I had my annual visual field test Tod today and my score for the damaged left side of each ey has improved year on year which gives me hope that the brain is doing something by way of recovery, a little ray of sunshine in my dark life.
9 Likes
Yay that’s great news Mark @mrfrederickson and here’s to it improving again next year.
3 Likes
That’s good news. May the improvement continue.
Regards Sue
3 Likes
Thanks Sue as brain recovery is so difficult to gauge it was all I have to prove I’m repairing
1 Like
Yes I followed the ad vice of a survivor who covered the unaffected eye in my case the right to force the left to work harder specifically when tracking cars as a passenger when out in the car. I knew it was working as I felt a bit sick. More use lessened the sick feeling.
4 Likes
Here’s to the ray of sunshine!
I hope the dark life was not literal, but if so, what other things bring light to it? I am asking both because I care, and because possibly we can help each other? And of course, even more others.
My children, grandchild and pets bring light into my life. Talking with you all here brings light. Being outdoors seeing what I can see, feeling the breeze, smelling the flowers, tasting a strawberry from the garden, hearing the laughter of children playing or the click, click, click of a kingfisher or touching my bare feet against the soft grass.
1 Like
Hi Simonin, sorry to hear your blocked artery is still causing so much grief in my case they pumped me full of a purple drug which dissolved any remaining blockages that were there and got me on a high dose of blood thinners, so far so good. The vision issues are peripheral only and as noted are making slight gains, o hope they can dissolve your blockage and you can begin the process of repair, it is a very long time unfortunately as fellow survivors point out to me in some cases8 to ten years so your small children maybe driving you before you fully repair. My son is learning to drive now so it’s a race to se who gets a full licence me or him, take care of yourself.
2 Likes
thats brilliant news
1 Like
Hi deAnn my kids are grown up but still a joy to know they have yet to make me a grandparent but live in hopes, maybe I’ll be recovered in time to have fun with my grandchildren if I’m lucky
2 Likes
Grandchildren are a joy I can’t really explain well. I only have one, who lives with me, and all his friends call me Grinnie as well and hang out at my house. Best I can do to explain is you get all of the joy of children with very little of the responsibility for them monetarily and when they misbehave. You have more time to simply enjoy them. I hope you have a few come along soon. They won’t care if you are not recovered. They will find a way to have fun with you regardless. Mine is a mouthy almost 11 year old. He teases me about my shakiness, swears I can’t catch him, then comes and lays across my lap for his spanking…all in fun. We also make kitchen messes together, play easy video games, just for me, and I answer questions about the old days, when we didn’t have televisions or phones…another thing he pokes fun at me about. And of course, I walked 7 miles in 2 foot snow back and forth to school. LOL
3 Likes
Maybe you could alternate days for each eye, try it for a week and see how it goes 
1 Like
That is wonderful and welcoming news for you, I’m so pleased 
Your time, patience and efforts do pay off in the end. Keep up the pace, you are indeed getting there
1 Like
Yes the ey nerve damage seems to prove progress somewhere in the brain? Just need it in my legs and arm next
2 Likes
I want to say, don’t listen to that in general vision does not improve thing. I know mine is improving and there are many ways we work on that through OT and PT. It took quite some time (over a year) to get to the point of being able to do vestibular training, but now I am to it, I am hoping it will help more and more. It has already worked enough for me to be moved from high fall risk to the low end of normal risk for my age group. I can balance on one foot (either one) for up to a minute, and up to 30 seconds on the foam padding. I haven’t been working on that very long.
In other words, please don’t write it off as not very likely, when it could be more likely to help than we think. Maybe more study, or different study measurements?
1 Like
PS my problem is Oscillopsia and Down Beat Nastygmus. Everything looked like a kaliedescope to me, especially if the object I try to focus on is moving or I am moving. I also have some peripheral vision issues and a blind spot
1 Like
My PT gave me this to try in one minute increments until I was able to follow the red dot along throughout it.
I found it helpful to train my eyes to even move to left or right of center much as I had quit trying to see anything directly in front of me after a time. I am still training myself to keep both eyes opened when reading or looking as I see a bit better with one closed.
3 Likes
Keep on trying DeAnn, we will both get there in time
2 Likes
Thank you very much Simon, for pointing that out. I had forgotten as I start about mid stream these days, although, I love classical music and the first piece is a favorite.
@Elle1 if i have read that right does that mean you’ve seen some spots on the left side that you haven’t seen before? If so that is great. All improvement is progress. Shame you’re still unable to drive but you never know anything is possible for the future. Thanks for sharing xx
2 Likes
New pathways formed elsewhere outside the dead are perhaps
2 Likes