Quick update on my own recovery and CPSP. So today I’ve been back to the stroke unit at royal stoke hospital for an appointment with stroke consultant about my CPSP. Very strange being back there where I spent a couple weeks last year while they got me medically stable before I got transferred to a rehab unit
So I’ve been put on 2700mg of gabapentin a day and see how it goes, and if it doesn’t work to get in touch with them in few weeks and get it upped or changed.
While there they checked my blood pressure which is good and affected left side movement which is good but in the coming weeks I’ll be getting some sensory physiotherapy.
Just wondering if anyone on here has had any and what is and did it help?
Thanks for listening and keep your fingers crossed for me that the CPSP subsides, cos until it does I can’t really move forward to returning to my old normal life
Cheers. They’re trying to get my pain manageable below a 5/10 It’s currently about 8/10 every day but without the gabapentin it’s a 10/10 so so they do take slight edge off the pain.
They want to keep persisting with the gabapentin cos I’ve had no side effects, so far with them. The also mentioned about the possibility of introducing something else like amytryptoline with them. My gut feeling is that that’s what I’m going to need. Because I’ve been taking gabapentin for a while now, been told I only need to give it 2 or 3 weeks to tell if they’re working or not, and if not to get in touch with my gp to change it and try something else
I’m same as you Nigel. Amytryptoline wasn’t any help for me
I’m still currently taking 2700mg of gabapentin. Its been hit and miss so far. But been told to leave it a bit longer( been on that dose since 27th May) before trying the maximum dose of 3600mg cos it could possibly make the stroke pain worse
It seems the search for the right solution for us both continues. Let’s hope we both find it soon👍
No not really. My wife would say I’m always stressed
What I would say is that I do find at times if I get engrossed with something on tv I don’t notice it as much.
I do find it hard to stay positive and look forward to a day when I can wake up and just feel like I used to prior the stroke
Even as I’m typing this, the pain is easing slightly but then it can just kick in full pelt at any time
Fingers crossed for you the acupuncture goes well
