Hello Jim,
For me, the clue is in the above sentence. That said, I am not medically trained and nor do I profess to be an expert.
I do speak from personal experience and it seems to me you might not need any medication. I don’t know the full background and why the neurologist recommended medication. You had waited 4 months to see the neurologist.
Question: Did you have any seizures during the 4 months you waited?
Answer: It seems the answer is no unless I missed something in your post. In that case why do you need the medication?
I shall let you think this through.
Here’s what happened to my Mum. Some time after her stroke, she started to have seizures. It was in the early days of our post stroke journey and so were green behind the ears when it comes to carer experience and stroke survival. So we ended up in A&E and anti-seizure medication was prescribed. We did not like the look of it and did not like the possible side effects.
We thought about what had happened and that might have led to the seizures. Mum’s sodium level (electrolyte needed for brain activity) had fallen through the floor as a result of the side effect of BP lowering medication that she was on.
By good fortune, the consultant actually told us to stop taking the BP lowering meds but did prescribe the anti-seizure meds.
We didn’t take them after the first day and in fact we did have seizures two or three times more after this but we managed the situation - made Mum safe by putting on her side etc.
Our belief was the seizures were caused by the low sodium and so we started monitoring this (blood tests through GP) and we stabilised it back to the normal range. Since then there have been no more seizures.
That’s our experience and maybe we have been lucky to have sorted it out this way, but I would suggest you might want to think about this and try it out.
You can either trust and go with the neurologist or you can listen to your body and see how you can help it. You can speak with your GP and see if you can be tested for electrolyte imbalance which may cause seizures, but going back to the beginning, I note you had your seizure after after having several busy days and overdoing things - this with your stroke brain is why you had the seizure. Your brain was overworked and you were under stress. So by nor overworking the brain and trying to manage your stress, you may also manage or avoid having seizures.
It is only my observation of what happened with Mum and there is no guarantee your situation is an]y way similar, but you might want to explore the likely cause and how you can manage before you commit to medication.
Everything you have read is my experience, and I am not suggesting it will work for you or that you should do this, but you might want to think about it.
In this camp, we are avoiding medicines as much as reasonably possible, but it is a personal choice.
Wish you all the best and stress free life 