The Friends You Lose After Brain Injury

Before Anything Is Said

Friendships don’t usually end with an argument.
Most of the time, nothing dramatic happens at all.

At first, it doesn’t feel like loss.
It feels like waiting.

Like life getting in the way.
Like something patience will fix.

You tell yourself real friendships don’t disappear that easily.
They tell themselves this is temporary that they’ll know what to do once things look more familiar.

No one says anything yet.
Everyone is buying time.

In the Hospital

Friends come to visit.

They smile. They ask how you are.
You answer slowly, carefully, trying to find the words.

They listen, but their eyes don’t stay with you.
They move over your face, your body, the bed, the machines.

They are looking for reassurance.
For proof that your injury won’t change you too much.

You notice a recoil you don’t yet understand.
An unspoken calculation.
How much of themselves this might now require, you realise.

They tell themselves they’ll be better once you’re better.

Nothing unkind is said.
It doesn’t need to be.

Conversation stays safe.
Encouragement is offered gently.
The way you speak when you don’t yet know how to stay.

You feel the distance forming.
They feel the effort beginning.

When They Leave

They hug you softly.
Already half gone.

They say, “We’ll check in.”

They mean it in the moment.
They just don’t yet know what “check in” will cost.

You thank them.

When they leave, your body reacts before your thoughts do.

Your chest tightens.
Your stomach drops.

You know.

They walk down the corridor unsettled.
Relieved to breathe again.
Ashamed that it feels easier away from you.

Those injuries have names.
Stroke. Traumatic brain injury. Disability.
This one doesn’t.

You lie still, injured twice.
They go home hoping the feeling will pass.

After That

Messages still arrive, just slower.
Shorter.
Without curiosity.

You notice you are always the one reaching out now.

They notice it too.

They hesitate before replying.
Not because they don’t care,
but because each response feels like an opening.

An opening they’re not sure how much of themselves they can afford.

You tell yourself not to read into it.
They tell themselves they’re doing their best.

But your body already knows.

The unanswered message.
The plan left open ended.

For you, it feels like being edged out.
For them, it feels like standing at the edge of something they don’t know or don’t want to enter.

Weeks pass.

Friendship, Fading

They grow careful.

They worry about asking questions that might open something they can’t hold.
About being needed in ways they don’t know how to sustain.

They don’t decide to disappear.
They just begin to ration presence.

They keep things light.
They keep things brief.

They think lightness is kindness.

They don’t realise that lightness feels like distance.
That restraint feels like abandonment.

At Home

Life continues elsewhere.

Some people are already gone.
Others hover, unsure how close they want to be now.

Your body doesn’t fit the plans anymore.
Your needs don’t fit the rooms.

You see them still meeting.

The plans aren’t shaped for you anymore.

They stop checking what you can manage.
You stop explaining, without quite deciding to.

You aren’t excluded.
You’re just no longer planned for.

And you realise no one is coming to you instead.

They tell themselves they’ll reach out when things improve.
You tell yourself not to hope too much.

The silence grows between you
heavy on only one side.

Making Yourself Smaller

To hold on, you say you’re fine anyway.

You downplay the bad days.
You don’t want to be heavy.

They sense the edit.
They accept it with relief.

It becomes easier to talk when nothing real is shared.
Easier to stay when nothing is asked.

You become quieter.
Easier to forget.

Grief Without Ceremony

You grieve people who are still alive
still friendly, still reachable
but no longer present.

There is no permission for this grief.

Friends carry something different.
They don’t stay with it for long.

You carry the weight of what was.
They carry the weight of what might have been required.

The Ending

There is no final conversation.

Just a moment when you stop reaching.

A message you don’t send.
An invitation you don’t follow up on.

They notice the quiet
and feel relief.

You notice it
and feel the end.

They didn’t leave all at once.
They measured themselves out slowly.

Until there was nothing left
that didn’t feel like too much.

What Remains

You replay it in fragments.

They think of you sometimes, briefly, vaguely,
and move on.

You wonder when it changed.
They wonder if there was something they should have done differently.

And the truth arrives unevenly.

Some people don’t leave because they don’t care.
They leave because they don’t know how to stay
and because staying would have asked more of them than they knew how to give.

Brain injury doesn’t just change you.
It reveals who can live with change.

If you’ve lived this,
you already know where the calculation began.

And by the time you noticed,
it was already gone.

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Well done. I bet that took some writing but I guess it forced you to gather your thoughts.

Being honest with yourself can be a challenge but the benefits are a better, more realistic, view of things with a growing ability to handle things when it gets tough.

I’ll say no more.

keep on keepin’ on
:writing_hand: :grinning_face_with_smiling_eyes: :+1:

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@AlisiaGayle Wow, that was deep and so true.:revolving_hearts:

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Well done and thank you for sharing your thoughts.

Regards

Sue

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Here’s how I see it …

“Friends you lose after a brain injury are friends you never had!”

:pray:

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I stick to Dunbar’s Number when it comes to close friendships and I include my animals in that circle too.

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It broke me, it’s the hardest thing I’ve ever written or maybe it’s too true for me.

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True what you have wrote.

But some people, not all can’t deal with people’s illnesses. And find it easier to fade away.

But then again some people with the illness don’t want to talk about it to others.

And sometimes we need sites like this to offload our thoughts.

It’s amazing how when I go out or into work or wherever a simple smile / Hello or Hi can make someone’s day.

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And guess what?
More importantly, it makes your day too!

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Thank you Susan, glad it resonated a little.

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I am in this camp too.

My friends have been amazing since my stroke but I was always someone with a small group of good friends.

But as with everything there are always exceptions.

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That’s so beautiful to hear. The thing is that it only hurts when it’s people in this pool that leaves - good friends.

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What is this Dunbar you mentioned :blush:

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You survived, you also had losses, but it isn’t over.
You will make new friends, find a new direction and make gains.

You need to grieve over the past that is gone, you must allow yourself that.
Of course it all matters and going through all this is horrible.

You will deal with it and find answers in your own way and in your own time.

There is a tomorrow.

keep on keepin on
:writing_hand: :slightly_smiling_face: :heart:

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Anthropologist Robin Dunbar has theorised that the human brain can only manage a certain amount of social contacts with a maximum of five being the inner circle of close friends. I would include pets in this circle as well.

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You are so very kind. Thank you .

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Happy it resonated with you in some way.

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This a great place to shout out. I have used it like that a few times. Don’t bury it all inside. There really are people who care.
:heart:

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That was deep, thought provoking and sadly beautiful.

I too go with Dunbar’s theory. And you’ve made me very pleased we were in lockdown when I had my stroke. So I didn’t really have to experience any of that.

We were already in a bubble due to my M-I-L’s cancer so friendships could only be via WhatsApp or phone anyway. So now with this hindsight, I thank crunchy visitors weren’t allowed in the hospital. But then I couldn’t have coped with visitors anyway, the fewer the better for me back then and in very small doses, I barely tolerated the therapists etc as it was.

Lorraine

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AlisiaGayle - I am sure that this will resonate with everyone on here to some degree whether they have experienced it themselves or with others or whether they just simply understand that this does happen. Thank you so much for sharing - it’s often difficult to put these feelings into words. I am at least happy that we have this forum to share with each other.:heart:

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