I’m not sure if this category is the right place for this, or if it should be in Life after stroke, but if that’s the case, you will have to correct me, that’s fine too ![]()
Robin is home since a week back now, and I’ve seen the following changes since then.
His speech is better. It depends a bit on the subject, and also if he’s tired or rested, but in general it’s more fluent than it was a week ago.
He’s got easier with emotional regulation. The first two days he cried a lot. Was devastated about what had happened, the things he had said. He couldn’t remember who he said what to, and he kept apologising for everything. That has changed and he’s more stable today.
He does understand that I haven’t left him, although he still needs to do “reality-checks” on occasion. He told me the other day that he still have more than one thought about the same subject to choose among, and only one of them is what is real. So, because of that he is checking in with me, hugs me just to make sure I’m still here.
But he’s doing a lot better just by being home as it seems. The Stroke nurse, the physio therapist and also the speech therapist was here this morning. Thankfully his blood pressure is going down. He was diagnosed with polycythaemia, so somehow he’s got too many red blood cells, which makes his blood like syrup and the circulation gets very sluggish.
He had Aspirin for that up until a couple of days ago. And he will see the haematology team as an outpatient in a few weeks time. So, we’ll see how that goes.
The blood clot in his forehead seems to be there to stay, but the pain should subside with time. His eyesight is still rubbish. No peripheral sight on his right eye, and very blurry on the left eye. He’s also got problems identifying objects, so that hasn’t changed much.
But, unless he’s tired, he understands more of what is said and he’s easier to talk to now than he was a week ago.
Memory comes and goes, and overall this is all depending on how rested he is.
It’s the same with his ability to move and his balance, but he’s found a good pattern here, so he can walk from the bedroom to the bathroom, or to the living room and kitchen and so on. Although, I think that in an environment that he doesn’t know, it would be a bit different for him.
He’s using his laptop again, but so far he’s got problem reading, so he mainly watch videos and that sort of thing. Reading and writing seems to require a lot of focus, and that makes him tired very quickly.
He had tried to write something the other day, just words, and the only thing in that list that made any sense was his surname. He couldn’t even tell me what the other words meant.
But thankfully, he’s in a good mood in spite of the headaches and other difficulties, so he’s optimistic. And that means that half the battle is won
He can make himself coffee, make sandwiches and he’s even taken out the trash and helped me clean up a bit. Loaded the dishwasher and so on. Although, on occasion I find things in the fridge that doesn’t belong there, but it could be a lot worse. He’s not clear enough to take responsibility over his own medication yet, so I’m handling that bit for him.
But overall, there’s been a lot of improvements since he came home.
Thank you for all your encouragement and for the warm welcome ![]()
Christa