Online survey about your experience with a Stroke and/or Brain Injuries

We are interested in learning about the experiences of people who have suffered a brain injury. This includes experiences of people of have had a stroke. Due to blood flow being disrupted and brain cells being deprived of oxygen from a stroke, this causes brain injuries. In particular, we would like to explore the factors that might impact on the experience of a brain injury and how aftercare can be improved to support recovery.

1. Research to date has focused on physical factors that might have an impact on a brain injury (e.g. smoking, diet, etc), but there is little research exploring the extent of damage after a brain injury. It also can be influenced by relational factors. The current research will explore whether childhood trauma has an impact on the experience and consequences of brain injury in adulthood.

2. Most individuals recover within a few weeks following a brain injury, and there is research suggesting that therapeutic intervention can provide support as a form of aftercare. For example, Sayeg, Sandford and Carson (2010) found that Cognitive Behavioural Therapy (CBT) can be used to support brain injury recovery. However, informal evidence suggests that there is limited access to such interventions. The current research present will further investigate the availability, uptake, and perceived benefits of mental health support following a brain injury.

You are invited to take part in a research study exploring the above issues. If you would like to participate, please click on this link to complete an anonymous questionnaire online:



This questionnaire will ask you about you (e.g. age, gender, etc), your brain injury, your previous experiences in childhood, your wellbeing, and your access to and use of counselling services. At the end of the questionnaire, you will be provided with a debrief statement signposting support services. You will also be invited to provide your email address if you would like to participate in a follow-up interview about your experiences. This questionnaire can be completed at any time in the next week. It should take no longer than one hour to complete this questionnaire, but the whole questionnaire must be completed in one sitting as it is not possible to save and return to your answers. Please note that some of the questions in this study may be available in the medium of English only.

Your participation in this research will help to give us with a better understanding of what might worsen the experience of a brain injury (or even make it more likely to happen in the first place) and how we can best help people through support after a brain injury.

If you wish to contact the researchers of this study, please contact:

Kathy Stanley

Angela Grimshaw

Mandy Lynch