TIA,s and balance

Hi All, I had a TIA 2 years ago with little problems, then another last year which effected my left leg an arm. initialy I was faily mobile with a Zimmer frame, but now my mobilty and BALANCE is shocking. I recently saw a Neorologist and he told me I had damaged a part of the right side of the brain which controls the left side, it is permanent, and I must learn to live with it. Any pointers on how to improve BALANCE as I feel if I can sort the balance issues, then my walking will improve!!

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@martinc1 hi & welcome to the community. Sorry to hear of your TIAs & your ongoing balance issues.

A few things you can start with for your balance are sit to stands and squats. You can start them holding on if necessary but then try without holding on. Repeat these a few times a day.

Also try standing on one leg, holding on. Alternate between legs. Also you could try some heel to toe walking. The other thing to try is to strengthen your core.

A couple of links for you that might help.

e class="onebox allowlistedgeneric" data-onebox-src="https://www.nhs.uk/live-well/exercise/balance-exercises/">
nhs.uk – 26 Jan 22

Balance exercises

Find out how to do these balance exercises, which you can do at home to help improve your health and mobility.

The Stroke Association also.do some online exercise classes which you can sign up for via their online activities hub.

https://www.stroke.org.uk/webform/online-stroke-activities-hub

A few starters for you. Hope you find them useful.

Best wishes

Ann

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Hello Martin,

Welcome to the community and thank you for sharing your experience of stroke with us.
I don’t know you @martinc1 and I don’t know the exact nature of your strokes and I certainly am not medically trained nor am I even a stroke survivor, but I have read many posts on here and quite a few, too many in my view where a specialist (medical practitioner) has said something along the lines of what you said in your post.

The more I see this type of quote, the more my blood boils. Why oh why do they keep spouting these lines?

Yes, it’s true, the stroke has damaged your brain and it may even be considerable damage, but to say the damage is permanent and you must learn to live with it!

I am here early and so I don’t know what others will say as they come along, many of whom will speak from personal experience, but for what it is worth Martin, here is my tuppence worth … there is help available that can help you improve your mobility and balance.

You should try to find it, and you should try to find what works for you. I am caring for someone who is living proof that having a stroke is not necessarily all doom and gloom. I am having difficulty explaining this and have had to edit this paragraph in an attempt to clarify. Yes, it is true that when you have a stroke, part of your brain is damaged and the cells that are killed in the process are dead and so that is permanent. However, and this bit I quote from a book “Stronger After Stroke - Your Roadmap to Recovery” by Peter G. Levine

Start Quote

  • There are approximately 100 billion neurons (nerve cells) in the brain
  • A typical stroke kills less than 2 billion neurons
    These numbers are small compared to the number of connections between the neurons in the brain. It is estimated there are between a quadrillion (a thousand trillion) connections between neurons. That is a lot of connections.

End Quote

As per the above, as you recover from the stroke, you make new connections between the surviving neurons and that is often referred to re-wiring the brain and it is technically called neuroplasticity.

Bottom line and without getting bogged down in terminology and technicalities, you do not have to learn to live with the condition - you can do something about it.

You have a choice. You can choose to accept what the specialist has told you, but at the very least I would get a second opinion, or you can do what many on this forum/community have done work towards improving your mobility and your balance.

Ann, @Mrs5K has started the ball rolling and you can do a lot worse than follow her advice.

I wish you all the best.
Forgive me if I have spoken out of turn :man_bowing:

Namaste|

:pray:

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Yes, your brain has been permanently damaged but thanks to neuroplasticity its possible for new routes to be formed. The more you practice the stronger these new pathways become. It makes me so cross when these so called professionals say these things!!

Relearning balance can be as simple as standing with your feet closer together. Then you can try standing on a wobble cushion, looking around, reaching for things. There are lots of options.

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Hello @pamela1 - thank you. I stand corrected :slight_smile:

And to clarify (I have edit the original post as well) part of the brain is damaged and the cells that are killed are permanently dead. However, there are surviving cells and neurons and these can be used to make new connections to do some of the things the damaged/dead cells used to do.

And so you definitely do not need to live with the condition (i.e. not permanent loss of whatever is affected by the stroke). Perhaps it can be thought of as relearning to do the things you used to do or to learn again as a baby does when starting out in life.

Perhaps I am making it worse but what I am trying to say is do not accept anything that a professional suggests that sounds like it’s the end of the road.

How about another analogy.
Forest fires destroy a lot of plant and animal life and the environment and eco system, but eventually and after time, the forest comes back to life. Surviving stroke is similar.

Oh well, I try and then I try again :slight_smile:
Sometimes I get it right, other times I have to try again and so it goes on.

Thank you for allowing me to confuse/help you.

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I think that reads much better.

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I think we’d all like to meet your Neurologist as he seems to have a crystal ball or some other form of seeing into the future that no else has :crystal_ball:

Is it just a balance issue or do you have vertigo with it?

My balance was way off for over a year after my stroke. I know a woman from my aphasia group who’s had her balance issue for many years after her stroke with no resolution and she’s just turned 90.

Good leg and core strength will help enormously to improve your balance. And I dare say some of your imbalance will be due to left side weakness. @Mrs5K has given you all the best exercises I’ve used over my 4yrs of recovery.

Some other balance tips are:

Stand perfectly still and straight, feet together, to a count of 20 and focus on fixed point straight ahead of you. That usually helps maintain balance.
Try it with your eyes closed for a count of 20. Is your balance worse, better or much the same? Eyes closed is usually a little harder. Keep a chair back/counter/ Zimmer frame close at hand to steady yourself if needed. As it gets easier, increase the count to say 40 or for the length of time it takes your favourite song to play.

Although you stand perfectly still, your leg muscle should be moving and twitching constantly resetting your centre of balance. You’d be surprised how many people think otherwise :sweat_smile: And that constantly movement of your legs is also another good strengthening exercise for them as you are actually giving it a darn good workout.

That little balance exercise can be done many times throughout the day, even whilst waiting for a kettle to boil.

After a couple weeks you can progress to just one leg and then the other.
And if that ever gets too easy, go you could try looking around or hold a conversation. But I dare say that’s a ways down the road yet :grinning_face_with_smiling_eyes:

Lorraine

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Hi @martinc1

Welcome to the community, I’m sorry to hear about your TIAs and your balance issues.

I’m pleased to see you’ve had a few responses which I hope you find helpful and I hope you’ll continue to find this community helpful for your recovery.

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Thank You for your input

thank you for your replyy

thank you for your reply

thank you for your input

thank you for your help