Stroke Survivor - On no medication

This is just a quick note that may or may not interest.

As of today, my Mum, a nonagenarian stroke survivor is officially drug free :slight_smile:

Before her stroke she hardly every accepted medication, other than, traditional home remedies passed down from generation to generation in her family. Sadly for her, she was hit with a stroke that robbed her of ability to speak for herself and the experts had “no time for her.” For this reason, she ended up having medication given to her and she could not refuse it (assuming she would have wanted to).

Since the stroke and as opportunity presented itself, one by one, medications were taken off repeat use and as of today she is totally free of any repeat medications.

So, yes, as of now Mum is drug free, just as she always was :slight_smile:
Happy days :slight_smile:

Below is a more detailed account. I have done this as I feel some readers might be put off by a lengthy post :slight_smile:

Click hare for a detailed history and explanation of how this happened

Immediately after the stroke, Mum was put on medications, usually as preventative e.g. to reduce risk of second stroke.

But whilst in hospital, other drugs somehow ended up on her “repeats” e.g. Blood Pressure medications, diabetes insulin and some others - these condition happened whilst she was in hospital i.e. she was drug free pre-stroke with no diabetes medication, no BP etc. Essentially she was as fit as a fiddle.

Family advocates for her and always told the doctors Mum would prefer to be drug free i.e. she would rather not take any preventative medications but as they (doctors) effectively had authority to act in her best interest, they put her on various medications or convinced the family it was in her best interests.

Because of her finely tuned body, all of these medications caused problems because all medications come with potential side effects and if they come with side effects, it is a certainty that Mum will suffer from one of these side effects, even if this means she is 1 in 1000 who might suffer!!

As her full time carers and advocates, family addressed any issues that arose and pushed to get “unnecessary” or preventative medications taken off repeat prescription.

Slowly, one by one the medications were stopped until she was only on a low dose asprin (75 mg) as a blood thinner to reduce risk of second stroke. Despite requests to stop asprin not being effected and then perhaps by family taking eye off the ball Mum ended up with problems that were attributed to the asprin and whilst in A&E the consultant stopped the asprin with immediate effect, but they then added Ompeprazole, a PPI (proton pump inhibitor). This was deemed necessary to repair the damage (internal) caused by the long-term use of asprin.

Family discussed with GP and said since the PPI was prescribed only because the asprin had damaged her stomach lining and since she is no loner on asprin, there is no need for her to be on the PPI. The GP was not “convinced” by family’s arguments and suggested it was in Mum’s interest to carry on at a low dose (20mg - this was what the hospital discharge note says). Family was aware that a lower dose (10mg) exists and asked why if it is supposed to be a low dose the GP why she was suggesting continue on 20mg - she backtracked.

Note: This is just another example of when doctors have given Mum medication or doses that were not appropriate for what they were trying to achieve.

Anyway, the GP failed to understand where the family was coming from and where Mum was heading, and so we agreed to disagree and said we wish to discontinue repeated use of omeprazole as the perceived benefits and risk simply do not stack up, at least for us.

GP was sent packing - not meant to be derogatory or dismissive but it was a difficult conversation we had with someone who did not understand or appear to know what they were talking about.

In closing as of today, it has been agreed with the doctors that she can come off her final medication, omeprazole, a PPI (proton pump inhibitor) that was prescribed to repair the damage done by the asprin, but which was recommended to be used ongoing as a preventative measure.

So Mum is now back to her baseline wrt medications - totally free :slight_smile:

Thank you for reading.

Wishing you a happy and healthy life and we hope we can remain happy and healthy now that drugs are no longer wreaking havoc with our finely tuned system :slight_smile:

Namaste|
:pray:

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So good to hear your mum is now drug free. Though I take the usual blood thinners, statins i have had no side effects whatsoever. I only had a mini- stroke and assured everyone that I would soon get back to my usual self- walking, gym workouts. I’ve done both these - whether that is determination or not is open to question. But I’m delighted to hear your story- gives us all hope.

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Hi Malcolm - thank you. Well done for getting back to your usual self and going to the gym. I am of the opinion that determination has got a lot to do with it and this is something we have seen in Mum. Also acceptance and then getting on to do the best you can for yourself.

Wrt to taking medication, this is up to each of us to decide what works for us. In principle, I/we have no objections, but where draw the line is when our body starts complaining and this relates to the medication.

The message Mum always likes to get across is do what is right for you and most importantly, listen to your body for it will always tell you.

Take care.
:pray:

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wow - she has entered a new level of health…. things will move faster, now !

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I am sure your mum will be really happy not to be on any meds now. Especially if she was someone who never took them before her stroke. Given her age it clearly hasn’t done her any harm. Here’s to her remaining drug free.

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Hi Roland and Ann - @pando, @Mrs5K

This is Mum’s natural state and once all the toxins have been washed out of her body I am sure she will be happier than she has been in a long time. She has been “suffering in silence” ever since she had the stroke and her amazing willpower has brought her to this stage.

A few things remain and I am sure she is working on it - we see signs of it and she tells us even if we might be too dumb to understand her at first.

She is on the verge of speaking, eating and walking. It may take a bit more hard work, but she never shied away from that. She has never given up and she never will.

Thank you for your support and kind words as always :slight_smile:

:pray:

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I’m glad she has overcome the med cycle, medical professionals can be so sticky when it comes to patching with meds rather than applying a more holistic approach.

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Brilliant job - your mission now is to supply the all the positive nutrients (minerals, vits, proteins, aloe vera, love) for her body, so her genes can get working and, using the building blocks you supply, since it is a self healing mechanism, will self repair according to nature !! Your job now is to safeguard that flow and don’t get in the way !! If she can be wheeled outside then she can breathe and be in nature.. and then, well then the sky’s the limit!

R

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I am not sure if this might be Mission Impossible or a Mission Too Far.
The thing is Mum is nil-by mouth and still double-up care support.
All the things I would like to do to help her and that I have tried require two people and I can’t do it on my own. I cannot get regular assistant to help me.

In principle I am in total agreement with what you say and ultimately that is our goal.

Achievements so far have been driven by Mum - sounds crazy, but she tells us what we should do and we do it. She has been self-helping and as you say, it is the magic of nature’s ability to self-repair that has brought her to the place she’s at now and that is on top of having to overcome unnatural hurdles she has had to overcome.

She is amazing and we shall have to wait to see where she takes us next.

:pray:

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I am 84. I had a TIA at the beginning of June this year just a year after my first stroke. A week or so before that I was walking up to 6 miles a day in a hilly part of Cornwall.

I shouldn’t be complaining too much. I walked 1.5 miles downhill on my own two days ago. I have stopped taking statins or similar for 2 or 3 months with the approval of my GP while waiting for an appointment at a “blood clinic” so I am just taking Ticagrelor, which I believe is causing me considerable itching in my left arm in particular. I also have a swollen belly (not just overeating, I promise!) and a lot of embarrassing wind.

I believe the aching knees I get in bed are the results of statins I have already taken. I tried several.

I first read Manny38 some while ago, which encouraged my instinct to stop all medication, which I have avoided for most of my life. I take a few vitamins, including Vit E, which having taken it for about 50 years, starting before it became trendy, and to which I give some credit for my youthful state well into my eighties.

I realise that no doctor can support my instinct to stop taking medication to which my body is responding negatively. Can anyone else give me some reassurance that I need to do this. (Of course I realise that the responsibility is entirely mine.)

I so admire the courage of people who have had a stroke and are facing issues hugely more challenging than mine. I just don’t want to live my final years feeling any more old and decrepit than I have to.

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Hi @Nada & welcome to the community. Sorry to hear you’ve had a stroke & TIA. Well done on your 1.5 mile walk this week. It is my aspiration to do that again someday.

I offer no advice in relation to coming off meds other than to say you need to do what feels right for you. Hopefully all your aches and pains will ease now you are off statins.

Best wishes

Ann

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Thank you for your welcome, Ann. I sincerely hope you will walk 1.5 miles again.

Warm regards

Nada

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Welcome to the community @Nada and well done for doing so well with your health.
I am unable to offer the reassurance you seek as I don’t know the nature of your condition, history and views on medication and lifestyle choices.

Having read your post, I feel you will be able to think things through and come to the right decision to help you move forward.

Wishing you all the best.

Namaste|
:pray:

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Hi @Nada

Welcome to the community, I’m sorry to hear about your stroke and TIA.

What an amazing achievement of walking 1.5 miles!

With regards to medication, we would always say it’s best to consult your GP as everyone is so different, what works for one person may not work for another.

Wishing you well with your recovery and your walking! I hope you’ll find this community helpful.

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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