My husband hashas hid third stroke three weeks ago. Three months before that, he was experiencing a tingling feeling on the left side of hos fsce. We told the gp, who said it was caused by yhe second stroke 18 months before. Three weeks before his stroke, he had excrutiating pain in his left shoulder, like a knife going in. The pain was so bad I called 111 who sent an ambulance. Theychecked everything, were with us for over an hour. The lead said it could be a clot but a and e would laugh if they took my husband in. The pain continued occasionally over the next three weeks, and then he had a stroke. He is now experiencing the tingly jaw again. We are terrified it is the portent of anotherstroke, but even if we were taken seriously, what could they do?
Wow fenland sparrow
I can only imagine the worry you both must have. You ask what they could do & I don’t know obviously im not a doctor. More thinners?. But I don’t know. There are risks with that too. Has you GP said anything?
I think satisfy yourselves as much as you can. If u r worried get to a&e & stay until they see you. Your husband is lucky he has you to watch out for him. I fear ive not been much use but hope you get the professional help you need.
Please say how things go?
If you think he may be showing symptoms of another stroke you need to go to A&E. Your husband knows his body best & it doesn’t matter if it turns out to be a false alarm. Better that than another stroke. If he is having repeated strokes he needs more tests to try & work out why. I had symptoms before my stroke that I ignored as I didn’t know that’s what they were. I would always get checked.
My GP also said to me they want to know about anything like you mention.
They will see you in A&E & they certainly won’t laugh. If the paramedics thought there was a possible clot I am amazed they didn’t take your husband to be checked.
Good luck & let us know how you get on x
Hello @FenlandSparrow - nice to meet you and I am very sorry and angry you have found yourself in this situation. Angry because from what you say, there have been missed opportunities to try and address this issue.
There are a few things that need to be addressed immediately.
- Your husband needs to be checked
- As a stroke survivor he should already be on some post-stroke medication that helps to reduce the risk of further stroke. If he has had 3 strokes, what medication has he been on until now?
- You need to talk to your husbands GP and explain you are not happy that this has happened given you already discussed this with them and raised concerns.
- You must lodge a formal complaint regarding the paramedics incident. It is not acceptable that your husband was not taken to A&E after the lead had suggested a clot might be responsible for the pain that led to an ambulance coming.
This is no laughing matter and the NHS has to explain why it happened and why your husband ended up suffering pain for a further 3 weeks and then had a third stroke.
Don’t be terrified - take action.
You will be taken seriously and they can do preventative medication to reduce risk of further strokes and also to help manage any consequences of past strokes.
Please do not sit there thinking who will listen. I’m listening, but I can’t do anything for you other than urge you to take ownership of the situation and act fast.
If you explain what you have done here, you will be taken seriously.
I have given you 4 things you can do and I hope you will get a chance to at think about it and see if it is something you would consider.
Just to be clear, if I was in your shoes, I would not hesitate to act as I suggest. Hopefully, I am doing this for my Mum for whom I am one of the carers.
If they don’t listen, you repeat the request. Don’t sit back.
I have called the GP 3 times in the last three weeks and I have called 111 today because it is the weekend. Tomorrow I will call the GP again.
We will be listened to and we will be heard.
Up the Stroke Survivors!
Up the Carers!
Namaste|
@FenlandSparrow Oh my this is an awful time you are both experiencing. Your GP appears to have the intelligence of a toddler. GP’s do not understand how much we worry when we are not informed. My practice is so bad i feel I would be better finding a new one. I wish you well and good luck 
Potential stroke deserves full attention by paramedics, especially since your partner has a stroke history but even then, any warning signs need to be addressed as soon as possible. I know the feeling of being dismissed, the paramedics who attended me suggested I go to bed and see how I felt in the morning but then cerebellar stroke has different symptoms and is rare, so it was probably the first time they had encountered it. I demanded going to A&E.