Am I experienced? I'm 79, had my second stroke over last weekend -- and that's not all

I’ve been going through an intense learning experience recently.

Four years ago I had a stroke that affected my right side. Mobility and dexterity were completely gone.

My wife has looked after me and as a result I have made gains. I can move my right arm and hand a bit, also walk a few steps. I was passed fit to drive an adapted vehicle.

It certainly looks like progress is possible.

But this is the bit where somehow we seem to have got on board an unexpected, knuckles clenched holding on tight, roller coaster ride.

One morning, a few weeks ago, I was greeted with a stoney stare from my wife. No matter how much I begged she refused point blank to talk to me. Whatever I had done wrong it must have been pretty bad for me to deserve this.

In desperation I rang her daughter who told me she could do nothing. She was too busy at work. Something was definitely wrong. I needed help, my carer wouldn’t speak to me.

In desperation I ran 111. After a few minutes I gave up, there was nothing useful coming from that direction.

I decided to ring 999, explained I was a stroke survivor and that my carer was refusing to talk to me.

The operator asked me a series of questions and said it might take some time before an ambulance would arrive.

Then suddenly she said an ambulance would be with us in 10 minutes.

And it was.

The two ambulance personel examined Hilary, had a discussion together, told me it looked like she had had a stroke, something I hadn’t realised, and they were going to take her, with blues & twos, going at speed to hospital.

I told them I’d get there by car. They warned me not to try to keep up with them or I’d be breaking the law.

The roller coaster ride had begun.

When I arrived at the hospital I was seriously impressed. At the main entrance was a huge landing space big enough for several helicopters.

I got my scooter out of the car and set off to find my wife. Once in the hospital I asked where she was. It is a huge building. It was lucky I had my scooter to help with my mobility.

When I found her it turned out she had been scanned on arrival, thrombolysed and had received a second scan.

She was talking again and very much back to how she usually was. It was such a relief. She was, after a few days, moved from the acute ward to another hospital.

I was able to visit her at both hospitals because of my car and scooter. After a few weeks she was good to come home. It was great to have her back again.

But this is a roller coaster ride.

There’s no time to take a breath. Nope can’t get off the ride yet.

Hilary was upstairs on her computer but something wasn’t working properly so she phoned me downstairs to tell me.

I told her I’d be right up.

As I started on the stairs I realised my right leg had gone back to being unresponsive. My arm had packed up too.

I couldn’t turn around so I had to continue up the stairs. Hilary saw me struggling and phoned for an ambulance.

I managed to get back downstairs and sat in my wheelchair. I could see I was going to end up a basket case.

This was just too much, I was back to being scared and uncertain.

Both Hilary and I would end up being carted off somewhere.

The ambulance arrived. I was taken to the same hospital, with the helipad, where Hilary was treated. Same ward too.

I was warned that there was a possibility that the procedure could be dangerous.

What a thrilling ride!!

I was scanned and after an hour thrombolysed. Eventually another scan indicated all was stable there were no bleeds.

A few days later I was in a taxi coming home.

It’s the middle of the night again and a time when I want to get it all written down.

6.00 am now.

A nice, calm, uneventful day will do just fine.

May your adventures end happily.

keep on keepin on

:writing_hand: :grinning_face_with_smiling_eyes: :+1:

I have to thank Aintree University Hospital for the speedy and effective treatment both my wife and I recently received.

I hope that sooner rather than later this will become available throughout the UK.

I’d better get my tablets together and prepare for the new day.

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I’m delighted to hear that your latest adventure ended well, @Bobbi. Aintree University Hospital appears to be an absolute gem, but I really hope that you and @HHilary don’t need to see the inside of it again for a long, long time.

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@Bobbi i don’t know who you’ve upset but think you’ve been a little too mischievous :grinning_face_with_smiling_eyes:. But on a more serious note I am very happy to hear that things are on an upward turn after yours and Hilary’s recent strokes. Glad to hear you’re both back home together annoying each other as married couples do and of course looking out for each other too.

Now you must take things easy and not get too mischievous again so you can both stay home where you belong.

Sending best wishes to you both.:heart::heart:

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Bobbi - Both you and Hilary @HHilary are amazing. How you look after yourselves, live your lives and share your experiences is truly inspirational. You do all this with a smile on your face - yes, it comes through via the ether and you just keep going.

You don’t need me to tell you this, but please, both of you try and get some rest. You deserve it and you may not think it, but you need it!

I love you both :heart: :people_hugging:

Love the poached eggs tip :slight_smile:

Have a lovely day!

Namaste|
:pray:

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Ahh @Bobbi, you and Hilary are really going through it at the moment! I’m sorry you’ve had another stroke, it sounds like Aintree is a great hospital though and it great to hear you’re back home with Hilary again.

Take time to rest and both take care of yourselves!

Anna

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Sending my best wishes to you and Hilary. Take care

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Forgive my confusion Bob, did you have a secondary stroke or was this something different like a TIA? The scan was clear, yes? Or was this checking for a bleed after being thrombolysed? Or was the threat because being thrombolysed on anti-platelet medication could, potentially, cause a bleed?

Whatever the scenario, I hope that things settle down for you both.

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@Rups

Hilary had a stroke and about two weeks later the same happened to me.

Hilary’s speech was knocked out, I lost use of my right side.

We were both lucky and were scanned, diagnosed and thrombolised wthin about an hour after reaching the hospital. We both had excellent outcomes and a further scan showed clear, with no bleeds.

Both back home now somewhat knocked out by it all but in good shape.
It could have been so much worse.

Aintree is set up for acute cases and has a rapid turn around. As soon as one is stable you are moved on often to another hospital for aftercare.

It was explained to me that thrombolysis is not without risks. There is the possibility of a bleed with a fatal outcome.

So though the result was good it is no light matter.

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@Bobbi I’m happy that both you and Hillary are out the other side and on the right track again and so glad you have a decent local hospital with good services this makes a world of difference. Truly an inspiration with stoicism and determination to keep on going.

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Oh @Bobbi it seems so cruel that you had a second stroke and that Hilary had one too.theres someone somewhere that you’ve really offended!

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Sending my best wishes to you both, you’ve certainly been through it. Take good care.

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I guessing a lot of us have had similar journeys. What you described for your wife happened to mine in the space of just 3 days from an acute stroke at 2am to back home having had thrombolysis, thrombectomy and a carotid stent. Glad to say no further events since. But like you the Thrombomonster hadn’t finished with us. I suffered an eye stroke which was initially dismissed by both me and A&E until the Opthalmic unit referred me to the TIA unit. After many tests and scans it transpired I’d had 3 silent strokes and ended up having a carotid endarterectomy to prevent more. Apart from very minor vision problem no other issues that I’m aware of so far. 3 months later I’ve had the all clear, back on the road, still wondering what on earth was going on!
I’m seriously hoping the rollercoaster has been condemned!

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I am so glad that this nightmare had an happy ending and your both back in your home. Its good to see you still have your sense of humour. Good wishes to you both

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good luck Bobbi and Hilary! You’ve sure been through it!

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Stay strong Bobbi and Hilary. Love you both. And now a question from me! 4 years ago I suffered from a bleed on the brain. I now walk short distances with a stick. Drive my car locally short distances. My stroked arm and hand have improved but I still wouldnt trust a glass of wine or a coffee in that hand. So life judders on with my amazing husband doing the cooking any long car journeys etc etc. We go out for coffees lunches etc and are quite sociable people.

Today we went out for lunch. My husydrovr aroud 5 miles to the pub where I ate a small lunch of salmon and salad plus a small glass if wine! Sat around chayto our friends for around an hour and a half and was then driven home. All very pleasant. So why when I arrive home did I feel so tired I struggled to get in the house, collapsed into a chair and fell fast asleep for around an hour then woke up feeling lousy and have only just feel as if I am coming back to normal? 4 years to get this far?

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Sounds like we have a great deal in common @Apple and, I suspect, much to be thankful for.

I wouldn’t, couldn’t, recommend stroke but after a while it is possible to pick up some of the pieces and begin to put together some sort of a life, interspersed with judicious rest breaks.

Just waiting for a take away to arrive as I write this. We will enjoy that together before settling in for an hour or two’s TV.

Viewed the BayeuxTapestry on BBC iPlayer this afternoon along with a little doze mid program.

keep on keepin on

:writing_hand: :grinning_face_with_smiling_eyes: :+1:

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I’m not surprised, it is a long tapestry.

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I am not sure if this is a wise thing to do Bobbi, but hey heck.

In reading your comment above, and sometimes just thinking about some of the comments and experiences, and not forgetting what happened to Mum, a few phrases come to mind …

… I don’t wish to cause offense or upset, so I will say read with caution and do not read if easily offended"

Only continue to read if you accept responsibility for your own actions!
  • What doesn’t kill ye, makes ye stronger!
  • Character building

Sometimes, this is how I have to think to allow me to retain my sanity.

:pray:

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I like to quip, what doesn’t kill you, doesn’t make you stronger; it makes you weaker, more in pain, more miserable and less capable. That’s my sense of acerbic humour though. :joy: I think my perspective is more likely to offend though, yours is mostly harmless. (Another DA reference).

Character building, aye, I agree with that.

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This sounds like fatigue @Apple I still struggle with it almost 5 years on. Socialising is the one thing guaranteed to bring it on. Mad isn’t it. Hopefully you feel better today.

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