I had a stroke in 2018 and had mild aphasia - long slow telegraphic speech. This happened occasionally and often got triggered when I had a migraine. But would happen when I was overloaded or stressed or tired. It had slowly got worse since 2018. I have ended up in hospital when my speech hadn’t returned after 2 days - lasting as long as 10 days. Until on the 14 sept when my speech turned into gibberish. another hospital stay thankfullg on a stroke ward and i finally got an expressice dysphasia diagnosis. it returned to normsl after a few day. but it kept coming and going until the 22nd wgen it went and hasnt comback. i emailed my neuro doctor who says its migraines. its very difficult to live like this - talking jibberish. migraine aphasia is transient. has anyone ekse had this hspoen? taljing jibberish contantly for 5 weeks. My language doesn’t seem as good either. I want get back to work. I want to get pip but don’t know if I will get it. My gp is great - but I am really confused - I want a new neurologist for a full assessment as my current one always says migraine. Never an acceptance that I had aphasia from my stroke/TIA ( Broca’s) can anyone offer any insight or advice.
Hi @Debchips
Wow that’s was a sad story to hear It’s now turned into a long(er)-term issue - I know you’ve posted bits before . I really can’t begin to understand how alienating it must be - so sorry for you
I may have made these suggestions before as well
Contact https://aphasiasupport.org/ - if you need help mention it in our WhatsApp
Your frustrations seem to overlap with @Augustus chatting together may help through sharing (Augustus we’ve a WhatsApp you can join via this link WhatsApp Group Invite - Debs is already there )
Maybe Andre at
https://beautifulvoice.co.uk/
Can help - again I’m happy to reach out on your behalf (just guessing because he runs a company that creates an app for speech and swallowing issues so maybe connected to people who have expertise - don’t know for sure though
There are phone apps that will vocalise text and there are lots and lots of sources of exercises but I guess your problem is between the ears and so the apps may not help.
There are lanyards & flashcards to say "I have…please be patient”
If you don’t know how to get a new neurologist then contact your local patients advice line - a service run by the NHS and normally shortened to PALS their role is exactly what you need - to get the people you need to be helping you.
Someone who doesn’t just gives you a single and unhelpful answer is doing nothing to empathise with your emotional needs let alone being adequately curious about how to solve the cognitive challenges.
They need replacing
You should also ask th SA helpline 0303 3033 100
and Stroke Helpline | Stroke Association who your local engagement officer is and then enlist there help - again let me know if toy need help
Caio
Simon
Ps give the cat a scritch behind the ears
@Debchips sorry to hear you are still really struggling with your speech. It must be extremely frustrating for you.
Everyone is entitled to a 2nd opinion. You can try soraking to PALS as Simon mentions or you could request through your GP although there may be a long wait.
Have you noticed anything specific that triggers these episodes? Wondering if there’s a pattern and whether you could tackle it from trying to change / avoid the triggers?
Sending my best wishes.
Ann