner error, how it took over a year afterwards to do the scan with dye (even then it was through my gp i got that done) and how im still waiting on neurology, the very thing they said id get if “nothing showed up on the mri” - if it really was a scanner error then why am i still waiting for neurology? ugh i could go mad thinking about it all, i really could
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To edit your posts/replies, click the three dots … in the bottom bottom right of your post to expand the menu bar there. Then just click on the pencil symbol to edit🙂
So sorry they haven’t managed to diagnose you yet, I do hope neurology might figure out what it is. This where it shows medical science doesn’t know nearly enough about the brain. If only medical researchers could spend more time with patients they might learn so much more.
Lorraine
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Hi Lorraine, thank you. Yes i tried that but there was no pencil option showing up, only the flag, delete,link so i thought i must have been missing something
Most definitely. Im feeling like ill never get to neurology tbh, as they wont want to have to try to explain why they made a decision without seeing me ( as yes i will be demanding answers) The wait is meant to be up to 18 weeks…this is the longest 18 weeks ive ever endured But yes the brain needs a lot more research and drs need to learn to listen to the patients more in my opinion Too many are dismissive or think they know our bodies better than we do unfortunately
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So guess what i got today?? An appointment for an MRI on my head!!!Referred from Neurology!!! Surprise surprise!!! Now is this them finalllllllly doing the scan they should have redone over a year ago? Or did something actually show up on recent one? Is it because speech therapy wrote to them? Maybe the mp’s letter spurred them on OR is this them finally pulling their finger out?? Bit late if it is eh! What do you want to bet those other lesions might not even show up now with it being 14 months after the fact when i finally get the scan. Its yet again at a hospital further away so going to see if i can get it changed, if not then roll on the 6th November
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Good that you havr your MRI appointment. Fingers crossed it gives you the answers you are looking for.
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Pleased for you scotschik.
Doesn’t matter what triggered it, take it
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