Hi has anyone else had seizures after a stroke ? Weirdly I had the first one exactly a year after my stroke, just when I thought it was all over 
, had a second one the other night 3 months later. Both when I was asleep absolutely terrifying
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Hi my first post i had a bad stroke last September and came home in January and suffered two seizure s very frightening but one was laying down and onesat on a chair soall 0k1stone ct scan showed no problems 2nd one i kind of fought it off aparentlyits quite common after a bad stroke due to the scartissueethe brain is trying to healaround i was prescribed epilepsy drugs and haven’t had any for three weeks now! Hope this helps
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Thanks for the reply, hope you don’t have anymore 
, so frightening x
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@Caz3 I don’t get seizures but i believe they are fairly common after a stroke and they don’t always happen straight after. I can’t begin to imagine how terrifying they myst be. Have you got meds to help control them?
Hope they settle for you. Xx
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@adsmoore17 Hi & welcome to the forum. I hope you are getting on ok after your stroke & it’s good to hear your meds seem to be helping with the seizures. I have my fingers crossed that remains the case.
Best wishes
Ann
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Thanks , I can’t get meds as my doctor won’t prescribe until I’ve seen the neurologist which I did a month ago, they have lost my notes argghh 
will be back on the phone again tomorrow
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Oh thats infuriating. I’ve been to appointments where they haven’t had my notes & that is bad enough as you’re having to repeat yourself all the time & they can’t see whats already been tried.
In this day and age you’d think they would be on the computer.
Hope your neurologist appointment goes well.
Ann
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Hello Caz, I’ve had seizures too. After 12 weeks I had them down my effected side. I went to A&E, like adsmoore17, blood test and CT scan, nothing was evident. I was referred back to my original stroke doctor. He told me too, it was the scar tissue where my bleed had been. He prescribed me anti-epileptic tablets and since no bother. The downside is I can’t drive for a year.
Keep on at the neurologist and doc. It is horrible when it happens. I too got awoken with one. It lasted about 1-2 minutes. Fortunately, my wife calmed me down and got me breathing steadily so it subsided.
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Hi, yes. My seizures started a month after my first stoke 2 years ago and I have been on meds ever since as I’ve had several. My meds have been increased several times since then, but as of May last year I’ve not had a single one. I’ve yet to be told if I will be on meds forever or if one day the consultant will wean me off them.
Good luck & take care
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Hey guys. I had a stroke just a month ago, out of nowhere. After getting home, I thought I was okay, but then I had a seizure in my sleep. It freaked me out. Had another one a couple of months later, but both were quick and didn’t happen while I was standing. My doctors said it was common after a stroke due to scar tissue in the brain, so they put me on meds, but I wasn’t happy with how they made me feel.
I decided to try cannabis, and honestly, it really helped. The seizures slowed down, and I felt better overall. If you’re struggling with seizures too, check out Releaf—they specialize in medical cannabis here in the UK. It worked for me, and it might help you too.
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I had an ICH stroke in April last year affecting my right arm and leg, and I lost speech. I recovered from these fairly quickly.
Then in December I had a first seizure lasting 5 minutes. I had been just about to start the washing up when I realised both my arms and legs were shaking. After that I don’t remember anything. I bit my tongue in three places and banged my head on a cupboard door, cracking it in the process.
I woke to find my wife calling an ambulance. I was admitted to hospital where a consultant in A&E confirmed it was a seizure but there was no further damage in the area of my stroke. It was not diagnosed as epilepsy as it was only my first seizure. I was bruised and felt like I had been beaten up!
Two weeks later I had a phone appointment with a neurology consultant. He felt I was very likely to have another seizure. He put me on a starting dose of 25 mg of lamotrigine, increasing by 25 mg every fortnight until I am now on 100 mg twice a day.
Since the seizure my stroke symptoms have returned and are getting worse. My right leg is now wobbly and I have nearly fallen over several times.
The biggest problem is my speech, which had nearly recovered completely. Now I find I have gaps up to 30 s, while I am trying to find the words. Even when I do find something to say it is often not what I meant, but I just can’t find the real thing I wanted to say.
When I was told I was not allowed to drive for a year, I voluntarily surrendered my licence to DVLA. Their website recommends this as it takes longer to get it back if you don’t surrender voluntarily.
I decided to sell my car as the insurance and tax were due and the garage advised the timing belt would need changing at the next service. This would cost £1800 on top of the normal service and MOT.
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