I know exactly how you feel, there’s nothing wrong with longing to regain our freedom. I’m grounded for the moment, but better days will see me out and about, cheers, Roland
Yes Roland the disability is only part of it constant pain all be it reduced or controlled makes me very sad with no time limit on it , could be for the rest of my life, no significant changes in sensation on my affected side in over 3 years, wears me down and pushes my endurance to the limit. Of human tolerance.
Yup, Endurance, tolerance, stamina.
Well, if your affected leg is working so well on the treadmill, and in real life, I expect it has some feeling, right? and surely some stimulation can help induce more sensation?
just trying to get the big picture, good luck, Roland
I’m 16 months post stroke (severe 26/42), and know exactly what you mean, because my nerves, muscles (which I’ve managed to keep in relatively good shape) and feeling is only starting to come together now. Proprioception is still super weak and my Chinese dr says I’ve turned a corner, and it’s time to focus on inner awareness, and leave the outer world… my muscles are reasonably strong, but I’m full of paraesthesia in my foot. The next challenge !!!
Hi Roland my arm
Is totally flaccid just an appendage feeling but no basic movement can grip but nothing more the leg is strong but no flexibility in the knee or ankle the brain messages don’t come through although I can walk badly without a stick using it like a plank of wood.
The invisible line dividing my body hasn’t majorly changed since the spell in hospital
Ultimately my sensory and moto cortex’s were damaged by the stroke so waiting for it to reroute and help me improve meantime life goes on as does the pain in my leg and foot. So I have to suck it up and endure.
Yes that sounds hard… like myself, I never knew life could be so hard
That’s why your 5K in under 30 minutes is an amazing achievement
…and I’m sure you’ll do more and more… bravo, Sir
Hi Simon alas my arm has made little changes or no improvement in the three years passed.
It does have some feeling bu no major motor movement.
The hand can grip r the shoulder operation is weak and some minuscule Tod the fingers in a very small way. Not good news there and a.considerable source of sadness and disability.
I think Simon, & Frederickson (sorry I’ve forgotten your first name), @mrfrederickson
that what you have done is chip away each and every day, just tiny increments. Even though something seemingly gets nowhere, if effort and thought is put into it, all sorts of improvements are actually being made, that are barely or not at all visible. That is the secret to seemingly impossible achievements… work with no immediate result, or at least no immediate gratification.
Now, it’s my turn to chip away at an impossible situation. I have to solve my paraesthesia problem. I have a few strategies (very few) and a few tools (oils, iteracare wand, vibration board, acupuncture) and a few more I will need to invent to crack this problem. But if I chip away, every day, like our friend Simon, I’ll be damned if I can’t make some progress. What I will discover along the way will be fascinating…