Has anyone suffered from post stroke seizures? This maybe an old topic. The first started in hospital about3/4 weeks in the affected leg. The physios called it clonus. After I came home I’ve had 3, these were the whole left size (including face droop). Initially. I went to hospital as my wife and I panicked and scared it was another stroke. I had a CT scan and blood test. All ok. They are alarming to have. After a follow up appointment with one of the stroke doctors from hospital where I first went to; he prescribed AED (antiepileptic drugs), namely Levetiracetam 250mg/ 1 then twice a day. My stroke doc advised me several seizures mean a type of epilepsy. Hence, I am not allowed to drive for a year since the last one.
Apparently it’s due to the scar where my bleed was. Signals can’t get through properly or as the American Stroke Association call it; disorganised electrical activity! Mine were focal seizures - muscle twitches.
So far, since Christmas Eve, 2x dosage works. yay
My seizures lasted 1-2 minutes before my limbs were ok. The face droop was 20-30 seconds in length. Also, the home ones were at night. 2 x it woke me up. The others I was sitting down, with legs up.
If you’re getting these, ring your GP,ASAP, to speak to and be prescribed the right treatment.
Hi @mikey903, sorry to hear you’ve had to contend with seizures.
My husband had a stroke in Sept 2024. He is still in a rehab unit and has had 2 seizures in past 2 weeks (also first ones). Awaiting referral to a Fit Clinic and is on medication.
He is due home mid July which is both exciting and daunting. Concerned to hear about nighttime seizures… He’ll be in a room downstairs (until he can walk again ). Need to get guidance on this
Hello Lara1, excuse late reply. For seizure issues get your GP to refer you to a neurologist, especially if they are frequent. It just means his brain is working well and has trouble getting new messages through. You could get a baby monitor if you want to track him. My seizures are now left leg only. The neurologist informed my GP to up the dosage. Once you are in a routine you’ll settle a bit. It is scary for both of you. Make sure you get a care package for home help, physio, carers etc. That should come via your local authority. They will provide the equipment too. Mostly get good physios. It really helps.
Thank you @mikey903, I’ve been told we’ll get a seizure mat to put on his bed/wheelchair so at least I’ll be alerted to a seizure if I’m not in the same room. I’m glad you mentioned its a sign that his brain is working well. I’m no brain expert but I was wondering if this has started happening because his brain activity is starting to spread to new areas - so a bit of a positive there! Do you mind sharing name of your mediation. I can’t remember Gary’s but the skull surgeon who recently checked G’s cranioplasty said it was an unusual one?
Hello Lara1.
I use Levetiracetim 750mg now.
Alternative is lemotrigine.
Hope that helps.
I have a consultant neurologist as part of the epilepsy clinic.
Make sure you get the right help.
Best wishes.
Thank you! Do you still have seizures? Are you on your own much? I am concerned about leaving Gary in case he has a seizure… Have you, may be wrong expression. got used to possibility that you may have a seizure? Do you get any warning signs? Have you noticed things you can do to prevent them?
Apologies for barrage of questions, and I know everyone is different..
Hello @mikey903 I have seizures too and am on Brivaracetam.I don’t remember what happens but my daughter was with me and described it to a nurse who determined it was a seizure.I still get funny turns.but I think that it is a panic attack.This creeping sensation comes over me like insects are crawling on the inside of my skin.soon after the stroke I had seizures which were medicated and then I was weaned off the meds and that’s when they restarted.
yay
thanks Simon, I’ll mooch through. So far the meds are working.
). Need to get guidance on this 
but I was wondering if this has started happening because his brain activity is starting to spread to new areas - so a bit of a positive there! Do you mind sharing name of your mediation. I can’t remember Gary’s but the skull surgeon who recently checked G’s cranioplasty said it was an unusual one?