Just a short note on a small success story. When I had my second stroke 19 months ago I was wheeled into a hospital room with Consultants, Doctors, Nurses and Physios, and my wife, daughter and I were told that I wouldn’t be coming home and that 8 carers per day would need to attend me in a care home. I came home after 9 weeks in hospital. Now I am sleeping upstairs and going to the toilet upstairs. I’m still on a PEG I’ve lost 7.5 stone, but only use 1 carer in the morning to get me out of bed and wash me. Next the shower!
That sounds like a big success to me @PhilipS a big well done to you. It just shows what can be achieved when someone is determined enough. a great picture. I hope you are very proud of how far you have come.
Hi, thank you for your kind words. I still use a frame to get about and I can’t stand for long. At least my wife has got our dining room back. It was my bedroom for nearly one and a half years. My wife even decorated the room I moved into.
Hello @PhilipS -
“Fools - what do they know?!!”
I jest, or do I?
Anyway, if I may I beg to differ. Yours is not a small success story, it is a huge, nay ginormous success story and don’t let anyone tell you otherwise.
You must tell us more on how you did this. The turnaround from
to
is quite remarkable and really needs to be written in a text book on “How to”. If anyone has any doubts as to what is achievable your story has to be held up.
I take my hat off to you Sir :
Wishing you all the best as you head towards the shower!
Namaste|
As a PS, what do the room full of Consultants, Doctors, Nurses and Physios make of all this? To what extent were they involved in this remarkable journey? I would just love to see their faces when you walk up to them and remind them of what they said that day in that room!
That’s a great success story and very inspirational for the new people just joining this community. A big well done to you. You must be very proud of everything you’ve achieved.
Regards Sue
What an amazing achievement @PhilipS. You should be so proud of what you have overcome!
I’m sure your story will help to inspire others and to let people know that there is still hope
Wishing you well on your continued journey and I have no doubt that you’ll make that shower!
Anna
Well done!
Its amazing what can be done when told of what the future holds for us!
My husband keeps pushing and trying every day and I see the old him coming back slowly but its there!
Xxx
Hi, ManjiB as my wife says it’s getting past the no, I can’t do it stage. When I was wheeled into the room of Consultants et al I was on a mind bending painkiller. First it was convincing them that I was in no pain. I used to be got out of bed onto an Arjo, a device for transporting me. I used to ring the hospital bell for a bedpan and they would answer it up to half an hour later. By which time I’d messed myself! Eight weeks of that! It took them a week to organise eight carers at my house as they’d decided my heart was too weak to withstand intensive physiotherapy at a home. I fell out of a hospital wheelchair just before I had a video fluroscope, a device that x-rays your swallowing action. I have extreme dysphasia. That kept me in hospital a further week. At home I couldn’t go to the toilet when the carers turned up and I I didn’t want to go to bed at 7:30 pm so I quickly moved down to two carers first thing in the morning. (Now one carer). Anyway, I’ve walked in to my daughter and my son’s car, my local cafe, and I’m going on a 4 day break to the Cotswolds in 3 weeks! Self belief, that’s all it takes. Thank you for your encouragement and your kind words.
Namaste.
Thanks Anna for your kind words
Thanks Sue for your kind words
@PhilipS your story is truly inspirational. You have come so far and i have no doubt you’ll achieve even more. I bet your family are so proud of you & i hope it also shows the medical professionals that people can triph over adversity.
Hi Mrs5K as I sit on my sofa day after day I don’t feel very inspirational. My family are proud of me, but I don’t think that the medical profession gives me a second thought I just don’t want to be a burden, especially on my wife. At 64 years of age I should be looking forward to retirement not having to fight for each day.
Oh you are inspirational and you have shown you have the determination to improve more so I have no doubt you’ll soon be off that sofa. It will come in time. Nb
I remember saying to my hubby about being a burden. His response was I didn’t care what state you came home in as long as you came home. I think all our loved ones probably think the same.
Philip you are a great example to anybody suffering from a stroke. It doesnt matter what you are told by the professionals. You are responsible for you. Do the exercises given to you by occupational health and physio even when you cant see the point. Im two years from my stroke and physio are trying to help me with my toes on my right foot! Im extremely grateful for all the help ive been given
Thanks for your kind words. I’ve only seen physios once in the past 6 months. I’d broken my right foot some 6 years ago but misdiagnosis missed it and it’s set itself at 90 degrees to my left foot. The physios helped me finally get it diagnosed. So I find it very difficult to walk at the best of times, never mind having had 2 strokes! BTW it’s called Charcot foot, it’s caused by diabetic neuropathy. Locum doctors, podiatrists and the orthotics department all missed it!
Your foot being at that angle must make it more awkward for you to get about. I guess it is too late to do anything about it now & you have probably adapted anyway.
Hi the bottom of the foot is commonly known as rocker bottom, so it’s very difficult to balance, which is completely shot by stroke anyway. My heart has ejection rate of 35% so I can’t be anaesthetised for an operation either!
That is an amazing story and photo Philip. Just the right day for it to as my husband is feeling really low because he feels so hopeless and upset that he can’t do the things he used to.
Thanks again.
If I can do it Trisha2 then anyone can do it. Anyone! Sure some days I get depressed but I get over them. I no longer feel sorry for myself. I feel sorry for my loved ones, except they tell me how proud they are of me.