9 months post stroke

Hi, I’m Keith, it is now almost 9 months since my stroke which has left me with dizziness (which my stroke Doctor told me will be with me for the rest of my life) which is devastating news, also my left arm has limited movement, however, I can cope with the arm, but my dizziness continues to give me problems which is depressing.

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Hi @keithmorgan

It’s funny how the med ‘professionals’ with all their book knowledge make these predictions that have such a low track record of being right :frowning: and - worse do such harm to an already elevated emotional fragility :frowning:

Hello & welcome :slight_smile:
Sorry you’ve had reason to join us. Now you are here the welcome post might be of relevance but searching function (and the community members) will find/ signpost answer to most queries

Your dizziness may be eternal but equally it may not. It could have roots in neuro- causes or BP & blood pressure meds or vestibular or … Each is a path to explore. Search on here Balance, dizzy et al will show many discussions that may unlock something useful

With your arm neuro plasticity will be unhelpfully building compensations (that may be vital to coping now) and encouraging Learned Non Use. An enemy to be fought at every opportunity - see NeuroPlasticity as the ENEMY!

9 months is early in the journey for some recovery paths - progress always follows effort (but the pace can be glacial and if one looks over too short a timescale the 2steps forward 1 back can seem a dominant feature - the welcome say more

Caio
Simon

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Hi Keith,

I’m guessing your stroke was in your cerebellum? Keep stimulating your arm, perhaps lifting dumbbell weight? For your balance & dizziness you may want to study the vestibular system. How are your ears? listen to music, for example, better still sing and stimulate your vagus nerve…There’s plenty for you to be getting on with,

good luck, enjoy your recovery, ciao, Roland

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Hi @keithmorgan and welcome. All good advice above and I’ll just add another bit :wink:
Nothing is set in stone until all avenues have been investigated. I suggest you see your gp and have them treat it as a seperate condition to be investigated as it should. This should include full blood test including nutrient levels. That’s important to check because you only have to be low in one nutrient to trigger this symptom of dizziness. For me it was Folic Acid. I was put on a two weeks course of high strength Folic and my dizziness subsided within days.

That may or may not be the case for you but you can understand why I suggest going to your gp for a proper full investigation, before you’re conned into accepting you have to live with this for life. That could still be the case, just don’t accept a doctors assumption without an investigation first. That way could be detrimental to your health and life!

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Hi @keithmorgan

I just wanted to pop on and welcome you to the community. I’m sorry to hear about your stroke and the difficulties you’re facing at the moment. I can already see some great advice from fellow members which I hope will be of benefit to you.

If you need any help whilst using the platform please don’t hesitate to tag me using the @ symbol.

Anna

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Hi Keith and a big welcome to this community. We are a merry band of stroke survivors and their carers and families. We have all suffered different types of stroke and are all on very different roads to recovery. There will always be someone here to offer some advice and information, so feel free to jump on and ask away. Look forward to hearing from you.

Regards Sue

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Many thanks for all your encouragement, I really appreciate the advice you have provided. Keith

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Hi keith,

I’m 6 months in and call this dizziness ‘everdrunk’ as that what it feels like even though I don’t really drink any more as there isn’t much point as I always feel 3 drinks in regardless. everyone I chat to at stroke groups says they have it too and that no doctors can help - tell you hat it makes job interviews a nightmare as I’m desperately seeking employment - the only times i ever feel like i’m not a stroke survivor is when I’m focused on work but no one wants to employ a stroke survivor: quid pro quo!

hang in there buddy

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@keithmorgan hi & welcome to the community. Sorry you’ve had cause to join us but you’re very welcome now you’re here.

Dizziness does seem to be a common problem post stroke. I have it & have seen many medical professionals about it. Sadly no answers so far. Initially it upset me greatly & I had many down says over it. As time has gone on I have got more used to that feeling that i’m on a boat all the time. Hopefully you will find similar.

It would be interesting to know some context behind him telling you that you’re stuck with it. Have they done lots of investigations? Is it specific to your type of stroke for example.

Best wishes

Ann

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