New here
How long does the absolute tiredness take to get over
Thank you
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Things could improve when you learn to take regular breaks, give yourself a good long rest and refuse to stress about anything.
Apart from that, get hold of the fact this is no hundred yard dash.
This is recovery from a major trauma.
Welcome to the forum, chill out and settle in.
keep on keepin’ on
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Thank you everybody for your wisdom and help.
I am certainly a different person - a new me !!
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Hi & welcome to the community @Barney2 I agree with @Ingo66. You need to learn to manage the fatigue and rest when you need to. As time moves forward you’ll hopefully be able to do more before the fatigue kicks in. You may find keeping a diary helps you identify your fatigue triggers.
Best wishes
Ann
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Bore da @Barney2, I find myself answering this question when asked with another question, how long is a piece of string? As we are all different, our brains are personalised to the individual. Fatigue diminishes as the brain requires less energy to manage its daily tasks, but that still doesn’t mean that age related brain entropy and future circumstances of stress or challenging cognitive conditions won’t cause neurological fatigue to reoccur, accordingly.
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Hi @Barney2 just popped in to welcome you to the forum. I can only second all that has been said, the fatigue is certainly going to be with you for a while. Take care and rest frequently, that’s what your brain wants so listen to it. Activity should be in small bites and don’t try to over tax your mind. Just know that life will get better over time 
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Take a look at toddlers who are in many respects on a par with those struck.
When tired both groups become impatient, grumpy, sulky, prone to tantrums and determined to stay active and awake.
So those struck have a built in energy indicator meter, when the toddler symptoms start up, you know you are running on empty.
Now I’m either going to leave and have a snooze,
or start stamping my foot, but I’ll always have the last word and. . .
keep on keepin’ on
aren’t they just lovely when they’re asleep?
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Aye, a t-shirt or beanie with a green striped battery cell on it that gradually depletes into orange, then red, and then empty.
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Hi Barmey nice to hear from you I was coming on here today to ask a question abut tiredness
Ever since my stroke I have been going to bed quite late 11.30 to midnight on the basis that would rather do that and sleep really deep until around 8am rather than go earlier and not sleep so well. Then it occurred to me that my brain now needed more rest time so have climbed the stairs last two nights at 10.30 so that was saturday night and sunday night, today Monday I am totally knackered can hardly move been for shortish walk hung the washing out cleared the dishwasher and can hardly stay awake. so am now doubting my theory and maybe going back to a later bedtime and see what happens.
Has anyone had a similar experience, and have bedtime patterns which have worked for them.
the outcome is not what i expected, so a bit bemused. Maybe i am just having one of those days when I just need to accept the status quo and rest.
Thanks
Wattsy
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In my first year post stroke, I very gradually went from virtually no sleep to getting about 7/8hrs sleep. Currently I’m stuck at going to bed around 2:30am, not getting to sleep until around 4am and getting up around 11am. I’m sticking with that routine because my brain won’t let me break it. I can get up earlier than 9am if I have to be somewhere, like once a month I have an aphasia group I have to be at for 10 so up at 8am and other early appointments. But no matter how long the day may be I can’t get to bed any earlier, otherwise I just wind up with a headache.
But all that is ok with me because when I get up early I’m slower moving; I’m almost normal moving around by midday and into evening when I can get most done in my day 
It suits me and my family can work around that so I’m not going rock that particular boat if I don’t have to 
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Sorry i am a bit thick on seaching, how do i go about it?
Wattsy
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@wattsy it will be different for everyone but I tend to head for my bed at 10 pm and I stick to this time every night as it is important to have a routine. It may be that you are just due a bout of fatigue anyway but if 11:30 works for you then stick with that. You may find something between the 2 is your ideal but it really is trial & error until you find the right time for you.
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@Bobbi i think you’ve described it perfectly i was definitely like a toddler having a tantrum last week with my fatigue. Poor hubby got a ear bending one evening.
@Ingo66 if you find one of thosebatteries I’d like one too please hope you’re doing ok? Xx
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After stroke, the phrase 'Time is an illusion, lunchtime doubly so", as attributed to the beloved author, Douglas Adams, became a truism for me. Like @EmeraldEyes, early on I was bereft of a good night’s sleep. I’d often, finally, doze off at about 4 am. As previously having had earned my allowance by writing, I didn’t have any set time rules as such and never wore a watch. It was only after stroke that I bought one. I suddenly became time fixated, but that was more to do with the concept mentioned a few times by @Pds in his keeping an hourglass handy for setting activity limits and, therefore, managing fatigue. As for sleep, I tend to get eight hours worth these days at the time my mood and motivation for being upright expires. The first year post stroke, I slept on and off all throughout the day, this was because for the first six months I was bed bound, so it wasn’t sleep, it was just unconscious escapism from the disquiet of stroke symptoms. As things settled a little, I found myself sleeping about eleven hours, I think, sometimes fourteen. As with @EmeraldEyes, I can rise at the crack of a snail’s fart when I need to but by choice I like to ease into the morning at about 9:30 am because it takes me some time to comprehend my mass of matter and its place in the scope of the universe. At the moment, I mark 10:30 pm as my time to extinguish the day for no other reason than that it takes me a good couple of hours to begin to fall asleep. If I go to bed earlier then that, I will wake up at 3 am and, by default, go through a ridiculous routine, for about fifteen minutes, in preparation for the start of a new day before realising it is 3 am and having to put my head to rest again.
The thing is, sleep isn’t the kind of rest for a stroke survivor’s brain that it should be. The brain is, in fact, more activate during sleep than it is during the day. That is why a stroke survivor can sleep and not feel rested at all. The difference between me as a stroke survivor and me before stroke, is that now it makes little difference if I get one hour’s sleep or twelve hour’s sleep, my symptoms are exactly the same. The key for me, is the brain blanking time I commit to before sleep and the brain blanking time I commit to in the morning. This is what I believe provides a satisfactorily beneficial sleep for me each night. But we all are individuals with our individual brain, so what is effective for one person may not be effective for another.
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Hi
I agree with you about sleep, returned to my midnight bed time last night, slept well one loo visit about 4.30 back to sleep and awoke naturally at 8am do not feel so tired today but still rubbish as always, so will not go back to an earlier bedtime again waste of time, you are totally correct when you say no matter how much sleep you have you never feel rested at all, i tend to feel at my best between 10pm and midnight which annoys me a lot. still sleep a bit during the day but try to avoid it unless my feeble brain tells me to. Raining again so no gardening will walk later whilst my wife watches yet another episode of James Bloody Martin cooking somewhere on the planet will get wet if i have to. Mucked up up my postal voting forms today, well actually did not, but put the completed forms inside the wrong envelope to post back.
as you can probably gather not having best of days, so very frustrated with everything , on plus side got my beloved Arsenal to watch tonight against Chelsea, still a member though no more trips to the emirates for me, with my son yes I know yet more negative thoughts, cannot escape them today no matter how hard I try.
So please message me people let me know how you are feeling, and how your day is going, well i hope.
Good vibes one and all
Wattsy
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One of those days aye? I am on the third day of yet another cruddy symptom glut, so will hobble and wobble to the shops, buy a couple of beers and lock myself to the screen for a gaming session after tea time. Some days, I consider to be a write-off. I’ve never really been keen on James Martin, I do like the Hairy Bikers and was saddened when Dave Myers passed away this year. I also like Andi Oliver and find her spirit uplifting.
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NIce one sounds like a really pleasant day, been for my walk and passed a front garden design that will really suit mine when we get it done, just need approval from my wife, hope she really likes it because i do a lot, and it will be almost maintenance free, which is essential for her.
It will get warmer at some point i suppose
Wattsy
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Hi
The beers idea sounds very good, could have a couple whilst watching the footy, how do they react with the medication?
Wattsy
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I don’t really know, I can’t make any medical judgements as I am not qualified but I do know that alcohol can react with medication, and can reduce the efficacy of some pharmaceuticals, most leaflets explain how alcohol interacts with the medication taken and if it is unwise. I, however, can have two beers over a decent stretch of time (fours hours, sometimes), ranging from 3-5% and so have made the decision in my post stroke world that if my life expectancy was now, potentially, reduced, I wasn’t going to deprive myself of the few pleasures I have in order to stretch that expectancy out any longer than it needs be.
There are some quite decent zero alcohol beverages too which are worth investigating.
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Sorry Rups was nor intending to be critical , but can see how it came across, just a curious question. enjoy them both
Cheers
Wattsy
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