A year ago I had a subarachnoid haemorrhage which was caused by extensive cerebral venous sinous thrombosis (CVST). Basically there are loads of blood clots in my brain. Both CVST and SAH’s are pretty rare so I wanted to post an update here in case, like I was, there are others wondering what the future holds.
You can read about my stroke event here
Now here I am a year on. My mobility is back. I’m occasionally a little off balance but can complete a 5k again. I lost strength and dexterity in my hands. I’ve used building lego to build this strength back up.
Cognitively, I’m not as quick off the mark anymore and my speech can be stilted (particularly in new situations where I’m nervous) but I’m back to enjoying a good natter over a cuppa just like before.
My eyesight was damaged and I know wear glasses full time. I had papilledema and still do. The optician has said this might just be something I live with now. It’s not too painful anymore, just the odd twinge letting me know it’s there occasionally.
I still haven’t had any after care but now I have reached 12 months this should change. I have a phone call with a GP on 30th to ask to be referred back to haematology (to confirm I don’t have a clotting disorder) and neurology for them to review if I still need to take anti seizure medication. I’m hoping they’ll also do another scan to see if there are still lots of clots in my brain, otherwise I’m not sure how I’ll know if they’ve gone or not.
My next hurdle after those appointments is to get back to driving once I’ve received my license back from the DVLA. I had to stop driving for 12 months because of the seizures.
I hope this gives other subarachnoid haemorrhage and CVST survivors a glimpse of what their future might hold. We all recover differently but there is definitely hope.
Thanks for reading
I wonder if it might be an idea to request an MRI scan rather than hoping for it. After all you are seeking reassurance, your condition has improved one year on since you had the stroke.
Well done on your recovery and thank you for sharing your experience of this not so common stroke.
Take care.
Namaste|
Well done on your recovery @Bigmugoftea and great to share where you are now to help any others going through what you’ve been through!
Keep us posted on your continued journey and I hope you get back to driving soon 
Anna
I have requested it, but of course, they don’t have to oblige. If they don’t, I’ll probably pay to get one done because it’s for peace of mind.
@Bigmugoftea thank you for sharing your progress. It’s great to read how far you’ve come & what you have achieved. This will definitely spur others on & offer them hope along their journeys.
I hope you get all the referrals you need / want.
Here’s to an even better 2nd year.
Best wishes
Ann
Thank you @Mrs5K 
I’m hopeful for a good 2nd year