Hello all, I hope you are having the best day possible. As a new member I thought I should introduce myself.
I am a 10 year Subarachnoid Haemorrhage and double Ischemic Stroke survivor, February 2016. I also have a sensory C6 incomplete spinal cord injury caused by a fall due to a Duodenal ulcer from the amount of medication I was given to keep me alive and for the rest of my life.
A malfunctioning brain and a bonkers spinal cord, surely someone was having a laugh?
I was diagnosed amongst many things, expressive dysphasia, visuospatial dysfunction, dysphagia, frontal lobe damage and a form of tourettes. Reading, writing, spelling and counting were all gone. I couldn’t stand and walk correctly, goodness only knows where I was heading for when I started walking half the time.
I would go blind in one eye or both randomly. My bleed was at the base of the skull where the optic canal enters. I think whoever created us was having a laugh putting our ability to see in such a ridiculous and fragile place?
In 2016 I was told I was the only communicating Subarachnoid and Ischemic Stroke survivor in Scotland and possibly even the UK. I hope with all my heart that this is not true today as I could only use a maximum of 4 words at the time. I was asked if I would be open to being studied at Edinburgh University in 2017, unfortunately I became so unwell that my Rehab consultant pulled me from participating.
My ability to communicate is not unique but is extremely rare. I only learnt this by allowing a Neuropsychiatrist into an appointment where my Neuro rehab consultant had to explain how I was communicating. I see in pictures and colours, the rest…..
I finished nearly 9 years of rehabilitation last year. I hope I can be a valuable addition to the group.
I live a full and rewarding life and I am honest with a gentle nature unless the fatigue kicks in. I forgot the fatigue!!
I have no doubt you will be an extremely valuable addition to this group. Having read your introductory post, I feel you will be able to contribute much to this forum.
I loved reading your post so much and then you delivered the killer blow
Don’t worry, I jest as purely by coincidence I just posted something on fatigue literally a few minutes before seeing your post.
Maybe you will help us find a solution to this fatigue issue that plagues so many.
I too have only just posted regarding post stroke fatigue. I am thankful that my stroke was comparatively mild, but the fatigue is the issue I find difficult to manage and this frustrates. But in time I’m sure I’ll get better at the management of it.
I found your post quite inspirational , so thanks!
Hi @JimBob65 , welcome to the community. That’s some story you have shared. Good to hear you are living a full & rewarding life. Proof that there is life after stroke.
I have no doubt you will have a lot to offer the community & I look forward to hearing more from you.
Welcome to the community, I’m sorry to hear about your strokes.
It sounds like you’ve made great progress over the years and I’m sure our members will appreciate all you have to offer to this community. I hope you’ll also find this community helpful.
If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
I have made a good recovery and continue to do so.