Hi everyone, I just wondered what kind of support people have had after their stroke. My husband had his stroke at the beginning of July and he’s been home for nearly three weeks. He’s had a home visit and a bundle of leaflets from the stroke nurse and that’s it! We phoned the physio today and they’ve said he’s on the waiting list but I just feel like there’s no urgency now he’s out of hospital and we’re in limbo. I keep reading about how the most rapid recovery in in the first 3-4 months and feel we should be doing more to make the most of this but not sure if I’m just being impatient and unrealistic (which is highly likely!) He’s doing his exercises and doing what he can around the house which I know is all part of his rehab but just feel a bit lost today x
Hi and welcome to the group. I had occupational health who were brilliant and came twice a week for 12 weeks. They gave me exercises, physio also came out. Dont be stressing about time. I also found post stroke on YouTube. An American lady who has a stroke and is a strke therapist. Dont feel alone, weve all been there, done that got the tshirt - eveyone is really friendly!!!
Thanks @SimonInEdinburgh that’s all so helpful!! I think the thing that’s so frustrating is that we’re not sitting waiting on an OT or Physio to ‘fix’ things or wave a magic wand but we need specific advice on what exercises are best for a sore shoulder, how to access the gym after stroke or is it too soon etc and have a conversation about what going back to work would look like if possible and realistic time scales. Will have a look at the links you’ve posted. Thanks again. Really appreciate you taking the time to comment on my rant! 
Thanks @Veggiepatch That’s great physio and OT came out to see you. Trying not to stress about time! I’m pretty impatient generally so I’m finding this difficult!
When I was discharged from hospital I got 6 weeks of home physio from the Early Support Discharge Team. At the end of the 6 weeks I was then referred for more physio & joined the waiting list. The same with the OT.
It sounds like you’re trying things out which will help. None of it wasted. You’ll find many videos on YouTube etc. In the meantime talk to his GP & see if they can recommend anything.
Best wishes
Ann
Hi and welcome to this forum. Unfortunately, aftercare following a stroke is basically non existent, and is definitely a postcode lottery.
We are in the south east (Kent) and after my stroke in 2017 I didn’t have a stroke nurse and didn’t even get a pile of useless leaflets 
. Every bit of help I’ve had, we have had pay for, with the help of our amazing friends and family.
Luckily I have my husband fighting my corner and he doesn’t give up easily. Sounds you are behind your hysband too.
Try not to focus on a time scale and take each day as it comes. Also take any help you are offered. One thing I would highly recommend is attending a Stroke support group if there is one local to you. We both found the meetings very helpful and informative. There’s nothing like talking to people who truly understand what you are going through.
Stroke recovery is a long and difficult road and I would say be patient and be kind to each other. I wish your husband well in his recovery and look forward to hearing about his achievements and progress.
Regards Sue
Depends on what the arm can / can’t do. I worked up from 0.5kg dumbbell weights (yep, my arm was that weak) to 5 kg (current… just a bit each day). Then there’s a series of twist bars I worked with (search amazon for PhysioRoom twist bars) or equivalent… there are 4 strengths… then a series Rubber rings for forearm (by squeezing hand). Then work on your SITS muscles around the scapula ( Supraspinatus, Infraspinatus,Teres minor, and Subscapularis) easy to look up… this is a much harder area (often neglected but essential) to improve. Pushing the arms of a chair down trying to lift yourself off a chair is one way, then you can also pull the arm of the chair towards your back… this video should help
Then there are a series of isometric exercises which I posted here last year… have a search with the magnifying glass. Then CORE training… like oblique muscles using resistance bands, also good for triceps. If you need to ask anything please do, and enjoy working with your body !! Ps Brain.rehab is a great site if you’ve had a serious stroke especially, and I love Qigong for rehab, strength, fitness, meditation and health all rolled into one!!
Good luck, Roland