Ive been very lucky after 3 days in hospital home . All limbs working just a bit of face paralysis.
The biggest and most unexpected thing is the fear.
When I got home fear of the bedroom (where it happened) fear of going to sleep ( in case another one & im not so lucky) fear of being too far from medical help. The massive knock to confidence.
That said i am building. The bedroom fear has just about gone tho I still have a wakeful period in the early hours and it’s hard not to worry at that time.
I am walking locally, yesterday a friend took me to a pub for a (0%) pint. Today my family took me to the cinema. Im looking forward to driving again I think it’s important to get out and not be so afraid of doing things. I feel I am making progress -or starting to. The Drs have explained i am better protected now on medication than I was before the stroke so I have to listen to that I know.
Very grateful for any thought’s experiences
If you read the stories on here you will see that anyone can have a stroke irrespective of age or level of fitness. You are now doing everything you and the doctors can to minimise the risk. The worry will destroy your life more than another stroke. All you can do is minimise the risk, you cannot eliminate it. However there is still a chance that an asteroid may land on you tomorrow.
There is still a lot in life to enjoy and look forward to.
Thanks JanetB. Great wisdom in your words. Thank you. (I’ll watch for the asteroid!). Seriously though, - Thanks👍
Hi Baldrick-- I experienced all those fears,too. The stroke occurred while visiting my son, and for the longest while, I didn’t want to sleep in the bed I had slept in there. But I am now on medications for the things that probably caused the stroke, so common sense told me that the docs and me have done everything to prevent another one, so there’s no point in expecting another one. When you think of it–all those years without medication and no stroke for most of my life. Now that I’m on medications, that makes a stroke much more unlikely-- more likely I’d be in a car accident (and I don’t go around worrying about that). just kept reminding myself of that and eventually the stroke fears ebbed away. Yours will too, I’m sure.
Jeanne
I think just about every stroke survivor goes through these fears initially. After all, you’ve just been through a life threatening trauma. And thankfully you’ve lived to tell the tale🙂
These feelings of fear, sleep disruption, worry, etc, are all symptoms of the shock and trauma you have just been through and may take a little time to fade. But they will, as you settle in and come to terms with what has happened.
Don’t let it control your life; you’re doing everything you can to prevent another one, learning to relax will also help too. Coming on here to air any concerns will also help to reassure and relax you. So keep talking and don’t ever feel your making a nuisance of yourself, it’s what we are all here for ![]()
Lorraine
I am 2 weeks post TIA and I understand your fear. Mine has subsided a lot, now that I have had time to process and accept what happened. At first I was fighting accepting it, and wishing things were different, but I soon realized that wishing it away only made things worse. I am now looking forward to this next chapter in my life…to be a kinder, more understanding and compassionate person, bc now I have been through this, I can help encourage someone else. Praying this makes us stronger and wiser…and appreciative of the simple pleasures in life! We can be better because of what happened, if we choose. It will take a bit of time to get to a new normal, but you will get there!
The biggest mistake I made in the early days after my TIA was not talking about how frightened I was. You’re already talking about your fear here, and to a bunch complete strangers (though the most supportive set of strangers you could wish to meet) so you’re off to a much better start than me. It really does help. The weeks and months ahead will be about healing, physically and mentally, so take your time, be kind to yourself and seek the support of those around you. It’s not an easy journey, but in my experience it does get better.
@Baldrick everything you are experiencing is very normal. I think most of us go through the fear of having another stroke & the furst time we return to the place it happened is always difficult. I find it is better to confront that fear as often it is a bit irrational. It sounds like you are doing that so well done.
You are now on meds to reduce the risk of another stroke. There are never any guarantees but in time you will think about it much less.
Best wishes
Ann
Thanks Ann/ everyone,
All your words have helped & many of the fears are subsiding - i put this down in no small way to all of you and what you have said - thanks.
@Baldrick These fears never go away, Its how you deal with them. I am currently in work where it happened. But if I let it affect me. I will only exist and not live. I was letting it affect me, but through the help of talking on here. I have managed to move forward. Do you have the ability in your home to move from your bedroom or redecorated and rearrange so that it looks like a completely different room? Going forward, Good Luck ![]()
Just know this, it does get better. And just knowing this should help speed it up a bit ![]()
Lorraine
6 months after and trying to have a bit of hope, hopefully not false hope but as things have been going well ,gone from not walking to walking unaided. As I was told by a nurse " all the physio in the world is no good if I don’t believe I can do it" so trying to think of a good future,not easy but trying. Keep going
Russ
Amazing Russ,
Very encouraging progress u must be very proud - I would be. As you say, keep believing keep pressing forward keep going. We all must - thanks for the inspiration.
