I know what you mean. If I do too much in the garden I’m wobblier than normal after BUT I don’t tend to bring on fatigue like that so feel it’s sustainable - but finding & sticking to ‘the line’ is a balance
I know exactly how you feel, there’s nothing wrong with longing to regain our freedom. I’m grounded for the moment, but better days will see me out and about, cheers, Roland
Yes Roland the disability is only part of it constant pain all be it reduced or controlled makes me very sad with no time limit on it , could be for the rest of my life, no significant changes in sensation on my affected side in over 3 years, wears me down and pushes my endurance to the limit. Of human tolerance.
Yup, Endurance, tolerance, stamina.
Well, if your affected leg is working so well on the treadmill, and in real life, I expect it has some feeling, right? and surely some stimulation can help induce more sensation?
just trying to get the big picture, good luck, Roland
I’m 16 months post stroke (severe 26/42), and know exactly what you mean, because my nerves, muscles (which I’ve managed to keep in relatively good shape) and feeling is only starting to come together now. Proprioception is still super weak and my Chinese dr says I’ve turned a corner, and it’s time to focus on inner awareness, and leave the outer world… my muscles are reasonably strong, but I’m full of paraesthesia in my foot. The next challenge !!!
Hi Roland my arm
Is totally flaccid just an appendage feeling but no basic movement can grip but nothing more the leg is strong but no flexibility in the knee or ankle the brain messages don’t come through although I can walk badly without a stick using it like a plank of wood.
The invisible line dividing my body hasn’t majorly changed since the spell in hospital
Ultimately my sensory and moto cortex’s were damaged by the stroke so waiting for it to reroute and help me improve meantime life goes on as does the pain in my leg and foot. So I have to suck it up and endure.