? Where to find out about the research activities of the Stroke Association

Stroke research
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Hi @Stroke_Research Dan :slight_smile:

Could you signpost any terms of reference/ charter / mission & governance info covering the SA activity in the research field please. Also where sponsored research is published accessible to us :slight_smile: thnx

There are topics that frequently arise in our discussions and I’m fairly sure that as a community we would have interest in knowing what research has been conducted (beyond those lists on page 59 of the report & accounts) with what results or could be influenced to be conducted such as:

  • Central post stroke pain

  • The efficacy of, necessity for, and potential scandal in prescribing of statins

  • The possibility of migraine symptoms being a precursor to strokes

where do we look for how that research transitions into effective interventions benefiting us ?

Also of interest is I gather the stroke association spends approximately 2.5 million a year on research and 8 million a year on fundraising, 8m on influence and awareness (report an accounts page 120)

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Would you know where to find further analysis of those figures (beyond the notes to accounts on pages 136 et.seq. ?

Ciao &thx :slight_smile:

@Nigelglos @Poozle

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Just looking at the titles of the entries in the Research Project section, I can find only one item on pain of any sort since 2018.

Given pain is such a widespread outcome with stroke, that seems surprising given how many people may benefit from further research ?

Central Post Stroke Pain can impact up to 8-12% of those with a stroke, it leads to cognitive and memory decline and can significantly impair regained movement. Self harm and worse are not uncommon. As many as 80% will not respond to medication. There is no known cure and it appears there is a complete absence of any information to guide on living with the condition in the short, medium or long term. This latter item and a more formal review of all available research studies on most effective medications would seem ideal for a university student or similar to take forward.

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Good questions, and interesting to see the breakdown of expenditure Simon. :+1: Hopefully it will stimulate a conversation! :crossed_fingers:t3:
Much of recent stroke research seems to come out of China…… one study in particular (which is too much of a challenge for my stroke vision, and my medical knowledge, to absorb in detail) points to the interactions of brain/gut in stroke patients, both in cause and effect. Can be read here : https://www.sciencedirect.com/science/article/pii/S0753332222014159

Keep us posted on the research quest.

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Hi @Stroke_Research
Are there any updates to the questions posed here ?
Many thanks
Nigel

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