What no one tells you about a stroke

I had my Stroke in September Sue so it has taken me 10 months to get here. I think my age has helped as I am only 54 and I got to hospital quickly enough to have thrombolysus trearment which was a game changer. I know not everyone gets treatment inside that critical 4 ish hour window. I saw almost immediate improvements and without it the journey would have been a little tougher but regardless of how tough things get I cant give up. Gotta stay strong and positive.

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That’s so good you got to the hospital quickly and were treated fast I’m sure that’s aided your recovery you think? Those that were lucky like that who I have spoken with seemed to have less impacts, it’s a shame this isn’t always possible.
When the ambulance came for me they were taking me to Bristol royal infirmary then diverted to another hospital it all took up precious time

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Sorry to hear that as Stroke is so time critical when you first suffer the attack. The T in fast is Time. I do believe the Thrombolysus saved a lot of my brain allowing me to recover pretty well. Still a long way to go but heading in the right direction. Be kind to yourself. I still get very down and my emotional outbursts are frequent. I listened to a Sam Fender album the other day and cried 4 or 5 times. Everyday we are a day stronger.

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I can relate to what you’ve told us Sue1958…. We’ve just got back from a holiday in Scotland, back to a cottage we’ve stayed in many time, we usually drive up sharing the driving, so we flew this time, just an hours flight, I booked assistance, I walk too slow to get through booking in, security and to the gate…it was amazing getting pushed to the front of the queues….none of my post stroke problems show so I did feel a fraud, I don’t need a wheelchair in normal circumstances, the other people having assistance looked older and worse off than me….8 months post stroke Iv’e reached a getting used to and resigning to the new me, I’m still numb down my left side from head to toe, I now realise, doubt that’ll change the constant pins and needles I can’t forget about, nor the affect having half of my plumbing system numb either! Whatever size of your stroke, we’re all different, they said mine was small but it’s hugely life changing..

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Don’t feel a fraud you have need, strokes disable us and put limitations on us when we didn’t have them before. And no such thing as a small stroke they are all life changing but different
It was good to get away though?
People are people and I’ve found even before my stroke as I had limited walking then, some able bodied people if they can’t see it, it’s not there, it’s the invisible disabilities they just see them so they think ā€œ what’s he/ she doing in a disabled place !

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Yes thanks Sue it was very good to get away, we’ve had to cancel a big holiday this year, it would have been too much, Scotland was just right, always beautiful and I managed to walk a bit further every day..
It’s only us, those of us who’ve had a stroke that really understand all that we’re left with, we can’t forget but others can when we look OK to them…

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