My stroke has left my left arm, hand and knee severely restricted due to spasticity. I am trying to help my brain rewire itself and it has been suggested that the red light treatment may help. Has anyone any experience of using it or know anyone who has? Is it worth pursuing? Thanks.
Margaret
Hi, canāt say Iāve heard of red light therapy but Iām sure someone on here will be able to help. My left side was paralysed following a hemorrhagic stroke 6 years ago. I will be watching the replies carefully.
Good luck, hope you get xome useful replies soon.
Regards Sue
Yes I use it daily. That said however I have been using it to help with brain fog and fatigue primarily as have been left with spasticity in my left thigh only. I do find the red light therapy relaxing and it helps me sleep but as to the spasticity Iām not sure. To be honest the therapies that helps my thigh the most is exercise and the TENS machine that incorporates EMS (muscle stimulator) I use it regularly as it also helps with pain. I have a very good physio who makes sure Iām not doing myself more harm than good.
As I said previously, I searched primarily for help with fatigue, brain fog rather than anything else, so I canāt link Red light therapy directly to stroke. Does that need to be the case ?
I used red light therapy on my mother. I did it for about 2 months, and consistently. I did not see any improvements in her with it. Trust me - if there had been, Iād be now the first to share it with you all. I had her do hydrogen therapy, too, but it did nothing, either. She did it for about 6 weeks or so, and made my life miserable in the process (very difficult to get to do anything). I wasted a lot of money. I loved my mother dearly, but getting her to do anything she didnāt want to do was a nightmare. It wasnāt all her fault, as the stroke made her too mentally ill.
What I am saying: it didnāt work for my mother, but she was almost fully physically recovered from her stroke when I was using them. I did these therapies exclusively to improve her mental and emotional health. That said, these therapies may work for physical issues after a stroke. I donāt know.
Iām all for alternative therapies. You just have to find those that actually work.
Iām sorry to hear you had such a stressful time getting your mother to comply. Just wanted to add that the quality of the red light machine is important. Too many factories in China selling off any one rubbish and not checking wave length or intensity which is important.
Hello @Deexxx - Welcome to this community and thank you for sharing your knowledge about red light machines with us.
I notice you are a first time user of this forum and so wanted to let you know that the post you replied to is actually quite old - nearly 2 years old. So it is possible members have moved on and may not see your message.
That said, I saw it, so you never know
I am sure you will have other things you would like to share with us and so I will look forward to further enlightening posts from you
Wishing you all the best.
Namaste!
Thanks for the heads up, Iāve been looking into a few different red light therapies and it seem to have good results for tbi, Alzheimerās, Parkinsonās but thereās an issue with cheap imitations from China I thought despite it being an old post that Iād mention the quality js important - Platinum, Helios and Vielight were all recommended.
My husband is recovering from a
Stroke which left him with āextensiveā brain damage and we are leaving no stone unturned in his recovery.
Heās just started using a Vielight neuro pro which has two settings one for sleep and one for neuroplasticity. So far itās exhausting him which is usually a sign of healing plus his sleeping has improved (we monitor using wearable tech) but too early to say if itās doing anything to improve anything else. Research suggests itās worth a shot.
Hi Dee - Youāre welcome and thanks again for sharing your expert / first hand knowledge about RLT devices.
Itās nice for me to see a post from someone like you who is ālooking to leave no stone unturned to aid recoveryā as it is fairly rare for various reasons. I am a carer for my Mum who also suffered extensive brain damage following an ischaemic stroke back in 2019 but we have not been able to do anything anywhere near what you might have been doing for your husband.
I am pleased your husband seems to be responding to the Vielight neuro pro.
If you have not had a chance, you may wish to search this forum for other posts on the subject or anything else you wish to know about - there are many knowledgeable stroke survivors and carers on this forum who happily share their experiences
As you are looking to āleave no stone unturnedā, I will take the liberty to put you in touch with Roland @pando with whom I have had a few discussions on doing all you can to beat the stroke. Roland has tried all sorts of things including RLT and is very happy to share his experiences with us. Recently he has started a YouTube channel where he posts videos which you may also find worth watching.
Wishing you all the best.
Excellent! Thanks for sharing, delighted that Iām not the only biohacker on here
We are just coming up to 60 hours of hyperbaric (hard to say it helped annything specific but my husband has progressed a lot in rehab since he started) and Iām looking into PEMF so if anyone has direct experience of this Iād love to hear.
This forum is full of amazing people doing all sorts of things.
If you search any topic, you will likely find a post.
@pando (Roland) is very much into these things and if itās possible he will have done it. Look up his posts and you will find all sorts. As I mentioned earlier, he is doing stuff on YouTube right now but he still pops by here.
See below post on hyperbaric treatment.
Search for PEMF and youāll get posts like this
If you find anything and want more info - just write back and in most cases they will get back to you (depending on their personal circumstances).
Thanks ManjiB
..and here is my channel, and my quest to create the right conditions (including the right mindset) and supply all the right nutrients for a complete healing,
https://www.youtube.com/@Start-Again-xyz/videos
Everyone welcome, of course ! Roland
Thanks Pandora we have been on a similar mission, I look forward to checking out your journey.