Hi @HelenaPo
Hello & Welcome
Some things will be out with most folk here’s direct experience cos we are under the Scottish NHS
1st rather than the Stroke Association our support (in theory?) comes from Chest Heart and Stoke Scotland
They run support groups who are a great source of peer knowledge how-to advice & street- smart navigation of local services.
See
There’s a map on the webpage that shows where they are
CHSS should provide you with a Stroke Liaison Nurse. I found my 1st a bit mediocre but the second was really helpful
Ask their support line if they haven’t reach out
adviceline@chss.org.uk
0808 801 0899
There’s loads of stuff on the web site https://www.chss.org.uk
Maybe the refusals from NHS would be helped by reaching out to PASS[1] who are our equivelents to the English pals
It’s run by Citizens Advice Bureau
Where are you & mum?
You might find 40 things gives you & siblings useful perspectives.
Caio
Simon
Patient Advice and Support Service ↩︎