Weekend at the hospital

Sunday evening and I am worn out. Every part of me hurts (Thanks fibromyalgia, stress, and all the rest) and I have had a horrendous night in a hotel with a wedding party running riot all night on the floor above, a deeply uncomfortable mattress, a room that’s oven-like and can’t be controlled… and an inedible breakfast. So that’s now 10 hours sleep in 13 nights??? Something like that… and my sister says I’m losing weight and not looking after myself…

Anyway, two days with Karen and yesterday she was a little more awake, a little bit brighter (they’re reducing the sedation bit by bit) and today we had smiles, three of them, and she stroked my hand and made spontaneous efforts to grab a falling pillow etc. Also had a CAT scan, but we won’t know what that says until tomorrow. As progress appears to be being made, I’m hopeful there’s nothing bad on it.

I’m home again because I can’t leave the cat more than a single night, and nobody will step in and feed her, and now Karen’s son is back at work, I am the sole visitor she will have so somehow I have to make it back to the hospital to see her and find somewhere different to stay overnight, and that means dealing with public transport… which I just can’t cope with as I’m autistic and that’s a huge non-no for me (no toilets), but which somehow I have to navigate as I can’t bear to leave her on her own.

I am just so tired.

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My guess is that’s caused by cortisol ; try heart entrainment as advocated by HeartMath Institute

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Good to hear that Karen is showing positive signs. That must be encouraging for you. Hope the scan results are ok too

Shame about your hotel experience. They just aren’t the same as your own bed.

Looking after yourself is really important. I know you are going through a lot but if you don’t look after yourself you will end up in hospital too and then you won’t be able to do any of the thjngs you need to.

Could you get one of those cat feeders that has a timer on it to release food each day? Sorry don’t know what they are called.

Maybe take a day or two off from visiting to get yourself some sleep etc. I know you won’t want to but sometimes needs must.

Best wishes

Ann

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Thank you. I am trying.

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Check if you have a cat charity locally, as they might be willing to send someone to feed yours. Of course, you need to know it wll be someone reliable to allow them access to your home.

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You probably would have been more comfortable sleeping at the hospital by the sounds of it. It’s a shame you can’t take your cat with you in a cat carrier, you could say to the hospital that you are bringing it in for a CAT scan. I’m sure your partner would love to see her cat in person, or in feline as would be technically the way to express it.

Buses can be a nightmare if one’s brain rejects the experience, a result of cerebellar stroke can be Cerebellar Cognitive Affective Syndrome, this means I am challenged when processing and organising information, so navigating bus routes, timetables and all the rest of the malarkey is a mental ballache for me.

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Yes, the hospital don’t have any facilities for that, not for adults looking in on adults at least.

I just hate buses due to the lack of facilities, and the fact it will take me an hour to travel 12 miles.

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