Hello everyone, almost 6 months on after my husband suffered a bleed on the brain we have just noticed that he is unable to wiggle his toes or even lift them. Has anyone else had a similar thing? He has feeling in his legs and feet and can walk even though
with a slight limp on the right leg as the bleed was on the left side. Doctors tells us he could do with some physio so hoping that will follow shortly. In addition to this still he has no taste and smell hopeful this will return soon but not been told how long this can take, any views on this would also help?
I too have great difficulty lifting my toes on my affected side. Funnily enough my hubby was trying to get me to wiggle my toes last night & I realised I couldnāt do it. Iām nearly 3 years on from my stroke.
I practice trying to lift my toes every day. With great concentration they will lift slightly.
I can only suggestyou keep getting him to try & hopefully the movement will return in time. Physio should help but you can practice whilst you wait for the appointment.
My taste went a bit weird for a while then settled down. Some things tasted vile initially. My tastes also changedā¦things I ate pre-stroke I no longer like & other things I eat now but wouldnāt before. The biggest problem I have with food though is my stroke took away my appetite & feelings of hunger so for 3 years I have never felt hungry.
My sense of smell increased initially too. I always had a poor sense of smell so suddenly being able to smell food & flowers felt strangeā¦in a good way though. It has now returned to pre stroke levels.
So think how I was affected is completely different to your husband.
Hi.
My taste came back completely after 2-3 years, but I still have no real movement in my toes or fingers (right side) 10 years on. There are foot stretches I do on the stairs. I stand on the stairs and hold onto the stair rail. My toes are on the step, but the rest of my foot hangs over the edge. I then stand on tiptoes and then drop my heels down. Another exercise involves trying to grip a towel or pencil on the floor with your toes and lift it up. A physio should be able to advise. I find my affected leg gets cold because the lack of toe movement affects my blood circulation.
Like @SimonInEdinburgh my taste took about a year to get back to normal.
Unlike my toes, which took more like 3yrs.
I could walk but suffered foot drop. Smaller toes tended to under, big toe liked to stick up in the air and wear holes in my socks. And it all threw my balance off.
Still have a touch of foot drop in evening, but otherwise fine enough now. Iām nearly 4yrs post stroke.
Iām 16mths post stroke. I had no movement at all in the stroke foot initially. I would sit looking at it, willing the toes to move. Around the 6 week mark, I was able to move the big toe a tiny bit. From there, it kept on improving and now I can splay the toes and lift them, although not quite as well as I can on the right foot. That said, the foot has gone through various different sensations and is currently numb and ātightā on top, especially round the ankle.
Taste was altered for a while - maybe lasted 6 mths or so and is fine now. Smell is reduced but Iāve noticed recently that it occasionally seems a bit better. Sometimes, I get a whiff of something really lovely and I think thatās a brain trick, a bit like an aura before an epileptic fit, maybe.
Hi I had a stroke nearly 2 months ago and I canāt feel my toes either they move on their own which doesnāt help when youāre trying to walk and youāre toeās are bent under your foot.
Not idea what to do to start feeling them .
Thanks.
Iām having a splint fitted in next couple of weeks.
I can walk abit my main problem is my wrist I canāt feel my fingers properly either.
When I had my stroke I had 2 mini strokes at same time.
Only thing I was left with was weakness.
I have feeling in everything on my right side I just canāt move my fingers myself.
I am in the process of leaving rehab tomorrow hopefully I get to see more of the physio than I have here.
I have been here 3 weeks now.
I walk using a quad stick.
I wonder if these improvements are anything to do with the problems youāve been having recently
Iāve noticed with myself that I can go through a phase of feeling worse than normal but then something improves or I start to do something I was doing pre stroke. It happens quite often, not in isolation.
@nerrad67 just popping by to say hi & welcome to the community. I think Simon has suggested mostbof the things I can think of in relation to your issues. I have drop foot so iām often standing on my toes. Splints havenāt helped mine but they work well for a lot of people.
You are still very early in on the recovery road so give it time & you should see improvements. Patience and determination are key.
Funny you mention this, ie had this just point outā¦ smell and on taste is the same with me as wellā¦ my wifes call Traceyā¦hold on! you are my wife??? Love you heaps āHā x
