great, yes, I’ve ordered something similar
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Hi Rich,
sorry about my late reply… i was hours at the eye hospital yesterday, that’s another post stroke story / complication. You and I had our stroke 1 week apart Sept 2022
I am very interested in your journey, because it is at a similar stage to my journey
Firstly about feeling pain instead of normal touch ; that is normal, it will refine with time. Pain travels along the same conduit / nerve , just a different cable. If you feel pain, when your pacinian, miessner & all other corpuscles are online, they will gradually refine from pain to a warmer, more attractive / refined sensation. I am at the same stage, give or take.
I am convinced a treadmill (because of timing / coordination ) and exercise bike will be good for me. oops wife calling me for lunch… speak soon, Roland
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Hi sorry to hear your problems, i wonder if a sports massager they do hard vigorous deep tissue massage or a spa that does swedish massage or accupuncture might help?or even if they could give you some advice?before my stroke i had terrible leg and feet cramps and docs told me to drink tonic water that helped a little but yours sounds more than cramp…hope you get sorted soon.best wishes Bernadette x
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Nige, Bernadette
Hi and thanks for the answers both.
I was feeling good so I went to the Gym on Monday and on Tuesday I was completely knocked out with my glute pain. I couldn’t bend my knee. Today am better again. I almost have no pain, just a bit of tightness in the glute left.
Totally baffled, but I just think stroke muscles can only progress a fixed / limited amount. I’ll just have to go easy and regulate my efforts,
ciao, Roland
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Pando–Hi–Maybe your pushing yourself too hard. I know we all want to “get back” to pre stroke activities. I know in an effort to do that I pushed myself in walking. I kept increasing the distance. I wanted to build up to 2 miles. Well, I did it. But I don’t think my body was ready for it. I got really bad cramping and pain in my quadreceps–could barely walk. My husband said, “I think 2 miles is just too much for you right now.” So, I backed off to 1 mile and have had no recurrence. Just a thought. 
Jeanne
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Yes agreed, Jeanne
it’s clear I have been pushing too much.
It’s hard to be patient…
I’ll learn, thx, Roland
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I do that often. I promise myself I won’t and that I will pace, but seem still to be doing too much, then my head and body(pain) say NOOOO and I drop of in a stupor and sleep too long. I hope you can find the right balance.
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Hi Ann,
me too, guilty all the time of pushing
but if my glute locks and is painful, that in itself is nature’s way of getting me to slow down.
cheers, Roland
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How are you getting on? Hope you’re having some improvement, i seem to have gone backwards since my last message to you (do you think it’s catching)
my left knee has gone on strike and my muscles are stuck too but i keep going albeit slower and limping ,i think i could win the hokeycokey if they ever enter it at the olympics:woman_cartwheeling:did you get any physio or massage sorted,i had physio on monday but spent most of it doing the dying fly and laughing at the absurdity of trying to get up off the floor mat,still gave the NHS physio a challenge.hope you are feeling ok.x
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Hello Bernadette,
I’ve been away on holiday for 4 days
It wasn’t always easy but I did better than predicted
For one, everything feels different / you see things from a different angle
This avoids that bad repetitive feeling “here we go again…”
I have a new physio that comes on Fridays (tomorrow) … I’m getting on well
I’m sure we go backwards all the time, especially in the short run
We expect to improve, as a whole, and probably do…
Anyway, the trick is to carry on, no matter what.
Thanks for asking Bernadette, and I hope you get somewhere soon,
ciao, take Care, Roland
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