Thank you for your thoughtful reply❤️ Empathy is good - we all need it!
Good job you had that second MRI - to know where the pain is coming from must help a lot, even though it doesn’t stop the pain. Everything I was experiencing was purely sensation until a few months back. Now the sensations have become painful, although not excruciatingly so. But my fear is that they may become worse. Something is causing the pain. I just need to find out what.
You say you’re learning to manage - I hope you can find something to lessen the pain and make life more enjoyable. Pain sucks😖
I think it is one of those diagnoses that is a catch all for many weird and wonderful symptoms. It is common for drs to say it’s FND if they can’t make it fit anything else. But they should positive rule it in rather than they just can’t find another cause. I really hope you don’t have FND. I know it took me a while to accept the diagnosis but I am ok with it now and continue to work to improve. I also live on hope that one day my brain will suddenly work out the signals are skewed and will rectify themselves.
I hope you get some answers and more importantly some relief from your symptoms soon.
My OT (and previous PT who works with my OT) believes the stroke triggered FND for me, too. Even though I don’t have it, according to the neurologist and myself. I think they’re just lookIng for a label to explain what they can’t find a reason for.
I have discovered that they know Nothing and that other than taking BP and blood and then giving you pills to control said test results there is nothing else they can offer . Healthcare In this country is not great, just don’t understand why people think it is. Compared to France/Europe we are awful. There are Many viable alternative therapies available only to people with money . Homeopathy, acupuncture, massage and diet can , depending help a lot . Good Luck
I am afraid I am going to burst even this glimmer of a hope of a bubble.
I was given BP reducing meds that I did not need on two separate occasions by two separate GPs in the same practice within a few weeks of each other. On both occasions they based this on one single BP test - I’ll say no more on this as we all know how BP readings should be taken (and that is if they are even then a reliable predictor).
Bloods - they only do routines which is typically diabetes and unless you ask for it they don’t check for other things such as B12, minerals etc. etc.
I am afraid I cannot share too many good experiences of doctors or healthcare professionals and I accept I might be in a minority on this as there are many who are served very well by the NHS and associates.
At first my hubby had a lot of shoulder pain and after scanning it they found he had bursitis and tendinitis in it. Since leaving hospital he’s been seeing a neuro physiotherapist and she seemed to spend a lot of time massaging his shoulder. I was a bit miffed at £86 and hour it seemed a waste of money but she explained the fascia wasn’t allowing his shoulder blade to glide over his ribs, causing pain when we moved his shoulder. Also the muscles on the left side of his neck get involved in any attempt to move his left arm or leg so they are often tight. This causes pain at the back of his head but rhe problem is neck muscles.
Caring for hubby has put strain on my body, so I see an oesteomyologist once a month. She’s a cross specialist as she takes bones, nerves and muscles into account when treating me. Good luck.
When I was in hospital, the nurses damaged - subluxated - my shoulder by pulling me around by it. When I mentioned this, they said it was how they’d been trained to move patients! I qualified and practised as a physiotherapist back in the day when non-NHS qualifications were accepted - this changed about 30 years ago- so I did have more knowledge. Says a lot about nurse training.
just don’t understand why people think it is. Compared to France/Europe we are awful. There are Many viable alternative therapies available only to people with money . Homeopathy, acupuncture, massage and diet can , depending help a lot . Good Luck 
