Research Participants Needed: What do chronic pain patients and pain management clinicians believe should be the role of a pain coach?

Teesside University (Oso Pain Management Ltd)

Keywords: Pain, self-management

Open to: Adult stroke survivors

Deadline: 28 February 2024

Apply: You take part by clicking this link

Contact: If you have any questions please contact Dr Joseph Parsons (

Research participation requests are sent to the Stroke Association from external research institutions (e.g. universities and hospitals).

We conduct checks on these before promoting but are not involved in their running. This means we cannot comment on trials and have no affiliation with them.

Researchers at Teesside University and PAIND are looking for people living with chronic pain to complete a less than 10 minute survey to give their opinions on what role a pain coach should serve in supporting people with chronic pain.

You will then have the option to expand on your answers, if you choose, in an interview. The link to learn more and take part in the research is provided: PAIND research study | The role of a Pain Coach

What is the opportunity about?

The term “pain coach” is currently unregulated. This means anyone can call themselves a pain coach regardless of their training or background. Pain coaches in the literature range from clinicians with 20+ years of experience in pain management, to individuals with 3 hours of training.

This work seeks to interview/survey both chronic pain patients and NHS pain clinic staff to assess their perception of what the role of a pain coach should be, and what training would be required to achieve that.

In this way, the term pain coach can achieve a degree of standardisation and this work can lay the foundation for development of future training courses for pain coaches.

What will it Involve?

We would like you to participate in a short anonymous survey to answer questions about what a pain coach is or should be.

Upon completion of the survey, you will be offered the opportunity to complete a 30-60 minute interview where you will be invited to expand on your survey answers.

This interview will be conducted via video conferencing software such as Microsoft Teams.

Who can take part?

To be able to take part though you must be:

  • over 18 years of age
  • able to speak and read English and communicate effectively in English
  • able to provide informed consent

What will you get from taking part?

There are no direct benefits from participating in this research project. However, your input could help with the development of an accredited training course for pain coaches. This could prevent individuals from calling themselves pain coaches with no training, potentially risking harm to patients.

How Can I Take Part?

If people are interested in taking part the participant information sheet and survey link can be found here: PAIND research study | The role of a Pain Coach

Information on taking part in research

Research participation helps research teams to test new ideas and approaches by sharing information or trying new approaches in clinical trials.

Find out more about taking part in research

Taking part in clinical trials can support research to:

  • Stop strokes from happening.
  • Treat strokes.
  • Support people to rebuild their lives.

By taking part in research, you can help us to learn more about stroke and make a difference in the lives of future stroke survivors.

Find out about how our research has made a difference in the lives of people affected by stroke.

We have produced the Clinical Trials and Stroke booklet to explain more about clinical trials and answer questions you might have about taking part. The booklet was produced with the NIHR Clinical Research Network.

Information on Research Involvement

Research Involvement is a different way of contributing to research that involves collaborating with researchers to design decisions about how research is shaped and conducted.

You do not need any research knowledge to do this, your lived experience is what would otherwise be missing. Involvement is about contributing this to shape projects in ways that create most potential to benefit people affected.

Find out more about how to get involved shaping research.